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What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
8 months ago
Neuroendocrine prostate cancer could be restored to a state that responds to treatment
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
Don_1213
in
Advanced Prostate Cancer
8 months ago
Recovering after hospital stay
I’m wondering if anyone can tell me what to expect next. I had Covid at the end of January. I felt very flu like for a couple of days then okay for a few days. After that I got a cold and a chesty cough. The cough was only occasional. At the end of last week I started to feel flu like again. I decided
I’m wondering if anyone can tell me what to expect next. I had Covid at the end of January. I felt very flu like for a couple of days then okay for a few days. After that I got a cold and a chesty cough. The cough was only occasional. At the end of last week I started to feel flu like again. I decided
AppleOrchard
in
Asthma Community Forum
7 months ago
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treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
8 months ago
Coughing and AFib
I've been down for several days with what seems to be the flu (4 days of negative covid testing) and one of the most persistent symptoms has been a bad cough. I went into AFib a couple of days ago but blamed it on the fever. However, no fever today, but just went into AFib again. Anyone else have this
I've been down for several days with what seems to be the flu (4 days of negative covid testing) and one of the most persistent symptoms has been a bad cough. I went into AFib a couple of days ago but blamed it on the fever. However, no fever today, but just went into AFib again. Anyone else have this
hartbeast
in
Atrial Fibrillation Support
7 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
8 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
8 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
8 months ago
Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
8 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
8 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
8 months ago
anyone opted for Watch and Wait with indeterminate nodules thy3f? Looking for people with similar previous experience to make up my mind
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
Indianyellow
in
Thyroid UK
8 months ago
A COLD AND VENETOCLAX
Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back from my Oncologist. Thanks…Diana
Hi all….has anyone had a cold and paused Venetoclax? Still waiting to hear back from my Oncologist. Thanks…Diana
difor29
in
CLL Support
8 months ago
Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
8 months ago
update on sore Nipple!
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
Sungolfer
in
PMRGCAuk
8 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
8 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
8 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
8 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
8 months ago
Anal Cancer - after effects
I had chemo/radiotherapy for Anal Cancer in 2015 and was signed-off in 2021. Several times post treatment I have had spells of anal aching and soreness that mirrored what I experienced prior to diagnosis and treatment. Also I experienced quite a bit of discomfort in my perineum when sitting, this has
I had chemo/radiotherapy for Anal Cancer in 2015 and was signed-off in 2021. Several times post treatment I have had spells of anal aching and soreness that mirrored what I experienced prior to diagnosis and treatment. Also I experienced quite a bit of discomfort in my perineum when sitting, this has
BlueDun
in
Men's Health Forum
8 months ago
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