Upset stomach

[She-66]

Hi I’ve pbc/aih and since weds my stomachs been bad . Little bit of sickness but more diarrhoea. Went to a&e Fri after calling 111 . All blood tests ok . Little bit of billireuben in my wee . Said it’s a gastro enteritis bug . Have 0 energy and taking everything to get out of bed (which has need a dinner time ) am waking up through the night feeling sick . Have been taking paracetamol for my temp . Am on urso, steroids and about 3 weeks ago started on azathriopine. Just worried it might be something else as this is day 5 now

Turning into a proper stress head

[Socialista]

Hi, I won't pretend I know all about your condition as I (only) have AIH but I have been on some of the drugs you mention. I was diagnosed 3 yrs ago. First of all some of the symptoms you talk about are really common like upset stomach, aches and pains and fatigue especially. My way around the upset stomach was to take my Azathioprine with food, not on an empty stomach but you must talk to your consultant first as not everyone is the same and you may not be recommended to do this. I also had a lot of aches and pains on Azathioprine and was swapped over to Cellcept after 18 months but again this needs discussion with the consultant. I presume you are getting at least monthly blood tests still so anything out of the ordinary in your condition should be picked up quite quickly. It's a big emotional/mental shock to be diagnosed with a lifelong condition so don't be hard on yourself, it's natural to feel anxious and be a little hyper vigilant. Remember how lucky we are to be in a country that has the NHS.

[She-66 in reply to Socialista]

Thank x I got hold of my consultant who told me to stop taking the azathriopine. I’m there tomorrow to see where to go next . To be honest I think it was a mixture of a tummy bug and my body getting used to the new med .Yea am on weekly blood tests at the minute . Thank god for the nhs . They’ve been nothing but brilliant !!