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Is there any information yet on the COVID-19 vaccines for post Bone Marrow Transplant patients?
I had my transplant in 2014 and have seen a few articles about the way the vaccines interact with the immune system.
I had my transplant in 2014 and have seen a few articles about the way the vaccines interact with the immune system.
colinparker1967
in
MPN Voice
4 years ago
Gene SRSF2
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
ktaylor5563
in
MPN Voice
4 years ago
Anyone suffer dry/burning mouth particularly interested if you take Xeljanz.
This started about March with dry mouth before extending to burning mouth over the past 6 weeks. It effects all my mouth including tongue, gums and throat. I'm also getting ulcers on both sides of my tongue. When it's bad it makes my whole head hurt and my tongue and throat feel swollen. Eating offers
This started about March with dry mouth before extending to burning mouth over the past 6 weeks. It effects all my mouth including tongue, gums and throat. I'm also getting ulcers on both sides of my tongue. When it's bad it makes my whole head hurt and my tongue and throat feel swollen. Eating offers
Hidden
in
NRAS
4 years ago
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Mouth ulcers
I have a question to other RA people. I know methotrexate can cause mouth ulcers and have had the odd one but this time its gone bananas with inflamed mouth as well as the ulcers. Can anyone please give me a cure/relief? Many thanks
I have a question to other RA people. I know methotrexate can cause mouth ulcers and have had the odd one but this time its gone bananas with inflamed mouth as well as the ulcers. Can anyone please give me a cure/relief? Many thanks
Pamak
in
NRAS
4 years ago
Ulcers question please?
Hello, I was wondering if anyone suffers badly with ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they
Hello, I was wondering if anyone suffers badly with ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they
missrosiex
in
Behçet's UK
4 years ago
Burning Mouth??
Has anyone experienced a burning mouth? I have B12 injections every 10 weeks and since the middle of May have had a burning mouth - on my tongue and roof of mouth - tried everything i.e. Corsydol, Listerine, changing toothpaste, two courses of candida medication, had blood tests (for anaemia, CRP and
Has anyone experienced a burning mouth? I have B12 injections every 10 weeks and since the middle of May have had a burning mouth - on my tongue and roof of mouth - tried everything i.e. Corsydol, Listerine, changing toothpaste, two courses of candida medication, had blood tests (for anaemia, CRP and
Colb53
in
Pernicious Anaemia Society
4 years ago
PA and Mouth Ulcers?
Hello, I was diagnosed with PA around 8 months ago and ive been self injecting every week and I have seen major improvement. However, I still am getting tonsil flare ups and lots of really bad mouth ulcers. Any advice?
Hello, I was diagnosed with PA around 8 months ago and ive been self injecting every week and I have seen major improvement. However, I still am getting tonsil flare ups and lots of really bad mouth ulcers. Any advice?
Dakota17777
in
Pernicious Anaemia Society
4 years ago
Be alert of Secondary MDS
My father is successfully fighting prostate cancer since 3.5 yrs. His cemo (by pills) for 6 months then 40 radiations went well after testical removal. But his hemoglobin started to be low like 9 from 12. We asked doctor couple of times he just asked us to focus on PSA which is 0.01. But now my father
My father is successfully fighting prostate cancer since 3.5 yrs. His cemo (by pills) for 6 months then 40 radiations went well after testical removal. But his hemoglobin started to be low like 9 from 12. We asked doctor couple of times he just asked us to focus on PSA which is 0.01. But now my father
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
Life after transplant
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
KAS8
in
CLL Support
4 years ago
MDS and AML
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
sportydad
in
Leukaemia Support
4 years ago
Ntpobnp blood test
Hi all. I had a bone marrow transplant 2 years ago. It put stress on my heart. Last week i had a echocardiogram which has come back good!!! Though my bnp level is 600... i am 38. So too high. My consultant is not worried though. Does this sound right?? Does a high bnp always mean heart failure? Back
Hi all. I had a bone marrow transplant 2 years ago. It put stress on my heart. Last week i had a echocardiogram which has come back good!!! Though my bnp level is 600... i am 38. So too high. My consultant is not worried though. Does this sound right?? Does a high bnp always mean heart failure? Back
Jalola
in
British Heart Foundation
4 years ago
Car-T and a bone marrow transplant
Is someone in their late 70's and older too old to have Car-T therapy or a bone marrow transplant?
Is someone in their late 70's and older too old to have Car-T therapy or a bone marrow transplant?
Bmarbler
in
CLL Support
4 years ago
Brain Inflammation
Last week I completed the MIN-102 trial which concluded with an MRI. The next day I received a call from the neurologist saying there are changes from the last MRI (9/19) and what is brain inflammation. She felt it urgent enough to prompt a video visit with me and my neurologist. I got the radiologist
Last week I completed the MIN-102 trial which concluded with an MRI. The next day I received a call from the neurologist saying there are changes from the last MRI (9/19) and what is brain inflammation. She felt it urgent enough to prompt a video visit with me and my neurologist. I got the radiologist
SongStream
in
AMN EASIER
4 years ago
Sore tongue linked to Pred and/or GCA?
For some months now I have had a really sore tongue .. feels like I’ve eaten something that’s too hot or keot a fizzy sweet on my tongue. Initially GP thought oral thrush. Prescribed nystatin, then daktaein gell then a tablet, no improvement, also had a mouth swob came back negative for thrush but i
For some months now I have had a really sore tongue .. feels like I’ve eaten something that’s too hot or keot a fizzy sweet on my tongue. Initially GP thought oral thrush. Prescribed nystatin, then daktaein gell then a tablet, no improvement, also had a mouth swob came back negative for thrush but i
Phoenix51
in
PMRGCAuk
4 years ago
HELP! What do I do next?
I had a phone call today with my NHS consultant, I have always suffered from heavy painful periods, excessive pain and very bad hormonal acne for as long I’ve had my periods from age 11 - I am now 23. I had a diagnostic laparoscopy last August to diagnose endometriosis (they didn’t find any) and they
I had a phone call today with my NHS consultant, I have always suffered from heavy painful periods, excessive pain and very bad hormonal acne for as long I’ve had my periods from age 11 - I am now 23. I had a diagnostic laparoscopy last August to diagnose endometriosis (they didn’t find any) and they
Private12
in
Endometriosis UK
4 years ago
Ulcers and sores
I have lupus, I have suffered with reoccurring ulcers, I have sore in my nose and ears. I react to a lot of medicine. So it's difficult to get proper medicine. I take too many pain relief, can any one advise if there is something else that I need to use .
I have lupus, I have suffered with reoccurring ulcers, I have sore in my nose and ears. I react to a lot of medicine. So it's difficult to get proper medicine. I take too many pain relief, can any one advise if there is something else that I need to use .
blessing40
in
LUPUS UK
4 years ago
5th Anniversary
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary Myelofibrosis which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum. Also the issues caused by high dose steroids needed to save my
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary Myelofibrosis which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum. Also the issues caused by high dose steroids needed to save my
JediReject
in
MPN Voice
4 years ago
COIL, HORMONES... PLEASE HELP
Hi everyone, I have been advised to take my copper coil out to put the hormonal coil in to manage symptoms that look like endometriosis. However, they haven't done laparoscopy so we aren't sure yet if I do have endo. It is confusing, frustrating and overwhelming, I am not a fan of the idea of putting
Hi everyone, I have been advised to take my copper coil out to put the hormonal coil in to manage symptoms that look like endometriosis. However, they haven't done laparoscopy so we aren't sure yet if I do have endo. It is confusing, frustrating and overwhelming, I am not a fan of the idea of putting
SandraRC
in
Endometriosis UK
4 years ago
Thrush in mouth
I have had oral thrush for a couple of months now, Treated it with Corsodyl mouthwash to no avail. Got Nystan mouthwash off Doc last week and five days later —- no better. Any advice would be appreciated. Doc is calling me later this afternoon.
I have had oral thrush for a couple of months now, Treated it with Corsodyl mouthwash to no avail. Got Nystan mouthwash off Doc last week and five days later —- no better. Any advice would be appreciated. Doc is calling me later this afternoon.
Smokygirl
in
PMRGCAuk
4 years ago
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