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ET JAK2+ - Could this be progressing and how do I obtain more information/support?
I've have had several consultants (it seems that heamatology has been a revolving door one in one out for years at my hospital) since my diagnosis and I feel like I am getting nowhere. My background is that I was diagnosed ET Jak2+ 10 years ago, after a lengthy battle with Drs over symptoms - they kept
I've have had several consultants (it seems that heamatology has been a revolving door one in one out for years at my hospital) since my diagnosis and I feel like I am getting nowhere. My background is that I was diagnosed ET Jak2+ 10 years ago, after a lengthy battle with Drs over symptoms - they kept
Semhuk
in
MPN Voice
3 months ago
Methotrexate and sun sensitivity
Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I have been on MTX for 2 years for LVV,the first year at 20mg the second at 15mg.I was not sensitive to the sun for the first year but this year within a short time of being outside my forearms develop a raised,slightly lumpy
Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I have been on MTX for 2 years for LVV,the first year at 20mg the second at 15mg.I was not sensitive to the sun for the first year but this year within a short time of being outside my forearms develop a raised,slightly lumpy
Oxfordboy2
in
Vasculitis UK
3 months ago
These photos (I hope) show my Ferretin and Folate blood results.
I recently had a blood test. Please could someone advise me as to whether they are ok? Thank you.
I recently had a blood test. Please could someone advise me as to whether they are ok? Thank you.
Everdean
in
Pernicious Anaemia Society
3 months ago
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Folic acid question
I've just had a thought about my folic acid. I have mild covid and my rheumy nurse told me to stop mtx for 2 weeks. I forgot to ask if I should continue taking the folic acid daily or is there no need to take it if I'm not taking mtx.Does anyone have experience of this please?
I've just had a thought about my folic acid. I have mild covid and my rheumy nurse told me to stop mtx for 2 weeks. I forgot to ask if I should continue taking the folic acid daily or is there no need to take it if I'm not taking mtx.Does anyone have experience of this please?
MadisonCounty
in
NRAS
3 months ago
Adrenal Problems I Think.
Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. Doc has got me reducing by 1mg a month and now down to 2mg. The trouble is, I have got exhaustion so extreme I am struggling to copeI have numerous Health Problems including Kyphoscoliosis, Afib and very severe Lymphodema
Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. Doc has got me reducing by 1mg a month and now down to 2mg. The trouble is, I have got exhaustion so extreme I am struggling to copeI have numerous Health Problems including Kyphoscoliosis, Afib and very severe Lymphodema
Attic
in
PMRGCAuk
3 months ago
Latest results
I’m currently on 125mcg of levothyroxine. Overall I’m feeling much better with most bothersome results now being constipation and intense itching which comes and goes. My doctors seem very reluctant to increase my levo and I’ve had to push for each increase so far. These are my recent results.
I’m currently on 125mcg of levothyroxine. Overall I’m feeling much better with most bothersome results now being constipation and intense itching which comes and goes. My doctors seem very reluctant to increase my levo and I’ve had to push for each increase so far. These are my recent results.
RosieTheRoo2023
in
Thyroid UK
3 months ago
lanzoprazole side effects
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
Stent2024
in
British Heart Foundation
3 months ago
Reversing Intestinal Metaplasia.
.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous conditions such as Metaplasia. Has anyone else read similar results from research. Thanks
.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous conditions such as Metaplasia. Has anyone else read similar results from research. Thanks
Helliborous
in
Pernicious Anaemia Society
3 months ago
Clear Cell Progression
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Susi3
in
SHARE Ovarian Cancer Support
3 months ago
high inflammation markers but no pain.
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests as I had been to the doctor complaining about lethargy and tiredness. I remain active, going to the gym 3x a week although struggling somewhat
Cycleman
in
PMRGCAuk
3 months ago
folate injection Australia
does anyone know how to get the above in Australia?
does anyone know how to get the above in Australia?
Inquiringmind12
in
Pernicious Anaemia Society
4 months ago
One more question about folate
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
ndodge
in
Pernicious Anaemia Society
4 months ago
Brothers. Recent blood results
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
Bean101
in
Thyroid UK
4 months ago
How about Folic acid. i read prostate's have receptors that can help trigger cancer when induced by folic acid
I have taken 5 mg per day folic acid for the last 11 years to help reduce methotrexate side effects for my Rheumatoid arthritis and now have prostate cancer. It may be a coincidence, but I thought I would ask if others had heard about this.
I have taken 5 mg per day folic acid for the last 11 years to help reduce methotrexate side effects for my Rheumatoid arthritis and now have prostate cancer. It may be a coincidence, but I thought I would ask if others had heard about this.
DugEH
in
Prostate Cancer Network
4 months ago
Coming off of Enbrel and Methotrexate before Operation
Dear All, I would be very grateful for others experiences whilst on a weekly Biologic prefilled and weekly Methotrexate tablets with Folic Acid 5mg 6 days a week. My daughter is 32 years old and having a Laparoscopy Operation to remove bilateral ovarian dermoid cysts on 16 May. When should she come
Dear All, I would be very grateful for others experiences whilst on a weekly Biologic prefilled and weekly Methotrexate tablets with Folic Acid 5mg 6 days a week. My daughter is 32 years old and having a Laparoscopy Operation to remove bilateral ovarian dermoid cysts on 16 May. When should she come
MJSlide1958
in
NRAS
4 months ago
New to RA
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Pjf0265
in
NRAS
4 months ago
New test results after NHS ones
Hi I got some good advice after being dispirited last week by 'normal' results from my GP. I got a set done by Monitor my health, hope you can read them. My question is, should I go back to my GP and ask for an increase in Levo from 75mcg to 100mcg or is that not going to help my T3 - which is presumably
Hi I got some good advice after being dispirited last week by 'normal' results from my GP. I got a set done by Monitor my health, hope you can read them. My question is, should I go back to my GP and ask for an increase in Levo from 75mcg to 100mcg or is that not going to help my T3 - which is presumably
CinnamonNutmeg
in
Thyroid UK
4 months ago
blood test
Hi everyone, just wondered how long you avoid supplements (D, ferratin, folate etc) pre blood test? Thanks
Hi everyone, just wondered how long you avoid supplements (D, ferratin, folate etc) pre blood test? Thanks
Pooh10
in
Thyroid UK
4 months ago
Views on my blood results?
*I have now received my FT3 results TSH 0.02 mIU/L (0.35 - 5.50) -6.4% Free T4 (fT4) 14.4 pmol/L (7.86 - 14.41) 99.8% Free T3 (fT3) 5.70 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.526 So looks like the correct dose, but I do need to work on my vitamin levels - thanks guys. The endocrinologist has offered
*I have now received my FT3 results TSH 0.02 mIU/L (0.35 - 5.50) -6.4% Free T4 (fT4) 14.4 pmol/L (7.86 - 14.41) 99.8% Free T3 (fT3) 5.70 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.526 So looks like the correct dose, but I do need to work on my vitamin levels - thanks guys. The endocrinologist has offered
Ktlc
in
Thyroid UK
4 months ago
High thyroid hormone link to low estrogen
Hi all, does anyone know if going through an early menopause which is causing estrogen levels to fall create a higher blood concentration of thyroid hormone levels. Please include links, no guessing please. Also after a few months on thyroid lowering drugs, folic acid levels have dropped below range
Hi all, does anyone know if going through an early menopause which is causing estrogen levels to fall create a higher blood concentration of thyroid hormone levels. Please include links, no guessing please. Also after a few months on thyroid lowering drugs, folic acid levels have dropped below range
AngelicUpstart
in
Graves Disease Support
4 months ago
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