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Low active b12 despite loading and monthly si
I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just leaking the b12 out again…. Active b12 June 2021 177 after loading (The out of the top of the range red dot) June 2023 43 with Bi monthly si since June 21 after the loading. March 2024 45.6 after 2 weeks of every
I’m feeling baffled by these results. Any insights welcomed. Feels like I’m just leaking the b12 out again…. Active b12 June 2021 177 after loading (The out of the top of the range red dot) June 2023 43 with Bi monthly si since June 21 after the loading. March 2024 45.6 after 2 weeks of every
Laundretta
in
Pernicious Anaemia Society
4 months ago
B12 orders
Can I just ask, is there is a general concensus on which is the best type of B12 to order if you want to SI. Different people seem to be using different forms and I wondered if there was a general recommendation, do they all do the same thing or is it a case of trial and error to see what works best
Can I just ask, is there is a general concensus on which is the best type of B12 to order if you want to SI. Different people seem to be using different forms and I wondered if there was a general recommendation, do they all do the same thing or is it a case of trial and error to see what works best
Blueoxo
in
Pernicious Anaemia Society
4 months ago
Ferritin Update
update on 2 nd visit to Drs ! I got up at 6 which is extremely difficult for me with this exhaustion ! Was out side the Drs office before they arrived ! Receptionist tried to fob me of with a telephone visit, I insisted on face to face ! I had to wait till 3 pm ! This time I was armed with the NICE recommendations
update on 2 nd visit to Drs ! I got up at 6 which is extremely difficult for me with this exhaustion ! Was out side the Drs office before they arrived ! Receptionist tried to fob me of with a telephone visit, I insisted on face to face ! I had to wait till 3 pm ! This time I was armed with the NICE recommendations
Oliva1955
in
Thyroid UK
4 months ago
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Vitamin B Complex
G'day everyone, hope you're all doing well I would appreciate your advice on the following question - I read somewhere that we should have a break from taking vitamin B complex, would this apply to us thyroid sufferers and if so, for how long?
G'day everyone, hope you're all doing well I would appreciate your advice on the following question - I read somewhere that we should have a break from taking vitamin B complex, would this apply to us thyroid sufferers and if so, for how long?
Carri3
in
Thyroid UK
4 months ago
Safe arrival from Verdandapo.
Hi guys just to let you all know my B12 came promptly and safely from Germany. However they weren't packed with any puffed Styrofoam just let loose in the box. I ordered Pasco Hydroxy with a sell hy date of 2026 and two boxes of Panpharma Cyano 04/27 sell by date. I ordered cyano to give it a go as I
Hi guys just to let you all know my B12 came promptly and safely from Germany. However they weren't packed with any puffed Styrofoam just let loose in the box. I ordered Pasco Hydroxy with a sell hy date of 2026 and two boxes of Panpharma Cyano 04/27 sell by date. I ordered cyano to give it a go as I
WorkingProgress
in
Pernicious Anaemia Society
4 months ago
New Consultant-Different Plan
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Lassithi
in
Thyroid UK
6 months ago
12 Day Trial
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
1.5mg methylcobalamin, 1.5mg adenosylcobalamin, 1mg hydroxocobalamin. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. Results of this trial are positive. Much closer to knowing what is most effective
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
B12 Mouth Spray
my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day. Do you think it will have any effect? Have you tried it?
my partner bought me the B12 mouth spray - apricot flavour! Up to 4 sprays a day. Do you think it will have any effect? Have you tried it?
Porridgeoaties
in
Pernicious Anaemia Society
4 months ago
Taking supplements but gaining weight fast
Hi folks, Just wondering if this is normal common. I have been on supplements now for about 5 weeks. I'm feeling a million times better more energised normal but I have an insatiable hunger. Especially for chocolate. Its really only in the past. I have put up half stone in those weeks. I am taking,
Hi folks, Just wondering if this is normal common. I have been on supplements now for about 5 weeks. I'm feeling a million times better more energised normal but I have an insatiable hunger. Especially for chocolate. Its really only in the past. I have put up half stone in those weeks. I am taking,
madeline05
in
Thyroid UK
4 months ago
Do you want to stop guessing what food and supplements are helping you and which are hurting you? Or at the very least a waste of money?
I recently took the $300 leap and sent my saliva, blood and stool sample into a newer innovative longevity clinic called viome. (No affiliation, or compensation.). In return I receive a 133 page report on the full pharmacology of my body. The list is incredibly comprehensive down to listing every
I recently took the $300 leap and sent my saliva, blood and stool sample into a newer innovative longevity clinic called viome. (No affiliation, or compensation.). In return I receive a 133 page report on the full pharmacology of my body. The list is incredibly comprehensive down to listing every
No_stone_unturned
in
Advanced Prostate Cancer
6 months ago
obtaining B12 injections in Melbourne Aus
recent moved to Melbourne from NZ. I was self injecting, due to next to useless doctors. My test result was 2 points above deficient. I would like to continue them in Australia, anyone got any advice on getting the supplies. I know there was shortages for them recently, so not sure if this has corrected
recent moved to Melbourne from NZ. I was self injecting, due to next to useless doctors. My test result was 2 points above deficient. I would like to continue them in Australia, anyone got any advice on getting the supplies. I know there was shortages for them recently, so not sure if this has corrected
Polkadot02
in
Pernicious Anaemia Society
4 months ago
Placebo effect
I have scoffed at doctors' suggestions that many people feel better when they are injecting B12 due to a placebo effect. That statement seems trite, simplistic, almost a throwaway comment. But it's likely that doctors attributing patient claims of feeling better to placebo are taking into consideration
I have scoffed at doctors' suggestions that many people feel better when they are injecting B12 due to a placebo effect. That statement seems trite, simplistic, almost a throwaway comment. But it's likely that doctors attributing patient claims of feeling better to placebo are taking into consideration
WiscGuy
in
Pernicious Anaemia Society
4 months ago
Neuropathy and RA
I'm being referred for nerve mapping by my consultant due to odd sensations in my middle finger and the side of my ring finger. Has any one else had this done? If neuropathy is diagnosed are there any treatments? I've been tested for diabetes and B12, both fine, so assume RA is the cause, but welcome
I'm being referred for nerve mapping by my consultant due to odd sensations in my middle finger and the side of my ring finger. Has any one else had this done? If neuropathy is diagnosed are there any treatments? I've been tested for diabetes and B12, both fine, so assume RA is the cause, but welcome
Sky42
in
NRAS
4 months ago
upping meds in pregnancy plus vitimins.
I went to my GP in very early pregnancy (4.5-5weeks) as had cramping and spotting, and also arranged bloods, as I knew I should be monitored as high risk with hashis/hypo. So on the 1st March my TSH was 0.13 mIU/L but after discovering I was pregnant and going for said bloods on the 18th March - I was
I went to my GP in very early pregnancy (4.5-5weeks) as had cramping and spotting, and also arranged bloods, as I knew I should be monitored as high risk with hashis/hypo. So on the 1st March my TSH was 0.13 mIU/L but after discovering I was pregnant and going for said bloods on the 18th March - I was
Needlehaystax
in
Thyroid UK
4 months ago
b12 injections
Hi I was just wondering if you could sign the below petition to keep b12 injections at my local GP not just for personal gain but for the elderly and people who have to rely on a very unreliable bus service as we are sort of out in the sticks. https://chng.it/pXmnfRSPHQ
Hi I was just wondering if you could sign the below petition to keep b12 injections at my local GP not just for personal gain but for the elderly and people who have to rely on a very unreliable bus service as we are sort of out in the sticks. https://chng.it/pXmnfRSPHQ
Muzzzy27
in
NRAS
4 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Why has my folate dropped?
Following on from last week’s post… https://healthunlocked.com/thyroiduk/posts/149844897/advice-assistance-regarding-starting-t3. I’ve managed to remember to do the anaemia bit of the MMH test. The results are in. Last tested February. Ferritin was 129 (?15-450) Active B12 104 (?37-210) Folate
Following on from last week’s post… https://healthunlocked.com/thyroiduk/posts/149844897/advice-assistance-regarding-starting-t3. I’ve managed to remember to do the anaemia bit of the MMH test. The results are in. Last tested February. Ferritin was 129 (?15-450) Active B12 104 (?37-210) Folate
Beads
in
Thyroid UK
11 months ago
beautician B12supplies
Can anyone explain to me how beautician clinics so called are offering B12 injections? Where and how are they able to get supplies when we can’t.Puzzled and angry.
Can anyone explain to me how beautician clinics so called are offering B12 injections? Where and how are they able to get supplies when we can’t.Puzzled and angry.
Mrsannabbott
in
Pernicious Anaemia Society
4 months ago
Active b12 result
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hullaballop
in
Pernicious Anaemia Society
11 months ago
zoldronate risk factors?
Hi , risedronate has only worked on my spine and not my hips for the last 2 years. hips at 16% risk, t_score -3.6. albeit I have not been taking enough vit D over the last 2 years. I have upped my vit D now, my calcium intake is fine. Zoledronate has been mentioned but I am wary of the risk of zoldronate
Hi , risedronate has only worked on my spine and not my hips for the last 2 years. hips at 16% risk, t_score -3.6. albeit I have not been taking enough vit D over the last 2 years. I have upped my vit D now, my calcium intake is fine. Zoledronate has been mentioned but I am wary of the risk of zoldronate
lindyloo2018
in
Bone Health and Osteoporosis UK
4 months ago
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