don’t know what to think anymore.

[Kerri1402]

Hi all,

I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer.

We went to her results and biopsy results yesterday. We were all extremely shocked to be told it wasn’t ovarian cancer but actually bowel cancer…

I think she said when they operated, she saw small tumours on the bowel wall which literally looked like they were “sprinkles” everywhere. This was also seen on the biopsy results.

Because they were gynae specialists, they were unable to tell us much at all other than unlikely to have another op as it was all over the bowel??? And when I asked if it was advanced she didn’t really give me a straight answer.

We don’t know what this means for us going forward… again, it’s left us in limbo, in a really bad head space and starting all over again with another speciality.

We’ve gone from thinking the ovarian tumour was out and that she would need “mop up chemo” to “ your bowel is cancerous everywhere” but we will refer you on to colorectal….

I would have thought the CT scan would have picked up anything with the bowel. Her stool samples also only came back slightly inflammed. I feel like surely if they saw “small lumps:tumour” whilst operating, they should have said something? Instead it was such a shock yesterday.

So back to square one ☹️ recovering from surgery with cancer well and truly still present, waiting for a new team, a new MDT plan etc. Deflated….

[GCCA-Survivor Administrator]

Hi Kerri1402,

Thank you for posting with us. I hate that you’re having to deal with what’s going on with you now. Your story proves that it is definitely a “journey” and it can take some twists and turns. You were going down the road then all of the sudden had to take an exit and start down a completely different road. Please know that you are not starting over. The symptoms simply took you in one direction and then the diagnosis put you on the path you needed to be on. Cancer is definitely a tough thing to deal with. You have to narrow things down so you can focus on specific things and that’s exactly what you’re doing.

The CT scan doesn't always pick up everything that you’re looking for. The individual tests work with each other to get you the answers. You are probably in for a colonoscopy soon. Personally, given my situation I get an annual colonoscopy and an annual CT scan. I get blood work every year and every three years I get an endoscopy. All these things are done to make sure they’re we are seeing everything we need to see. The goal is to catch anything early. I believe the colonoscopy would have unveiled what’s going on with your bowel.

Now the focus is on how advanced is the bowel cancer and has it metastasized. The way you described it, sounds like it has not metastasized which is a good thing. Yes, you will get a new team to help you through this process. I found it amazing at how specialized a lot of the doctors are. These doctors can be very specific on what they deal with. That is a good thing. The treatments now are so personalized to the patient it’s unbelievable. You should get genetic testing so you will know your biomarkers and that can narrow down the possible therapies and treatments available. The more you know about “you” the more personalize your treatment will be. That is very important. Genetic testing can lead you down a path to therapies that will be beneficial but it will also help you avoid therapies that could be detrimental to your cancer fight. A cancer fight is very personalized.

Another thing to think about is if there is any hereditary medical situations in your family. This would be good information for your doctors to know. Given that you have bowel cancer, you should get genetic testing to find out if it is indeed hereditary which could lead to some beneficial testing for your family. My cancer was hereditary and everyone on my father's side of the family had to be tested.

You should know you are doing exactly what needs to be done. You started down one path and came to a fork in the road and had to take a turn. But it’s a good turn because it is getting you to a solution. It is part of the path of getting you to be well. It is what it is. It is cancer. Your goal is to be a survivor. Please focus on that.

Your story is one that you should tell to whomever will listen. It’s not too often I see that symptoms lead you down one path and all of a sudden you need to make a turn because something else is discovered. It is good that the bowel cancer was discovered and you can deal with it. It is an excellent story. To whomever will listen.

I do wish you the best in heading down this new path. Yes, it did take a turn but it took you down a path that you needed to go down. I do not look at it as having to go back to “square one”. You were just turned in a new direction and a direction that you need to be on. Hopefully things are going to be caught early and will be treatable. Please let us know what you find out from your oncologist as it is that type of information that can be helpful to others on this site as well.👍❤️

Thank you,

~Tom, GCCA Survivor - Colon Cancer Connected Site Administrator.

Just a reminder - this group is here to offer support, share experiences, and offer our thoughts - but this is not medical advice, and you should always consult your medical professional(s). Additionally, for all emergencies, seek urgent medical care, never delay.

[tony11173 in reply to GCCA-Survivor]

Tom has written a comprehensive reply which I concur. Im only just beginning to understand how complicated medical issues can be and what seems likely isnt always the case. I agree with Tom about the CT. i had and still do have all symptoms of bowel cancer. Two CT colonography were okay. Only when I got so ill that 3 different conditions were diagnosed by 3 different endoscopic scope tests of colon, stomach and small bowel within GI tract. It took seven Years, endless specialists, twists and turns to establish a problem. But even now the specialists are uncertain about my prognostic way forward. Im sorry to hear your news but really, the human body is incredibly complicated.

[ParkeysSon]

Here is a copy/paste(about halfway down the page) from this website: coffeeandcovid.com/p/obstru...

relative perhaps to what you are inquiring about. Hope it helps!

thepeoplesvoice.tv/scientis...

“High-dose Ivermectin shrinks cancer metastases.”

Author Justus R. Hope, MD, began by reporting on patient Rick’s “unsurvivable” stage 4 metastatic turbo colon cancer, which at the time of diagnosis had already spread to his liver and lymph nodes. Rick’s oncologist gave him six months, tops.

But Rick started taking high-dose ivermectin. His tumor markers dropped from 1,489 to 4.7. That’s a big drop. His metastases also calcified and shrank.

Next, Dr. Justus described one of Dr. Tess Lawrie’s recent cases. Tess reported a patient with metastatic ovarian cancer that had already spread to her peritoneum. The patient’s initial tumor markers (Ca125) were high, at 288. After a few weeks of chemo combined with ivermectin, her markers dropped to 22, and the externally-visible traces of the tumor vanished.

The patient’s cancer surgeon was baffled. He admitted “It’s remarkable. I didn’t expect that.” After removing her uterus and ovaries and taking biopsies, the surgeon was even more astounded. He found no cancer. He said, “This is extraordinary. No tumor. Some dead cells on the peritoneum that I removed. The biopsy confirmed that everything has gone – Ca125 at 3.”