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Uva Ursi
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AIH/PBC with grade A cirrhosis
Hi, I am still awaiting on my appointment with hepatologist, it is finally scheduled for the 18th of July. I do have all my tests on hand though, and I am positive on AMA, smsa, (still waiting on Ana Fibroscan was 24, 7, and only alt and ast are slightly elevated at this point. I read that with these
Hi, I am still awaiting on my appointment with hepatologist, it is finally scheduled for the 18th of July. I do have all my tests on hand though, and I am positive on AMA, smsa, (still waiting on Ana Fibroscan was 24, 7, and only alt and ast are slightly elevated at this point. I read that with these
Cat1966
in
PBC Foundation
2 years ago
Indigestion
Hi just wondering if anyone suffered indigestion while on Urso. My hep started me on 500 daily in March and apart from a bit of nausea I was fine but now I have moved up to the 1000 daily and am having indigestion a lot which is something I never suffered from and also am getting an odd ache on my right
Hi just wondering if anyone suffered indigestion while on Urso. My hep started me on 500 daily in March and apart from a bit of nausea I was fine but now I have moved up to the 1000 daily and am having indigestion a lot which is something I never suffered from and also am getting an odd ache on my right
Casslucy
in
PBC Foundation
2 years ago
Any one else.
Hi, sorry I haven't posted for a while. Sometimes I think I'm completely on my own in this. I have a couple of questions if I may. Has anyone else been on mycophenolate mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone
Hi, sorry I haven't posted for a while. Sometimes I think I'm completely on my own in this. I have a couple of questions if I may. Has anyone else been on mycophenolate mofitil and had a really bad acid upset stomach. This did not start at the beginning of treatment but has come on slowly. Does anyone
Alley27
in
PBC Foundation
2 years ago
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Negative then positive then Negative AMA???
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
Hellcat79
in
PBC Foundation
2 years ago
PLEASE HELP! Positive then negative AMA
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Hellcat79
in
PBC Foundation
2 years ago
ALP just shot up
Hi there, I’ve been on this site for a number since of years but never posted- just read and learned from everyone. Brief history-diagnosed in 2015 at 55 yrs started Urso. Added OCA a few years ago and am on highest dose, 10 mg. A few months ago I had annual blood work and alp was 219. Not terrible
Hi there, I’ve been on this site for a number since of years but never posted- just read and learned from everyone. Brief history-diagnosed in 2015 at 55 yrs started Urso. Added OCA a few years ago and am on highest dose, 10 mg. A few months ago I had annual blood work and alp was 219. Not terrible
LindaVillanova
in
PBC Foundation
2 years ago
Cirrhotic pbc
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Shon1234
in
PBC Foundation
2 years ago
AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Urso and pain
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
Meeru2007
in
PBC Foundation
2 years ago
High dosage of urso
Hi all, Is there anyone else who is taking 4 x 500mg of urso a day ? I've been on this dosage for approx 2 yrs now, this has only just been questioned by the pharmacist I have changed over too, they have asked me to speak to consultant as dosage seems very high as I'm 11stone in weight ? Does anyone
Hi all, Is there anyone else who is taking 4 x 500mg of urso a day ? I've been on this dosage for approx 2 yrs now, this has only just been questioned by the pharmacist I have changed over too, they have asked me to speak to consultant as dosage seems very high as I'm 11stone in weight ? Does anyone
griff06
in
PBC Foundation
2 years ago
I found another
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
Pamela4475
in
PBC Foundation
2 years ago
Menopause and PBC
Anyone have experience with hrt and PBC? Currently on patch but menopause symptoms have returned. Thinking of oestrogen gel and progesterone tab. Gp not keen on the oral component. Liver levels improved since starting on Urso. Thanks for any input!
Anyone have experience with hrt and PBC? Currently on patch but menopause symptoms have returned. Thinking of oestrogen gel and progesterone tab. Gp not keen on the oral component. Liver levels improved since starting on Urso. Thanks for any input!
fiona446
in
PBC Foundation
2 years ago
Upset stomach
Hi I’ve pbc/aih and since weds my stomachs been bad . Little bit of sickness but more diarrhoea. Went to a&e Fri after calling 111 . All blood tests ok . Little bit of billireuben in my wee . Said it’s a gastro enteritis bug . Have 0 energy and taking everything to get out of bed (which has need a dinner
Hi I’ve pbc/aih and since weds my stomachs been bad . Little bit of sickness but more diarrhoea. Went to a&e Fri after calling 111 . All blood tests ok . Little bit of billireuben in my wee . Said it’s a gastro enteritis bug . Have 0 energy and taking everything to get out of bed (which has need a dinner
She-66
in
LIVErNORTH
2 years ago
Ischaemic cholangiopathy. Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso for increasing bile flow
Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso everyday for increasing bile flow and had my second MRCP scan yesterday 1 year post diagnosis
Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso everyday for increasing bile flow and had my second MRCP scan yesterday 1 year post diagnosis
Jonnyraguskas
in
British Liver Trust
2 years ago
Bad nausea
Hi everyone I've been on Urso now for about 1 month and have started with quite bad nausea waves throughout the day. I take mine in the evening about 8pm with food so I don't know if it's the Urso or the liver itself. Also have started peeing more. Have to admit this is worrying me now and an still
Hi everyone I've been on Urso now for about 1 month and have started with quite bad nausea waves throughout the day. I take mine in the evening about 8pm with food so I don't know if it's the Urso or the liver itself. Also have started peeing more. Have to admit this is worrying me now and an still
Casslucy
in
PBC Foundation
2 years ago
Nausea
Hi I've been taking Urso now for about 1 month now. I take half with my lunch and half with my dinner. I was fine up until a few days ago when I now seem to feel a bit nauseous about an hour or two after the lunchtime one. Is this normal and if so does it settle down. I keep worrying somethings getting
Hi I've been taking Urso now for about 1 month now. I take half with my lunch and half with my dinner. I was fine up until a few days ago when I now seem to feel a bit nauseous about an hour or two after the lunchtime one. Is this normal and if so does it settle down. I keep worrying somethings getting
Casslucy
in
PBC Foundation
2 years ago
Pbc/aih
Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?
Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?
She-66
in
PBC Foundation
2 years ago
Immune suppressant
Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?
Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?
She-66
in
LIVErNORTH
2 years ago
Could we have caught it super early?
Hi. I was diagnosed with NAFLD and PBC late January of this year by my GI. My blood tests came back with a positive AMA but my other LFT numbers are within the normal range or only slightly elevated. However, my LFTs have been slightly elevated on and off for many years now. My fibroscan showed plenty
Hi. I was diagnosed with NAFLD and PBC late January of this year by my GI. My blood tests came back with a positive AMA but my other LFT numbers are within the normal range or only slightly elevated. However, my LFTs have been slightly elevated on and off for many years now. My fibroscan showed plenty
Godsdaughter70
in
PBCers Organization
2 years ago
My story
I haven’t been on in awhile but wanted to update everyone. My liver specialist from the liver institute Methodist hospital told me this morning was our last visit unless I needed him again. I retired from ER nursing in 2017 bc I was diagnosed with pbc and possibly nrh according to the pathology report
I haven’t been on in awhile but wanted to update everyone. My liver specialist from the liver institute Methodist hospital told me this morning was our last visit unless I needed him again. I retired from ER nursing in 2017 bc I was diagnosed with pbc and possibly nrh according to the pathology report
Pamela4475
in
PBC Foundation
2 years ago
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