Have Bronchiectasis with colonized pseudomonas Just finished 2 weeks of Ciprofloxacin.. had my first flare up for 10 months .. 🙄
Thought I was doing well .. but then just started producing loads of mucus which was different consistency & also keeping me up during the night . Hadn’t had a cold or cough / not unwell … I can only put it down to the fact that I played tennis 3 days running… indoors …but when it was that very cold spell & it was cold inside ….? Caused lung inflammation?
Has this happened to anyone else? I’m now really wary of even walking outside with a snood ..but would like to keep my fitness levels up
Does anyone have /live by general guidelines on when not to go out ? .. hate winter.. roll on spring
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Phill1
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I have had bronch all of my life. I don't find that the cold weather causes exacerbations but being inside with other people and their germs does. You may not have been conscious of picking up a virus from them but when your body is trying to fight one off the pesky pseudomonas often takes the opportunity to have a party.
Thanks for replying LP.. It was a weird onset.. like I said.. was playing tennis /feeling fine apart from more mucus to expel. Was doing so well .. not had an exacerbation for 10 months 🙄
Think I’m a bit wary because I had a lung bleed after a long walk in 0 temperatures during Covid …all a learning curve!
I like walking but now getting to feel a little precious with my lungs & wondering whether to hibernate a bit more. Hate having to take cipro .. all knocks me down a bit ..
Perhaps you should talk to your bronch specialist. You really must have one. When we have a bleed it is usually a sign of an exacerbation going on. The trouble with us bronchs is that we can go quietly down the slippery slope and not realise because we do tend to soldier on. Also, if we have been exacerbation free for some time there tends to be an element of denial in recognising an exacerbation creeping up. I know I do it.You said that you had more mucus to expel at the time that you were playing tennis and then suddenly had an exacerbation. It could have been quietly coming on. I hate cipro too. Maybe your bronch specialist will give you some IV to knock it on the headIt is a difficult balance for us. We need to exercise to get the mucus out but we do have to be kind to ourselves and it isn't good for anyone to get chilled.If you aren't happy going out in the cold, do your exercising at home. I have just stopped mine to reply to you (any excuse) I don't like the cold either. From reading this forum I have learned that those with copd tend to have breathing problems in the cold and find that wearing a scarf helps. If it is that cold I don't go out in it but some people find the cold refreshing.
I do think that your exacerbation is due more to the bacteria breeding down there than it is to the weather but if it is cold your body will be working harder because of that and I think that you should do what you are comfortable with and not feel'precious'
This antibiotic left me needing a wheelchair such was the muscle/ skeletal damage, burning tight muscles and joints, total insomnia, peripheral neuropathy in my face and legs, chronic muscle wasting and much more. Google Fluroquinolone toxicity syndrome or check out the face book groups. These are not RARE reactions despite what the gov warnings say.
Can’t seem to copy the link properly, best I can do.
I would double check that if I were you. Trust me you don’t want to reach toxic levels of cipro. Their own guidelines say it shouldn’t be given to over 60s only if all other options have failed.
I took cipro for 3 months. It was the first time of taking. After the 1st month it started tightening my muscles the, clever Consultant blamed all symptoms on the chest infection and I trusted him. I threw them in the bin in month 3 after realising what was happening to me. Some people have taken it 3 times throughout their lives and got “ floxed” on the 4 th.
It turned out to be useless against my infection anyway. Don’t trust Doctors question everything and for god sake don’t get Floxed .
Oh my goodness. Over the years I have done all sorts. I suppose that various forms of pilates and yoga have won out as I am very lazy when it comes to running around and I find that the breathing for both of those is very useful. I also watch You tube videos and I have just bought two books of stretching exercises for over 50s. If you call the helpline the BLF had a good video and book of exercises. I have the concentration of a gnat and so I change what I do all of the time. I used to walk my little dog around the village every day but very sadly he went over the rainbow bridge whilst I was in hospital last year. I have a treadmill which I force myself on to now and again and a little rotary stepper which I keep by my seat in the living room to do whilst I am watching Corrie.
🤣 There’s no magic bullet then.. just impressed that you are still so positive & doing regular excercise ..
My favorites are tennis ( social, gentle not competitive).. and walking ..but am put off with this cold weather.. like to do a sort of aerobic activity
Will look at yoga & home video stuff for now methinks.. but like you I’m a bit erratic & have to force myself to doing anything
I think it's just important to be doing something to keep those lungs working and work the mucus out. Aerobic is brilliant as long as you don't overdo it. Good luck.
I'd keep up exercise but perhaps have a day off between exercise. Winter is hard on lung disease. If u felt well and mucous didn't look infected, maybe the cold,damp weather and lot of vigorous exercise caused increase in mucous x
All I can say is I believe sometimes we have more than one condition going on. I had bronchitis a couple of times in my 20s then late onset asthma in my 30s . A few years later I developed bronchiectasis . Cold air is my enemy . Anything less than 10 degrees and I wheeze then have an exacerbation. However , I'm never sure which of the conditions is really the problem! I take Fostair and Incruse. My sense is get to know your lungs and do what keeps them happy! It's a very individual game. Good luck!
So right .. we all have differing symptoms/ diagnoses/ responses …I’m still getting to know my lungs …. . but this forum is so helpful for sharing our problems & getting advice
I’m now on antibiotics 3 days a week & use a Nebuliser daily this helps me clear the mucus . I was having one chest infection after another, so my Consultant prescribed the antibiotics & Nebuliser. 🤞 so far 2 in 9 months so not bad.
I agree with you I hate the winter roll on Spring. Take care 🥰
Hi I read your post and was happy to hear you are benefitting from a nebuliser. My husband is just waiting for a nebulizer assessment and is currently on an extended antibiotics course of doxycycline. Please let me know how you are doing now spring has sprung! Thank you
Hi , I'm doing well Thank u still only 2 infections in a year now & so looking forward to hopefully warmer weather. I hope your husband is responding well to his antibiotics. 😀
hi I have bronch was was pleased with myself as 9 months without antibiotics anyway on doxycycline now. Coughing is gut wrenching at the mo. I was also really tired x. Take care
I was feeling a bit smug that it had been 10 months since last exacerbation so was gutted that it happened…. Luckily no cough just excess mucus & abx made me v tired 😴
Anything below 5C and I struggle. Below that I`ll generally not go out. If I do go out when it`s cold I use a snood or a scarf and really take my time as the cold causes the cilia on the lungs to contract, reducing oxygen getting into the blood stream and causing what can be very frightening breathlessness. I`ve had a couple of very scary episodes. There`s no way I can exercise as much as you do tho so I`m prob a bit further down the road.
Most of us would have struggled with this weather, especially during that one week where my face froze off doing school run. I was layered up like an Eskimo, but the pesky germs made it through and am now very poorly with bronchiectasis flare up. I've had lot vomiting this time so can't touch my pills yet.
I wouldn't necessarily have chosen to go out certain days but had to get the children to school so lots thermals, hats etc!
Think you just need to be sensible and know your limitations as Clint Eastwood said in DH😁.
Do something from YouTube in the meantime, there is so much good, free stuff on there,
We have had a terrible Winter, but Spring is on the horizon....
thanks for advice so sorry to hear your having a flare up too .. It must be so hard for you with young children to look after as well. At least I’m retired and have the option of not going out when it’s freezing …
Sme here, I'm a prisoner in winter. I found cold weather results in an exacerbation . My sense is the cold does cause inflammation. That might be to do with asthma or maybe I have some bronchitis. Who knows . I was a smoker for 12 years in my younger years and did used to get bronchitis but now, many years later, diagnosed with asthma and bronchiectasis.
I find the cold affects me hugely and I have to keep warm. I'm recovering from pneumonia which I contracted in March and after 2 weeks of co-trimoxazole & 10 days of IV, I'm just about starting to recover. I'm going to be starting 3 days a week of prophylactic Azithromycin and daily nebulisers plus fostair inhaler- hoping I can be on the road to no more flare ups for some time xx
you have been through a tough time .😣Thank goodness we’re seeing the back of winter . I’ll be hibernating next time. Also I have been on Azithromycin for 3 years .. I’m sure it’s helped ..
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This weather is so bad for my breathing 😟
bronchiectasis flare up
Time taken for Sputum test results
sudden Bronchiectasis exacerbation.
EXCESSIVE DYNAMIC AIRWAY COLLAPSE
