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Hello
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Bella_mum
in
SHARE Metastatic Breast Cancer
8 months ago
Asthma flare up or cold??
I can not stop sneezing, blowing my nose and coughing and wheezing just from laughing I start having some major coughing fit so annoying. I'm wondering if it's to do with mould in my flat? I've been ill for about 3 weeks now with throat infection and before that I had sinusitis and then before that I
I can not stop sneezing, blowing my nose and coughing and wheezing just from laughing I start having some major coughing fit so annoying. I'm wondering if it's to do with mould in my flat? I've been ill for about 3 weeks now with throat infection and before that I had sinusitis and then before that I
Yumz199725
in
Lung Conditions Community Forum
7 months ago
Zoladex and flu like symptoms
Hey. This may sound strange but does anyone suffer with flu like symptoms with the Zoladex? For the past 6 months I’ve had a number of ‘colds’ which seem to go straight to my sinuses but I have nothing else apart from feeling bunged up and absolutely no energy and achy. Just wondering if it could be
Hey. This may sound strange but does anyone suffer with flu like symptoms with the Zoladex? For the past 6 months I’ve had a number of ‘colds’ which seem to go straight to my sinuses but I have nothing else apart from feeling bunged up and absolutely no energy and achy. Just wondering if it could be
Louboo78
in
Endometriosis UK
7 months ago
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Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
8 months ago
Spinal mets.
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
APK3
in
Advanced Prostate Cancer
8 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
8 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
8 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
8 months ago
16cm Fibroid
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Dem92
in
Pelvic Pain Support Network
8 months ago
Liquid Biopsy
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
RedwoodLady
in
SHARE Metastatic Breast Cancer
8 months ago
CA 27.29 Blood test
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
8 months ago
Colostomy
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
DIYdiva
in
SHARE Ovarian Cancer Support
8 months ago
Coping with chemo side effects
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Kazzh
in
My Ovacome
8 months ago
hope + action
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
hurricaneheather
in
SHARE Metastatic Breast Cancer
8 months ago
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
8 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
8 months ago
Flu Symptoms
Hi I was recently diagnosed with Fibromylgia. I have had the flu and I am struggling to recover from it. I am 2 weeks in now and I am still feeling weak, dizzy, getting bad headache and have a rasping cough. Does anyone struggle to recover when having a virus..? Thanks
Hi I was recently diagnosed with Fibromylgia. I have had the flu and I am struggling to recover from it. I am 2 weeks in now and I am still feeling weak, dizzy, getting bad headache and have a rasping cough. Does anyone struggle to recover when having a virus..? Thanks
Mark1973
in
Fibromyalgia Action UK
7 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
8 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
8 months ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
8 months ago
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