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Burning tongue and metallic taste .
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
3 months ago
Fallout from PET/CT Scan
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
dac500
in
Advanced Prostate Cancer
8 months ago
Elevated CA125 from 11 8 months ago to 93.
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
marmay88o
in
My Ovacome
8 months ago
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Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
6 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
5 months ago
Lap V Lap Hysterectomy
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
Guineafowlrach
in
Endometriosis UK
8 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
8 months ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
8 months ago
In hospital again over oxygen levels & new happening Dizzy spells & panic attacks
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Sara_2611
in
Lung Conditions Community Forum
3 months ago
thanks
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
Junny123
in
Pain Concern
8 months ago
4 years down the road
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
Churchill2020
in
Blue Faery Liver Cancer
8 months ago
Fennel Seeds
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Crescendo251
in
IBS Network
5 months ago
Incomplete Evacuation and Diarrhoea
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
UnroolyGut
in
IBS Network
6 months ago
I have my GP appt to discuss getting a diagnosis..... But do I ask for ANA tedt or referral to specialist???
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Gingernat20
in
LUPUS UK
5 months ago
Had a 5 day transfer 14/2 boobs no longer hurt does this mean it’s failed?
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
Lemons1986
in
Fertility Network UK
6 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
6 months ago
SIBO and antibiotics
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
Skyline4
in
IBS Network
6 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
8 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
8 months ago
Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
8 months ago
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