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Endometriosis since I was 21
Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one has grown and 2 are still small, now I have two on my right ovaries, I’m going for my prostap injection but I’m scared it’ll mess my insides up more as I’ve been on codeine nearly everyday, been to a&e so many times that I’
Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one has grown and 2 are still small, now I have two on my right ovaries, I’m going for my prostap injection but I’m scared it’ll mess my insides up more as I’ve been on codeine nearly everyday, been to a&e so many times that I’
Ru1989
in
Endometriosis UK
1 year ago
5years in of a forecast 5 to 10 years expected survival - age 78 now.
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
Dondodoc
in
Advanced Prostate Cancer
1 year ago
Flax seed oil
Does anyone else take flax seed oil regularly? I can’t take fish oil so take Flax seed oil capsules for Omega3. I have since heard that it’s not good to take them whilst taking steroids but cant find much about it on Mr Google so am presuming it’s no big deal. I dont take them till lunchtime with
Does anyone else take flax seed oil regularly? I can’t take fish oil so take Flax seed oil capsules for Omega3. I have since heard that it’s not good to take them whilst taking steroids but cant find much about it on Mr Google so am presuming it’s no big deal. I dont take them till lunchtime with
jaycee444
in
PMRGCAuk
1 year ago
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Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Advanced Prostate Cancer
1 year ago
Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Fight Prostate Cancer
1 year ago
Endo interfering with nerves?
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
Sloany
in
Endometriosis UK
1 year ago
New study just out (3/31/23) on natural therapies for tau aggregation (PSP included)
My father was recently diagnosed with PSP and I have been researching like crazy. I searched all 125 clinical trials on the Government website and all the pubmed articles and studies. This one just came out 3/31/23! It looked at all the studies that have been done on natural supplements, foods, therapies
My father was recently diagnosed with PSP and I have been researching like crazy. I searched all 125 clinical trials on the Government website and all the pubmed articles and studies. This one just came out 3/31/23! It looked at all the studies that have been done on natural supplements, foods, therapies
ShellTaylor
in
PSP Association
1 year ago
does anyone use peppermint oil?
has it worked for you? my learning disabled non verbal son I suspect has IBS. He is under the care of a gastro consultant who is treating him for constipation and we thought he was poo holding. Recently I’ve thought this is not the case and he is actually experiencing cramp in his colon when it looks
has it worked for you? my learning disabled non verbal son I suspect has IBS. He is under the care of a gastro consultant who is treating him for constipation and we thought he was poo holding. Recently I’ve thought this is not the case and he is actually experiencing cramp in his colon when it looks
MummyLuv
in
IBS Network
1 year ago
Insomnia and sleep clinics
Has anyone been to a sleep clinic for Insomnia? What happens? What kind of tests do they do? What kind of treatment can be offered? Does it work? I'm 45 and have struggled to sleep for most of my life, certainly from adolescence onwards but every now and then it gets worse. I typically run on 4
Has anyone been to a sleep clinic for Insomnia? What happens? What kind of tests do they do? What kind of treatment can be offered? Does it work? I'm 45 and have struggled to sleep for most of my life, certainly from adolescence onwards but every now and then it gets worse. I typically run on 4
Mistee
in
Pain Concern
1 year ago
Vitamin supplements: good or bad?
For 45 years I have taken mega doses of vitamins and other health supplements every day without fail. These include 2000mg vitamin C and 400iu of vitamin E and fish oil capsules. These are supposed to enhance the auto immune system. As rheumatoid arthritis (RA) is caused by an over active immune system
For 45 years I have taken mega doses of vitamins and other health supplements every day without fail. These include 2000mg vitamin C and 400iu of vitamin E and fish oil capsules. These are supposed to enhance the auto immune system. As rheumatoid arthritis (RA) is caused by an over active immune system
Jeff1943
in
NRAS
1 year ago
Vitamin D, Fish Oil and NOACS?
Hi folks. On GP advice, and following the example of many lovely people on this forum, I take Vitamin D as one of my daily supplements. (The others are Vitamin C and Magnesium). I'm also taking Apixaban and other meds for BP and AF. I've noticed on the Vitamin D container label it says that the Vitamin
Hi folks. On GP advice, and following the example of many lovely people on this forum, I take Vitamin D as one of my daily supplements. (The others are Vitamin C and Magnesium). I'm also taking Apixaban and other meds for BP and AF. I've noticed on the Vitamin D container label it says that the Vitamin
Coco51
in
Atrial Fibrillation Support
1 year ago
Prostap injections side effects
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
thearoma4
in
Endometriosis UK
1 year ago
coil advise
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
ashleytt
in
Endometriosis UK
1 year ago
Bone marrow transplant possibility and leriglitazone update
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
JShough
in
AMN EASIER
1 year ago
Should I go on Prostap/Zoladex?!
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Louisehart1995
in
Endometriosis UK
1 year ago
dry hair
don’t know if this helps anyone lots of ladies asked about hair going very dry and brittle especially on hydroxycarbamide I have found a simple solution my hair is very glossy and very good condition,put a teaspoon of olive oil in a dish ,a teaspoon of argon oil and a teaspoon of aloe Vera gel the sort
don’t know if this helps anyone lots of ladies asked about hair going very dry and brittle especially on hydroxycarbamide I have found a simple solution my hair is very glossy and very good condition,put a teaspoon of olive oil in a dish ,a teaspoon of argon oil and a teaspoon of aloe Vera gel the sort
ChillyAsh34
in
MPN Voice
2 years ago
How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Amber83
in
Endometriosis UK
2 years ago
Lichen Planus
I am in my 80’s, and in 2008 and 2016 suffered Oral and Vulval Lichen Planus attacks, which lasted for 6 x 8 months and in the first episode was found to be deficient in B12. Have had 3 monthly injections since. Back in September was given prescription antibiotic, low dose, for 3 month course due
I am in my 80’s, and in 2008 and 2016 suffered Oral and Vulval Lichen Planus attacks, which lasted for 6 x 8 months and in the first episode was found to be deficient in B12. Have had 3 monthly injections since. Back in September was given prescription antibiotic, low dose, for 3 month course due
Beattie-75
in
MY SKIN
2 years ago
Supplements
Has anyone used supplements to compliment medical treatment for PMR? I am considering Evening Primrose Oil alongside steroids.
Has anyone used supplements to compliment medical treatment for PMR? I am considering Evening Primrose Oil alongside steroids.
PhilFreeToAsk
in
PMRGCAuk
1 year ago
Keyhole surgery
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
FMohammed
in
Endometriosis UK
2 years ago
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