My Mucusy : Someone on this forum used... - Pernicious Anaemi...

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My Mucusy

WIZARD6787 profile image
12 Replies

Someone on this forum used this term and I found it helpful. I know what that experience means to me in that I know when I am mucusy.

I have had this experience my whole life. It happens when my body is stressed both eustress and stress. I have noticed it in others. I can often tell that a person is going to be "under the weather" before they do. I would often tell an employee to take a day off and pay them.

I have also noticed that some humans tend to make up an explanation for their musucy that cannot be disproved rather than face the exact cause is unknown. Summer cold, I got this from this person, I was out in the rain, allergies. common cold etc.

In my many attempts to get a competent diagnosis my blood would be tested and my white blood cell count would be a little low and I would be given antibiotics for what ever was in fashion at the time. Mononucleosis then strep throat. Than told to act healthier according to what was in fashion at the time. I am 68.

At one physical I was prescribed antibiotics and I told the physician that I would tell him when my white blood cell count was in range and then have a blood test. He scoffed at me and that is exactly what I did.

So mucusy is at least for now my measure of when I have pushed to hard. It is not simple as when I change my supplementation the mucusy becomes more of an issue. It also becomes more of an issue when I get energy from the sun.

Reasonable to assume that my mucusy was and is my bodies reaction to experiencing Cobalamin Cellular Inactivity which was internment yet progressively more acute resulting in a hospitalization and two blood transfusion followed by a prescribed protocol less effective than was designed in 1972. Reasonable to assume some expert thought doing less regardless of effectiveness was an improvement. After all they needed to justify their belief they were special. OK that's a rant. 🙂

So I am in the process of designing a way to evaluate both my supplementation changes and my activity level which includes exercise designed for healing not what is "good".

So far the components of my evaluation design are mucusy, hunger, and quality not quantity of sleep.

I am hoping that a lifetime of experiencing Cobalamin Cellular inactivity and designing ways to mitigate the effects will facilitate healing from it.

Sometimes it feels like I am describing a life of torment. I have known nothing else and it made it harder to be me. I was still me all along. It is also a fact that cynocobalamin was not synthesized by scientists until I was in the 11th grade. Scientists not GPs.

Note: If I am mucusy and I don't or can not catch it early enough if causes mild hypothermia which I may write on later and may be related to "inability to control body temperature."

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WIZARD6787
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12 Replies
Wwwdot profile image
Wwwdot

Hi Wiz

You are quite right it’s the little tell tales that are often most informative.

🤗🤗🤗🤗

Wheat profile image
Wheat

Wizard I can recognise this. It's what happens to me. Unfortunately we do not always have a choice in the matter.

Regenallotment profile image
Regenallotment

have you ever tried the supplement NAC?

I read about it related to my autoimmune thyroid condition.

It smells vile, take it in a little orange juice or similar. I bung a tiny scoop into my breakfast smoothie when I need it. If you take it for 3-4 days it really does loosen mucus, I find myself coughing up all sorts about an hour after taking.

Not something to take long term (read that in the book Supergut) . But works for me as and when I’m feeling mucusy. 🌱

WIZARD6787 profile image
WIZARD6787

Thank you so much!!! Good information! I will order some NAC powder and use it in my morning smoothie and see what happens and post one way or the other.

I looked it up and it looks promising.

In the USA it used to be prescription only and now is not.

I do take 45 mg of NAC which is included in "Simple Spectrum" which is designed to treat the nutritional deficiencies in those who experience autism.

Technoid profile image
Technoid in reply toWIZARD6787

NAC is foul stuff. I use the tablet form and try to avoid sniffing it. You could not pay me to take it in powder form. Yuck. I use it with Glycine for Glutathione support. 1g of each. Glycine is easy, it tastes like sugar. On the other hand if it was cut with sugar would I know the difference? hrm. Probably not.

WIZARD6787 profile image
WIZARD6787 in reply toTechnoid

Vile is what it is. 🙂 I use it with peanut butter in a fruit smoothie.

Mixteca profile image
Mixteca

When you say Cobalamin Cellular inactivity, do you mean B12 deficiency or something else? Please explain Wizard.

WIZARD6787 profile image
WIZARD6787 in reply toMixteca

Hey Mixteca,

I got that term from a paper. I use it as I find it more accurate than B12 Deficiency. A better description of what I experience and how I make decisions to self treat.

Pretty much I have not been B12 deficient since the first injection 3 +- years ago. Symptoms of "B12 Deficiency are used to diagnosis. They are then used to evaluate having been B12 Deficient. The EOD treatment, the most robust available does not treat my B12 Cellular Inactivity to any meaningful degree. The concept that my B12 deficiency was so severe I would not be able to recover and that all I could do is wait was disproved to my satisfaction in the last 6 months.

Mixteca profile image
Mixteca in reply toWIZARD6787

I'm very glad that you have proved this to yourself - you have a functional deficiency if I remember correctly?

WIZARD6787 profile image
WIZARD6787 in reply toMixteca

I experienced functional deficiency my whole life which progressed to PA.

Mixteca profile image
Mixteca in reply toWIZARD6787

And how did you determine that from other types of B12 deficiency? I'm learning a lot from you and I thank you.

WIZARD6787 profile image
WIZARD6787 in reply toMixteca

I would caution learning from me. I am just sharing.

I have not put much effort into understanding PA vs any other type of B12 Deficiency. I did have one posive test. I have not looked at the problems with that test. It is often stated it has a 40 % false negative result. Why is considered credable when it is postive? Having PA does seem it makes it easier to deal with GP's other than that it does not seem to make any difference.

I found this video helpful although I have no idea who made it.

youtube.com/watch?v=q5cyMLt...

I use this flow chart as my go to and do not find any reason a GP can not follow it other than nobody forces them to. It is not difficult to follow. I followed it for 2.5 years and it lead to me feeling less worse. I did not start to feel better until I injected more and more often. Still working on it.

theb12society.com/treatment

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