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Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
1 year ago
Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
1 year ago
Need a reason
I lost my daughter in 2020, and I am having a hard time excepting that fact. Most days.I struggle to live. I really don't want to be here any more. I am 62 retired. I have PTSD, severe anxiety disorder, seasonal affective disorder, and depression. I take 15 pills a day just to function and recently lost
I lost my daughter in 2020, and I am having a hard time excepting that fact. Most days.I struggle to live. I really don't want to be here any more. I am 62 retired. I have PTSD, severe anxiety disorder, seasonal affective disorder, and depression. I take 15 pills a day just to function and recently lost
Havock
in
Anxiety and Depression Support
3 months ago
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curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
1 year ago
Bad marriage and no family....
I am in a bad marriage and my family is not around and/or do not care. Due to my health I can't move out. His personality and the way he deals is really affecting my will to live. I don't want to be here and I feel it will be a matter of time. I am sick of battling MDD and PTSD. I also deal with an
I am in a bad marriage and my family is not around and/or do not care. Due to my health I can't move out. His personality and the way he deals is really affecting my will to live. I don't want to be here and I feel it will be a matter of time. I am sick of battling MDD and PTSD. I also deal with an
Hidden
in
Anxiety and Depression Support
3 months ago
Rant time
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
1 year ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
1 year ago
Hydroxychloroquine
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Bronchiectasis .. currently using Aerobika .. but just wondering has anyone / does anyone use the Evergreen Pari-o-pep mucus clearing device
Hi Has anyone tried the above device?..I get on ok with my aerobika but wondering if it’s worth spending £35 on the Evergreen Pari -o Pep? If it speeds things up I’d be interested in buying one 🙏
Hi Has anyone tried the above device?..I get on ok with my aerobika but wondering if it’s worth spending £35 on the Evergreen Pari -o Pep? If it speeds things up I’d be interested in buying one 🙏
Phill1
in
Lung Conditions Community Forum
6 months ago
it is possible
to recover from PTSD/ complex PTSD. While I say it’s possible for me there will always be triggers. Recovery for me is knowing when I’m triggered and immediately kicking in with my coping strategies. It takes a lot of work and willingness to live as a survivor and not a victim. This has been my lived
to recover from PTSD/ complex PTSD. While I say it’s possible for me there will always be triggers. Recovery for me is knowing when I’m triggered and immediately kicking in with my coping strategies. It takes a lot of work and willingness to live as a survivor and not a victim. This has been my lived
Lindyloo53
Volunteer
in
Heal My PTSD
3 months ago
Hopelessness
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
I've been diagnosed officially with PTSD this week which is not a shock. I begin EMDR sessions next week so hope those are able to help. I have these bouts of feeling hopeless. I'm trying not to go too hard on myself but just feel that things will never get easier. Cry myself to sleep most nights with
Hidden
in
ICUsteps
5 months ago
Serious Dry Eyes
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
MaryAZ
in
My MSAA Community
1 year ago
EMDR therapy what is it and dose it help
I'm curious about EMDR therapy and if it's a direction I should go in?
I'm curious about EMDR therapy and if it's a direction I should go in?
LostNormality
in
Anxiety and Depression Support
6 months ago
advise required
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
Lucydog
in
Glaucoma UK
1 year ago
Ganfort Preservative Free Eye Drop Side Effects
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
RonOng5267
in
Glaucoma UK
1 year ago
Anxiety
I suffer from bad anxiety, and PTSD from childhood to now, and am 61 years old. I'd like to join this group to see what others do, or get new ideas on helping with these issues. I do mindfulness and breathing techniques, adult coloring. Can't do a lot of exercises because of DDD, and other back problems
I suffer from bad anxiety, and PTSD from childhood to now, and am 61 years old. I'd like to join this group to see what others do, or get new ideas on helping with these issues. I do mindfulness and breathing techniques, adult coloring. Can't do a lot of exercises because of DDD, and other back problems
Tacoblue
in
Anxiety and Depression Support
3 months ago
Myrtle 22
Hi, my consultant wants me to have a Trabeculectomy because my field test is not good, but, my pressures are only 10 and 11 in each eye. Has anyone else had a suggestion like this? I am worried my pressure will go too low and create more problems. Thanks
Hi, my consultant wants me to have a Trabeculectomy because my field test is not good, but, my pressures are only 10 and 11 in each eye. Has anyone else had a suggestion like this? I am worried my pressure will go too low and create more problems. Thanks
Myrtle22
in
Glaucoma UK
1 year ago
Sertraline for PTSD symptoms
hi, I’m new to this forum - usually post on NRAS forum, as I have Rheumatoid arthritis. but I also have long history of trauma, PTSD/CPTSD.. last year has got particularly worse (albeit my RA meds have also severely impacted me mentally) I’m going through incredible amounts of stress atm and my
hi, I’m new to this forum - usually post on NRAS forum, as I have Rheumatoid arthritis. but I also have long history of trauma, PTSD/CPTSD.. last year has got particularly worse (albeit my RA meds have also severely impacted me mentally) I’m going through incredible amounts of stress atm and my
Sapphire1701
in
Heal My PTSD
4 months ago
Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
CLLerinOz
Administrator
in
CLL Support
6 months ago
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