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Experiences with
Vision loss
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Can GCA flare be triggered by a fall?
I have recently been diagnosed with increased ocular pressure and glaucoma which the eye dr thinks may well have been caused by the high dose Pred ( I was on 40 then 60 ) I am hoping that the reduction in Pred plus the eye drops will reduce pressure and halt any more
vision
loss
.
I have recently been diagnosed with increased ocular pressure and glaucoma which the eye dr thinks may well have been caused by the high dose Pred ( I was on 40 then 60 ) I am hoping that the reduction in Pred plus the eye drops will reduce pressure and halt any more
vision
loss
.
Phoenix51
in
PMRGCAuk
4 years ago
Changes to precribing controlled drugs - proposed
This news might help some members - assuming it goes ahead: [i]Pharmacists will be permitted to hand out a raft of controlled drugs without prescription, including potentially addictive painkillers, under a proposed move to alleviate pressure on the NHS during the coronavirus outbreak. The home secretary
This news might help some members - assuming it goes ahead: [i]Pharmacists will be permitted to hand out a raft of controlled drugs without prescription, including potentially addictive painkillers, under a proposed move to alleviate pressure on the NHS during the coronavirus outbreak. The home secretary
helvella
Thyroid UK
in
Thyroid UK
4 years ago
Public Health Wales has urged the country’s 440,000 smokers to quit
Obviously, the advice/suggestion is not restricted to Wales - this was just what I saw: [i]Public Health Wales has urged the country’s 440,000 smokers to quit now to reduce the risks from Covid-19 and said it has seen a rise in the number of people asking for help to stop.[/i]
[i]It says smokers
Obviously, the advice/suggestion is not restricted to Wales - this was just what I saw: [i]Public Health Wales has urged the country’s 440,000 smokers to quit now to reduce the risks from Covid-19 and said it has seen a rise in the number of people asking for help to stop.[/i]
[i]It says smokers
helvella
Thyroid UK
in
Thyroid UK
4 years ago
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Mild cerebellar atrophy
Hi My husband had a scan for suspected tia/strike after temporary
loss
of
vision
back in November 2019. The results of the MRI came back with mild cerebellar atrophy and 2 microbleeds. The stroke consultant said not to worry and try to blame alcohol as a cause although my husband doesn’t drink.
Hi My husband had a scan for suspected tia/strike after temporary
loss
of
vision
back in November 2019. The results of the MRI came back with mild cerebellar atrophy and 2 microbleeds. The stroke consultant said not to worry and try to blame alcohol as a cause although my husband doesn’t drink.
Burtie-bengal
in
Ataxia UK
4 years ago
Plasmalogens and Clinical Symptoms in Parkinson’s Disease by Oral Administration of Ether Phospholipids: A Preliminary Report
1 mg/day of oral administration of purified ether phospholipids derived from scallop can increase ether phospholipids in peripheral blood and concomitantly improve some clinical symptoms of PD https://www.hindawi.com/journals/pd/2020/2671070/
1 mg/day of oral administration of purified ether phospholipids derived from scallop can increase ether phospholipids in peripheral blood and concomitantly improve some clinical symptoms of PD https://www.hindawi.com/journals/pd/2020/2671070/
Farooqji
in
Cure Parkinson's
4 years ago
Feeling good about yourself
It would be so easy just to watch TV, eat, sleep and not even bother to shower or change clothes - yes I do it quite regularly when depressed or having a flare. I would like to wear some of my clothes I'm always saving for best and hardly ever or never get to wear. I'm 9 stone over weight and was due
It would be so easy just to watch TV, eat, sleep and not even bother to shower or change clothes - yes I do it quite regularly when depressed or having a flare. I would like to wear some of my clothes I'm always saving for best and hardly ever or never get to wear. I'm 9 stone over weight and was due
Hidden
in
Positive Wellbeing During Self-Isolation
4 years ago
Has weight loss improved your thyroid problems?
I've been reading a lot about the connection between hypothyroidism in weight gain and obesity. It's long been believed that hypothyroidism causes/contributes to obesity because of the metabolic effects of same, but there seems to be more research being done that questions that theory and now some researchers
I've been reading a lot about the connection between hypothyroidism in weight gain and obesity. It's long been believed that hypothyroidism causes/contributes to obesity because of the metabolic effects of same, but there seems to be more research being done that questions that theory and now some researchers
Chancery
in
Thyroid UK
4 years ago
WET AMD on a third world country
I'm pretty sure they don't know what a macular degeneration is or they think I don't have it and this is just a gradual
vision
loss
. I've tried to consult with 3 eye doctors already. Now I'm losing hope that I'll get this treated.
I'm pretty sure they don't know what a macular degeneration is or they think I don't have it and this is just a gradual
vision
loss
. I've tried to consult with 3 eye doctors already. Now I'm losing hope that I'll get this treated.
raylabo3
in
Macular Society
4 years ago
Diagnosis Advice
I can still see with it, and no
loss
of
vision
as such. Just find myself blinking and double taking and struggle to focus. * I also have other chronic pain issues in lower back/hips, but not sure if they relate.
I can still see with it, and no
loss
of
vision
as such. Just find myself blinking and double taking and struggle to focus. * I also have other chronic pain issues in lower back/hips, but not sure if they relate.
vosadrian
in
PMRGCAuk
4 years ago
Newly Diagnosed
I was suffering with right sided facial paralysis with pressure on the right eye to where either I had total
vision
loss
or just
vision
disturbance like I was trying to see with crossed eyes since middle of last year.
I was suffering with right sided facial paralysis with pressure on the right eye to where either I had total
vision
loss
or just
vision
disturbance like I was trying to see with crossed eyes since middle of last year.
Hidden
in
My MSAA Community
4 years ago
Should I have the vertical sleeve bariatric surgery?
Considering Gastric sleeve surgery and I have Hashimoto's disease. Frankly I’m scared. I have read so many of your posts and it sounds like you all would have never done the surgery. I am 56 and weigh 293. Diagnosed with hypoThyroidism when I was 12. I hurt all the time and no diet seems to work. I’m
Considering Gastric sleeve surgery and I have Hashimoto's disease. Frankly I’m scared. I have read so many of your posts and it sounds like you all would have never done the surgery. I am 56 and weigh 293. Diagnosed with hypoThyroidism when I was 12. I hurt all the time and no diet seems to work. I’m
Tammessa
in
Thyroid UK
4 years ago
Stem Cell Research Webinar
The project started when researchers wanted to see if they could improve
vision
for people with sudden severe visual
loss
caused by wet AMD by replacing the diseased cells at the back of the patients’ affected eye using a stem cell-based treatment.
The project started when researchers wanted to see if they could improve
vision
for people with sudden severe visual
loss
caused by wet AMD by replacing the diseased cells at the back of the patients’ affected eye using a stem cell-based treatment.
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Journey home
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Janzo54
in
Lung Conditions Community Forum
4 years ago
Hi, I m new here. I m looking for natural ways to deal with my PD
Have been diagnosed in 2014 with PD, at the age of 48. Left side impacted, tremors, walking, stiff, pain in my left footh. Taking ropinirol and sinnemet, however starting with impulse movements, probably due to medication. Very bad sleeper since a long time. I tried supplements gaba, vit C, curcuma,
Have been diagnosed in 2014 with PD, at the age of 48. Left side impacted, tremors, walking, stiff, pain in my left footh. Taking ropinirol and sinnemet, however starting with impulse movements, probably due to medication. Very bad sleeper since a long time. I tried supplements gaba, vit C, curcuma,
NFMEM
in
Cure Parkinson's
5 years ago
Changing to Xeloda
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Duffles
in
SHARE Metastatic Breast Cancer
4 years ago
Living with Osteo
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Me20244
in
Bone Health and Osteoporosis UK
5 years ago
Possible chiari malformation-help please
loss
), this throbbing noise in my head which is constantly there, I toss and turn at night just can’t get comfortable, everywhere aches and I’m exhausted , GP diagnosed depression but i went and had my eyes tested and they referred me to eye consultant who ordered a scan due to peripheral
vision
loss
loss
), this throbbing noise in my head which is constantly there, I toss and turn at night just can’t get comfortable, everywhere aches and I’m exhausted , GP diagnosed depression but i went and had my eyes tested and they referred me to eye consultant who ordered a scan due to peripheral
vision
loss
Dexter67
in
Neuro Support
5 years ago
Early Retirement from Work.
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Ijo1
in
Fibromyalgia Action UK
5 years ago
Is NAFLD really reversible and do I have a change
Hi 👋 I am a mother of 7 amazing children and I recently was diagnosed with NAFLD inflammation and Nash stage 2 and she said 90% damage, so yes I’m super scared to die, I’ve cried non stop since 2/4/2020 when she read my biopsy to me I wish I would have found out sooner. Almost immediately I changed
Hi 👋 I am a mother of 7 amazing children and I recently was diagnosed with NAFLD inflammation and Nash stage 2 and she said 90% damage, so yes I’m super scared to die, I’ve cried non stop since 2/4/2020 when she read my biopsy to me I wish I would have found out sooner. Almost immediately I changed
Fish12140211
in
Living with Fatty Liver and NASH
5 years ago
FND fresh diagnosis. Struggling:(
Major
vision
loss
and disturbances. Become increasingly emotional. Over time flushes become more often until settling in to full time chronic burning pain over 90% of body. 60+lb weight loss. Dec 2019 diagnosed with central pain syndrome. Disagree with diagnosis keep pursuing neurological answers.
Major
vision
loss
and disturbances. Become increasingly emotional. Over time flushes become more often until settling in to full time chronic burning pain over 90% of body. 60+lb weight loss. Dec 2019 diagnosed with central pain syndrome. Disagree with diagnosis keep pursuing neurological answers.
Lotus72
in
Functional Neurological Disorder - FND Hope
5 years ago
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