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Vitamin B12 / Folic acid
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B supplement
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Shellian
in
Thyroid UK
4 months ago
Osteoporosis
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
Coffeelover57
in
Osteoporosis Support
8 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
9 months ago
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Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
8 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
8 months ago
How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
9 months ago
B12 injections
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
GranolaLover60
in
Pernicious Anaemia Society
4 months ago
Help needed please
I just received my B12 . Please can someone tell me how ot SI? For a start how do I open the glass ampoule without spilling what's in it? Please blow by blow instuctions, I am a SI virgin😀
I just received my B12 . Please can someone tell me how ot SI? For a start how do I open the glass ampoule without spilling what's in it? Please blow by blow instuctions, I am a SI virgin😀
totallyFrustrated
in
Pernicious Anaemia Society
9 months ago
what to ask GP
I’ve been on a low dose of Levo for about 3 years. It took ages to get up to 50mg a day as I’m really sensitive to it. Because of palpitations, tummy upsets etc I now split 50mg into two separate doses ; 25mg in morning and 25mg at night and I’ve been fine doing this since December last year. My test
I’ve been on a low dose of Levo for about 3 years. It took ages to get up to 50mg a day as I’m really sensitive to it. Because of palpitations, tummy upsets etc I now split 50mg into two separate doses ; 25mg in morning and 25mg at night and I’ve been fine doing this since December last year. My test
MyOrangeDog
in
Thyroid UK
4 months ago
(update) B12, Peripheral Neuropathy, oh and Ozempic...
A few months back I seemed to be 'overdosing' on the B12 injections (I was peeing it straight back out at one point!), so I stopped injecting and things were going okay. But now the past few weeks I'm back to low/no energy, bumping into things, knocking things over, Brain Fog, and incontinence struck
A few months back I seemed to be 'overdosing' on the B12 injections (I was peeing it straight back out at one point!), so I stopped injecting and things were going okay. But now the past few weeks I'm back to low/no energy, bumping into things, knocking things over, Brain Fog, and incontinence struck
Hidden
in
Pernicious Anaemia Society
9 months ago
Goitre and antibodies but bloods all fine
Hi, I developed a fairly big lump in my neck in July 23. Did the 2 week wait thing and had an ultrasound and saw an ENT consultant. They diagnosed a thyroid nodule and said it looked normal with no need for FNA. Consultant asked for endo to see me and I am still waiting for this or any acknowledgment
Hi, I developed a fairly big lump in my neck in July 23. Did the 2 week wait thing and had an ultrasound and saw an ENT consultant. They diagnosed a thyroid nodule and said it looked normal with no need for FNA. Consultant asked for endo to see me and I am still waiting for this or any acknowledgment
LibertyCake
in
Thyroid UK
4 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
4 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
6 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
9 months ago
My Mucusy
Someone on this forum used this term and I found it helpful. I know what that experience means to me in that I know when I am mucusy. I have had this experience my whole life. It happens when my body is stressed both eustress and stress. I have noticed it in others. I can often tell that a person is
Someone on this forum used this term and I found it helpful. I know what that experience means to me in that I know when I am mucusy. I have had this experience my whole life. It happens when my body is stressed both eustress and stress. I have noticed it in others. I can often tell that a person is
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
ReviewSynthetic Thioesters of Thiamine: Promising Tools for Slowing Progression of Neurodegenerative Diseases †Lucien Bettendorff
here is an exhaustive research on vitamin B1 by one of the greatest vitamin b1 expert in the world: Lucien Bettendorff https://www.researchgate.net/publication/372305105_Synthetic_Thioesters_of_Thiamine_Promising_Tools_for_Slowing_Progression_of_Neurodegenerative_Diseases/fulltext/64aeb47e95bbbe0c6e2ef831
here is an exhaustive research on vitamin B1 by one of the greatest vitamin b1 expert in the world: Lucien Bettendorff https://www.researchgate.net/publication/372305105_Synthetic_Thioesters_of_Thiamine_Promising_Tools_for_Slowing_Progression_of_Neurodegenerative_Diseases/fulltext/64aeb47e95bbbe0c6e2ef831
Gioc
in
Cure Parkinson's
4 months ago
Lean muscle, raised metabolism and feeling warm all the time (further points added at the end)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3661116/ I am now about 6 months into a longer term project (with a sports nutritionist) to sort out my long term health issues around inflammation, insulin resistance, metabolism, energy levels, sleep and well being. One part of that is that for me I have
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3661116/ I am now about 6 months into a longer term project (with a sports nutritionist) to sort out my long term health issues around inflammation, insulin resistance, metabolism, energy levels, sleep and well being. One part of that is that for me I have
Danielj1
in
Thyroid UK
9 months ago
Id really appreciate your thoughts on my latest blood test results on Erfa 2 grains -still not feeling great- Im thinking bloods now? Help!
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Hi thyroid forum people I’ve just had my latest bloods back TSH. O.005 (0.27-4.2) …. disappearing! T3 6.1 (3.1-6.8) 81% thru range T4 19.1 (12-22) 71% thru range Three months ago they were showing 0.092. 3.8 and 13.7 - same parameters. That was on 1.5 grains. The private doctor had
Starseed56
in
Thyroid UK
4 months ago
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