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Does anyone have any feedback on Wegener's Gramgranulomatosis?
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
Youelbeverly
in
NRAS
9 months ago
Foot op
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
Hi I had foot surgery 6 weeks ago I had big toe fused and metatarsal heads removed, I now have a foot about 1 and half sizes smaller than the other foot.I can't find any information about this surgery, so wondering if anyone on here has had it done please
mazzy21
in
NRAS
9 months ago
Hand grip training for lowering blood pressure?
Good morning all you helpful people. I’ve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. I’ve had a look online, and it
Good morning all you helpful people. I’ve just heard a fascinating thing on the Zoe podcast, about hand grip strength and high blood pressure. Apparently, using a hand-held device to strengthen your hand grip over several weeks can effectively lower your blood pressure. I’ve had a look online, and it
Outsidethelines
in
Atrial Fibrillation Support
9 months ago
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Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
ArchieCatPurr
in
MPN Voice
9 months ago
Seeking advise about an implantable loop recorder.
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
kurtgv
in
AF Association
9 months ago
Rivaroxaban
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
PAP48
in
Lung Conditions Community Forum
9 months ago
hand warming creams
hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I can’t wear gloves or when the gloves aren’t effective. I’ve seen various hand creams to at say they warm the hands but has anyone tried any and
hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I can’t wear gloves or when the gloves aren’t effective. I’ve seen various hand creams to at say they warm the hands but has anyone tried any and
Enjoyswalking
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Varicose veins with scleroderma
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
An enquiry about the evidence base regarding anticoagulants - my reply to a post that just went missing…..
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Rainfern
in
AF Association
9 months ago
Psyllium Husk
Hi, had another flare up yesterday, after being reasonably ok for the last 3 weeks = I've really cleaned up my diet and yesterday was the result of a day out with friends, tea and cake and a slice of quiche. So difficult to find anything I actually enjoy eating at home, let alone at a restaurant.
Hi, had another flare up yesterday, after being reasonably ok for the last 3 weeks = I've really cleaned up my diet and yesterday was the result of a day out with friends, tea and cake and a slice of quiche. So difficult to find anything I actually enjoy eating at home, let alone at a restaurant.
Letsfixit1
in
IBS Network
3 months ago
Hemorrhoids from higher cholesterol
I thought I'd ask if this is common for other people. I suspect my Hemorrhoids have got quite bad as a result of slightly underactive thyroid. My cholesterol is mildly high - 5.7 when it should be below 5. Also I have gilberts syndrome which is high bilirubin. When I fasted or went more than 6 hrs without
I thought I'd ask if this is common for other people. I suspect my Hemorrhoids have got quite bad as a result of slightly underactive thyroid. My cholesterol is mildly high - 5.7 when it should be below 5. Also I have gilberts syndrome which is high bilirubin. When I fasted or went more than 6 hrs without
SteveT3
in
Thyroid UK
9 months ago
Maglyn
I reside in the UK and was diagnosed with Afib in early October and had a mild heart attack, in hospital for five days and given flecainide (50mg twice daily), apixaban (5mg twice daily), statins (40mg once daily) Losartan 5mg (once daily). I have always been intolerant to a lot of medication and vaccinations
I reside in the UK and was diagnosed with Afib in early October and had a mild heart attack, in hospital for five days and given flecainide (50mg twice daily), apixaban (5mg twice daily), statins (40mg once daily) Losartan 5mg (once daily). I have always been intolerant to a lot of medication and vaccinations
Maglyn
in
AF Association
9 months ago
A lightbulb moment
I am currently taking 10mg immediate release Shortec Oxycodone at 6pm, 10pm and again when I need to during the early hours. I manage to get broken sleep which usually equates to 4 hours, which is better than I have had in the past. This works reasonably well, however, from early afternoon my arms
I am currently taking 10mg immediate release Shortec Oxycodone at 6pm, 10pm and again when I need to during the early hours. I manage to get broken sleep which usually equates to 4 hours, which is better than I have had in the past. This works reasonably well, however, from early afternoon my arms
Mulberry100
in
Restless Legs Syndrome
9 months ago
Eating Nuts for Heart Health
If you are interested in eating nuts to improve your health, look up each one to see what vitamins or minerals it will supply and how many you should eat daily. It's important that nuts are 'really well chewed' and if you do that it will not effect pockets that may have formed in the bowel due to
If you are interested in eating nuts to improve your health, look up each one to see what vitamins or minerals it will supply and how many you should eat daily. It's important that nuts are 'really well chewed' and if you do that it will not effect pockets that may have formed in the bowel due to
jeanjeannie50
in
Atrial Fibrillation Support
3 months ago
anticoagulants-or not..
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
OldJane
in
Atrial Fibrillation Support
9 months ago
Hydroxycarbamide and lungs
I have been on hydroxycarbamide for nearly 9 years with no serious problems, but now I am getting slight breathlessness. I was surprised to read that this medicine can cause interstitial lung disease such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases
I have been on hydroxycarbamide for nearly 9 years with no serious problems, but now I am getting slight breathlessness. I was surprised to read that this medicine can cause interstitial lung disease such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases
Zeigler
in
MPN Voice
9 months ago
Warfarin
For all those who have been happily on warfarin for years with well-managed INR yet are still being badgered by their GP to change to a DOAC with stories of reduced bleeding risk, this study should set your mind at rest that there is no reason to change whatsoever. 5 years ago my father reluctantly
For all those who have been happily on warfarin for years with well-managed INR yet are still being badgered by their GP to change to a DOAC with stories of reduced bleeding risk, this study should set your mind at rest that there is no reason to change whatsoever. 5 years ago my father reluctantly
HGates
in
AF Association
9 months ago
Fatigue
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
My challenge is that around the same time i was diagnosed with Pmr i was experiencing mobility issues which resulted in a hip replacement followed by a year later by a knee replacement on the opposite leg which I am now 6 month post op . I am not sure if my fatigue on effort is normal after the joint
Ritz02
in
PMRGCAuk
4 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
9 months ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
9 months ago
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