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Experiences with
Vision loss
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New and have no clue!
I’ve also been struggling with
vision
loss
and have just been prescribed prism lenses due to double
vision
. Your thoughts please? Should I insist on a referral to an endo? I just want to feel normal! Thanks, any advice much appreciated.
I’ve also been struggling with
vision
loss
and have just been prescribed prism lenses due to double
vision
. Your thoughts please? Should I insist on a referral to an endo? I just want to feel normal! Thanks, any advice much appreciated.
Jules99929
in
Thyroid UK
5 years ago
Weight gain due to being over medicated?
Is it possible to gain weight when over medicated? I have been hypo since my TT, and I haven’t gained any weight even when my TSH was 27, but as soon as I became “normal” and my TSH came down to 0.17 I started gaining weight and after being suppressed for 4 months I gained 10kg, even though I haven’t
Is it possible to gain weight when over medicated? I have been hypo since my TT, and I haven’t gained any weight even when my TSH was 27, but as soon as I became “normal” and my TSH came down to 0.17 I started gaining weight and after being suppressed for 4 months I gained 10kg, even though I haven’t
Maramonro
in
Thyroid UK
5 years ago
Rate of Progression.
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
jimcaster
in
Cure Parkinson's
5 years ago
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Advice needed
So I woke up with a red bruise like Mark under my left eye this morning, no pain or
loss
of
vision
. I went to my GP and he did my blood pressure, temp and pulse and all seems normal. I have had 2 flare ups of Urticarial vasculitis but haven't had one for nearly a year.
So I woke up with a red bruise like Mark under my left eye this morning, no pain or
loss
of
vision
. I went to my GP and he did my blood pressure, temp and pulse and all seems normal. I have had 2 flare ups of Urticarial vasculitis but haven't had one for nearly a year.
amywools26
in
Vasculitis UK
5 years ago
GCA & COVID-19 Can Mimic Each Other
Transient monocular visual
loss
or double
vision
are worrying features, suggesting involvement of the blood supply to the eye. Treatment is with high-dose steroids.
Transient monocular visual
loss
or double
vision
are worrying features, suggesting involvement of the blood supply to the eye. Treatment is with high-dose steroids.
Hidden
in
PMRGCAuk
4 years ago
Advice Please? Possible ET?
Sorry for the super long post, I'm just at a
loss
about what to do at this point, I haven't wanted to bother the doctor during the pandemic if they seem to believe there is nothing wrong with me however I do feel something isn't right!
Sorry for the super long post, I'm just at a
loss
about what to do at this point, I haven't wanted to bother the doctor during the pandemic if they seem to believe there is nothing wrong with me however I do feel something isn't right!
BigWorrier23
in
MPN Voice
4 years ago
Finally Kicked The Habit: 1 Month Quit
Hi everyone :) Happy New Year ! I finally kicked smoking. I'm one month and some days off smoking. From day one this quit was different than the hundred previous quit attempts. I was so sick and tired of being sick and tired. But it was more than that. A switch went off in my mind which made me grow
Hi everyone :) Happy New Year ! I finally kicked smoking. I'm one month and some days off smoking. From day one this quit was different than the hundred previous quit attempts. I was so sick and tired of being sick and tired. But it was more than that. A switch went off in my mind which made me grow
FranxLove
100 Days Smoke Free
in
No Smoking Day
5 years ago
Needing Hope for the Future
It seems like every time I'm severely stressed, I have an episode affecting my
vision
, fatigue, mood, or
loss
of feeling from the waist down. Despite all of that, my MRI's are showing little to no disease progression which is wonderful but my mood shifts still happen.
It seems like every time I'm severely stressed, I have an episode affecting my
vision
, fatigue, mood, or
loss
of feeling from the waist down. Despite all of that, my MRI's are showing little to no disease progression which is wonderful but my mood shifts still happen.
jazdr
in
My MSAA Community
4 years ago
New Start
Another weight loss diet has started, every year I say this will be the year I am finally going to be normal (what ever normal is). Last year I had many starts and many stops. Having a busy life with constant work pressures I seek comfort in food, it's a way of destroying myself. I hope this year will
Another weight loss diet has started, every year I say this will be the year I am finally going to be normal (what ever normal is). Last year I had many starts and many stops. Having a busy life with constant work pressures I seek comfort in food, it's a way of destroying myself. I hope this year will
Jusman
Restart Jan 2020
in
Weight Loss Support
5 years ago
Stem Cell Human Trials for Macular Degeneration
"Researchers at the National Eye Institute (NEI) are launching a clinical trial to test the safety of a novel patient-specific stem cell-based therapy to treat geographic atrophy, the advanced “dry” form of age-related macular degeneration (AMD), a leading cause of
vision
loss
among people age 65 and
"Researchers at the National Eye Institute (NEI) are launching a clinical trial to test the safety of a novel patient-specific stem cell-based therapy to treat geographic atrophy, the advanced “dry” form of age-related macular degeneration (AMD), a leading cause of
vision
loss
among people age 65 and
jimcaster
in
Cure Parkinson's
5 years ago
Surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Libertylane
in
PMRGCAuk
5 years ago
Block and Replace weight gain
I just wondered if anyone else is struggling with losing weight whilst on block and replace. I didn't lose weight prior to being diagnosed in April but have gained around half a stone and just can't seem to shift it. Has anyone any advice to lose what I've gained>
I just wondered if anyone else is struggling with losing weight whilst on block and replace. I didn't lose weight prior to being diagnosed in April but have gained around half a stone and just can't seem to shift it. Has anyone any advice to lose what I've gained>
kaz250463
in
Thyroid UK
5 years ago
Hashimoto - eye issues
Hi to everyone. I noticed while peeling onions my eyes were exremelly painful and they also looked different. Off to opticians and they said my eyedrops are not producing the protective "oil". She told me what to buy but the problem is not going away. They stiff and sticky and just horrible. Is this
Hi to everyone. I noticed while peeling onions my eyes were exremelly painful and they also looked different. Off to opticians and they said my eyedrops are not producing the protective "oil". She told me what to buy but the problem is not going away. They stiff and sticky and just horrible. Is this
endofdays
in
Thyroid UK
5 years ago
Inulin - may help sleep and constipation
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
Ruby1
in
Thyroid UK
5 years ago
Late diagnosis
I now have vertigo, wobbly
vision
, hearing
loss
, horrible fatigue and exhaustion. We have to realise that there is a huge learning gap and ignorance out there. Late intervention with Prednisone has taken a huge toll on my life. I am making every endeavour to try and get my life back at 80yrs.
I now have vertigo, wobbly
vision
, hearing
loss
, horrible fatigue and exhaustion. We have to realise that there is a huge learning gap and ignorance out there. Late intervention with Prednisone has taken a huge toll on my life. I am making every endeavour to try and get my life back at 80yrs.
Goodwin
in
PMRGCAuk
5 years ago
Bar-Ilan, Stanford, Researchers Find Treatment for Macular Degeneration Blindness
It is the most common cause of severe
vision
loss
in the Western world among those aged 50 and over, and its prevalence increases with age. Though there is no cure for AMD, significant recent advancements in artificial retina implants may lead to effective treatment.
It is the most common cause of severe
vision
loss
in the Western world among those aged 50 and over, and its prevalence increases with age. Though there is no cure for AMD, significant recent advancements in artificial retina implants may lead to effective treatment.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Textbook case of HIV but still negative at 12 weeks
That came with diarrhea, severe night sweats, weight
loss
, thrush and changes to my
vision
. It’s been almost 3 months since then and I now have more thrush, diarrhea and boils/red spots on my chest and back now. Also a massive cold sore outbreak. I’ve been doing 4th gen tests with no luck.
That came with diarrhea, severe night sweats, weight
loss
, thrush and changes to my
vision
. It’s been almost 3 months since then and I now have more thrush, diarrhea and boils/red spots on my chest and back now. Also a massive cold sore outbreak. I’ve been doing 4th gen tests with no luck.
Roastbee
in
BASHH
5 years ago
Coming off the KETO diet
Hi All, So I've been Keto for 2 years a 3 months. 2 years of that I have stalled really. The first 3 months I did loose. Ive had enough. I'm bored of it and its making me miserable. I keep cheating - then mentally beating myself up - then going back on it and I feel rubbish. I'm stuck in some horrid
Hi All, So I've been Keto for 2 years a 3 months. 2 years of that I have stalled really. The first 3 months I did loose. Ive had enough. I'm bored of it and its making me miserable. I keep cheating - then mentally beating myself up - then going back on it and I feel rubbish. I'm stuck in some horrid
Zuzka1
in
Thyroid UK
5 years ago
Artane anyone?
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
LearningAllICan
in
Cure Parkinson's
5 years ago
Struggling to Get Diagnosed - GCA
Yet if this is GCA I'm happy that they were proactive and took it seriously enough to prevent
vision
loss
. I guess the important thing is that I am taking steroids and still pushing for answers. It's been a long, lonely, frustrating road but I've found comfort in reading many of your stories here.
Yet if this is GCA I'm happy that they were proactive and took it seriously enough to prevent
vision
loss
. I guess the important thing is that I am taking steroids and still pushing for answers. It's been a long, lonely, frustrating road but I've found comfort in reading many of your stories here.
Alihughes25
in
PMRGCAuk
5 years ago
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