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Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
8 months ago
Why would Active B12 blood test not be recognised by GP when I have lots of symptoms?
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
GSDLover17
in
Pernicious Anaemia Society
6 months ago
Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
3 months ago
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Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
6 months ago
fiddle mum- adrenals???
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
Fiddlemum
in
PMRGCAuk
6 months ago
B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi š Iāve been going through a lot of the posts on here looking for answers to my query before I post this, but havenāt seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi š Iāve been going through a lot of the posts on here looking for answers to my query before I post this, but havenāt seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
6 months ago
Polyps and Abdominal Pain
Background Dec 2023, I started to experience pain when pooāing, and some significant constipation, that was only relieved with laxatives , once every five days; January 2024 I saw blood on the toilet tissue and started to suffer from abdominal pains. I contacted my GP and after she realised I had
Background Dec 2023, I started to experience pain when pooāing, and some significant constipation, that was only relieved with laxatives , once every five days; January 2024 I saw blood on the toilet tissue and started to suffer from abdominal pains. I contacted my GP and after she realised I had
Justdoit2015
in
Colon Cancer Connected
6 months ago
irritable bowel diarreah
struggling with ibs d for over 10 years, have tried everything, food allergies and stress sets it off quite badly. Please anyone got any other good advice. Feel like I donāt have a life
struggling with ibs d for over 10 years, have tried everything, food allergies and stress sets it off quite badly. Please anyone got any other good advice. Feel like I donāt have a life
Eileen_wai
in
Cholesterol Support
6 months ago
Break ups?? Walk in the park
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
detour13
in
Anxiety and Depression Support
3 months ago
Feeling Anxious
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancƩ died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancƩ died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
Meditator110
in
SHARE Breast Cancer Support
8 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know thatās misspelled . It didnāt work so she started xeloda. But only one cycle so not long enough to tell if itās working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know thatās misspelled . It didnāt work so she started xeloda. But only one cycle so not long enough to tell if itās working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
8 months ago
Oral B12
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
FatThumbs
in
Pernicious Anaemia Society
6 months ago
nausea and tmi (diarrhea) 4dp5dt FET
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation š
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation š
amalhope
in
Fertility Network UK
6 months ago
Wednesday's Word
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
8 months ago
laxido liquid
hello, for the past 6 months Iāve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, Iāve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
hello, for the past 6 months Iāve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, Iāve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
Chazz30xx
in
IBS Network
6 months ago
I am urging more members to respond. š
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
Jillymo
in
Pernicious Anaemia Society
6 months ago
Vitamin Results
Hi, Iāve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Hi, Iāve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Smartypants1
in
Thyroid UK
6 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
8 months ago
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