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Looking for research on Chorea and APS Please
Hello everyone, thank you for the ongoing support all of you provide for us all here on the forum. Just got back from the OHSU in Portland Oregon. The specialists have tossed Chorea onto the table with the APS diagnosis. Searching for information so I may learn how to navigate properly through this
Hello everyone, thank you for the ongoing support all of you provide for us all here on the forum. Just got back from the OHSU in Portland Oregon. The specialists have tossed Chorea onto the table with the APS diagnosis. Searching for information so I may learn how to navigate properly through this
beccafullcircle
in
Hughes Syndrome APS Forum
6 years ago
Ambien
Does anyone take Ambien with Lyrica while trying to get off Mirapex? Thanks again, Tara
Does anyone take Ambien with Lyrica while trying to get off Mirapex? Thanks again, Tara
Hidden
in
Restless Legs Syndrome
6 years ago
Blood during 2ww
Morning All, Really need your advice as I'm really fretting, I had my DE 5 day transfer on Monday and last night when I went to the toilet there was a bit of pink on the tissue and just now there was a bit more blood when I wiped (sorry for TMI),could this be my period coming or would it be too early
Morning All, Really need your advice as I'm really fretting, I had my DE 5 day transfer on Monday and last night when I went to the toilet there was a bit of pink on the tissue and just now there was a bit more blood when I wiped (sorry for TMI),could this be my period coming or would it be too early
Hidden
in
Fertility Network UK
6 years ago
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Pyoderma Gangrenosum
This is another photo to add to my previous post. A dermatologist commented that she felt I had pyoderma gangrenosum in addition to Behcets Disease. Apparently the pink ring is very symptomatic. Sometimes the lesions go down to the fascia. Cl
This is another photo to add to my previous post. A dermatologist commented that she felt I had pyoderma gangrenosum in addition to Behcets Disease. Apparently the pink ring is very symptomatic. Sometimes the lesions go down to the fascia. Cl
lesleyg
in
Vasculitis UK
6 years ago
Ampyra and toe cramps
Anyone tried ampyra? It’s working fantastically for me and I’m walking much better. However, I’ve had a significant increase in cramping in my toes since starting. Wondering if they are related.
Anyone tried ampyra? It’s working fantastically for me and I’m walking much better. However, I’ve had a significant increase in cramping in my toes since starting. Wondering if they are related.
StacyHayward
in
My MSAA Community
6 years ago
Stress and fear
Hi, Went to my hematologist today.he told me to donate 1 unit of blood today and come with CBC next month.I donated 1 unit just 2 months back and my hct is 49 currently.Worried if donating so frequently is safe as I have read this disease could progress to mf over time. I also want to get the sleep study
Hi, Went to my hematologist today.he told me to donate 1 unit of blood today and come with CBC next month.I donated 1 unit just 2 months back and my hct is 49 currently.Worried if donating so frequently is safe as I have read this disease could progress to mf over time. I also want to get the sleep study
Hidden
in
MPN Voice
6 years ago
Sleep deprived ventolin clenil inhailers not playing nice with predisalon steroids and anti biotics any suggestions before insanity
2 weeks with little to no sleep! Steroids and ventolin!! Clenil normally ok is there a natural sleep aid that works and is safe with these meds
2 weeks with little to no sleep! Steroids and ventolin!! Clenil normally ok is there a natural sleep aid that works and is safe with these meds
Torunn
in
Asthma Community Forum
6 years ago
I have CLL and am on Leukeran. Has anyone else on Leukeran gained weight?
Weight gain on Leukeran. Anyone else?
Weight gain on Leukeran. Anyone else?
msbissy10
in
CLL Support
6 years ago
COPD and Obstructive Sleep Apnea (Cpap)
Hi Guys I have my nice new shiny CPAP machine (full mask f20) and the first night was fantastic, however, since then I've struggled with the machine, panicky gaspy breaths are preventing me from dropping off to sleep, it's as though my breaths are not constant and the machine tries to adjust the air-flow
Hi Guys I have my nice new shiny CPAP machine (full mask f20) and the first night was fantastic, however, since then I've struggled with the machine, panicky gaspy breaths are preventing me from dropping off to sleep, it's as though my breaths are not constant and the machine tries to adjust the air-flow
CoffCoffWalkWalk
in
Lung Conditions Community Forum
6 years ago
RLS/Augmentation and Refractory RLS
I have been dealing with RLS for almost 40 years. It wasn’t until 1996 that I was officially diagnosed through a sleep study. I was prescribed Sinemet at the lowest dose, and over the course of 5 years developed augmentation. Doctors tried prescribing other types of medications such as antidepressants
I have been dealing with RLS for almost 40 years. It wasn’t until 1996 that I was officially diagnosed through a sleep study. I was prescribed Sinemet at the lowest dose, and over the course of 5 years developed augmentation. Doctors tried prescribing other types of medications such as antidepressants
Maggiemay9
in
Restless Legs Syndrome
6 years ago
Sleep Study
Hello Guys has anyone had a sleep study done because of being diagnosed with Afib and congestive heart failure. I do have in a pacemaker as well, had 2 ablations done (6/18/2018) and feel like crap sometimes. My EP suggested I get a sleep study done where I will have to spend d nite at a sleep centre
Hello Guys has anyone had a sleep study done because of being diagnosed with Afib and congestive heart failure. I do have in a pacemaker as well, had 2 ablations done (6/18/2018) and feel like crap sometimes. My EP suggested I get a sleep study done where I will have to spend d nite at a sleep centre
Flo2pen
in
AF Association
6 years ago
Gave up Ambien, post-Ablation chest pain reduced...
So I have posted here in the past about my post-Ablation reflux and chest pain. I had read on other message boards about Ambien causing problems for long-term users especially with horrible heartburn and chest pain. So I finally let my Ambien prescription run out a week ago. I had a few nights of little
So I have posted here in the past about my post-Ablation reflux and chest pain. I had read on other message boards about Ambien causing problems for long-term users especially with horrible heartburn and chest pain. So I finally let my Ambien prescription run out a week ago. I had a few nights of little
Bshersey
in
AF Association
6 years ago
Does rls augmentation go away?
Hi all. New to this forum. A lot of great information on here. I have suffered augmentation at the hands of mirapex. I took it for a few years and now have been mirapex free for 5 weeks, using gabapentin as substitute. It has been a bery bad experience so far. Can anyone share their experience whether
Hi all. New to this forum. A lot of great information on here. I have suffered augmentation at the hands of mirapex. I took it for a few years and now have been mirapex free for 5 weeks, using gabapentin as substitute. It has been a bery bad experience so far. Can anyone share their experience whether
Golodranets
in
Restless Legs Syndrome
6 years ago
Happy legs but busy mind. Opiate-induced insomnia
I know there is another post in here somewhere about this. The opiates I take for my refractory RLS are magic but they really keep me awake. I slept for an hour and a half tonight and I can’t function on that. I have clonazepam (up to 4 mgs) for sleeping but that doesn’t work all the time It took
I know there is another post in here somewhere about this. The opiates I take for my refractory RLS are magic but they really keep me awake. I slept for an hour and a half tonight and I can’t function on that. I have clonazepam (up to 4 mgs) for sleeping but that doesn’t work all the time It took
Dcb55
in
Restless Legs Syndrome
6 years ago
A game changer for Aussies with MPN
Such amazing news to wake up to- I was actually in tears of joy! MPN Alliance Australia Facebook page has just shared this exciting news! We are so grateful to Nathalie for all the hard work she put into making this happen. From MPN Alliance Australia Facebook page- “We are so excited to share this news
Such amazing news to wake up to- I was actually in tears of joy! MPN Alliance Australia Facebook page has just shared this exciting news! We are so grateful to Nathalie for all the hard work she put into making this happen. From MPN Alliance Australia Facebook page- “We are so excited to share this news
CommonDaisy
in
MPN Voice
6 years ago
It rears its ugly head...
I used to have panic attacks when I was a teenager - they were so bad that it got me exploring my own mental health only to find that I have Bi Polar disorder with anxiety and panic disorder. I have been on a medication regiment from the age of 16. Now, I'm 32 and my panic attacks have come back full
I used to have panic attacks when I was a teenager - they were so bad that it got me exploring my own mental health only to find that I have Bi Polar disorder with anxiety and panic disorder. I have been on a medication regiment from the age of 16. Now, I'm 32 and my panic attacks have come back full
NoirLioness
in
Anxiety and Depression Support
6 years ago
Mirapex
Okay, I love you folks already. SO.. per doctor I have been taking Mirapex as needed at 2-3 hours before bed. ( I didn't used to need every night) Since started taking... I now need every night and wake up with RLS and have it severe during the day. So his answer is take more meds. My point is only
Okay, I love you folks already. SO.. per doctor I have been taking Mirapex as needed at 2-3 hours before bed. ( I didn't used to need every night) Since started taking... I now need every night and wake up with RLS and have it severe during the day. So his answer is take more meds. My point is only
RLSdaily
in
Restless Legs Syndrome
6 years ago
Sleep Apnea Test (Out-Patient)
Finally, after nearly two years of going to the GP with extreme fatigue amongst other symptoms, I've been referred to a specialist. The hospital put me under the lung-function department for a sleep-apnea test. Had my appointment for next week after what feels like forever! I'm just wondering what will
Finally, after nearly two years of going to the GP with extreme fatigue amongst other symptoms, I've been referred to a specialist. The hospital put me under the lung-function department for a sleep-apnea test. Had my appointment for next week after what feels like forever! I'm just wondering what will
Sofiihorrell
in
Pernicious Anaemia Society
6 years ago
CPAP - Finally 😁
Happy Thursday Guys I had my introduction and fitting for my CPAP machine yesterday, a sleek looking ‘ResMed, AirSense 10 Autoset’ with clip on humidifier 🤓 I managed about 4 hours with the mask on before waking up. In my sleepiness I didn’t figure that the mask was half off and the airflow was constant
Happy Thursday Guys I had my introduction and fitting for my CPAP machine yesterday, a sleek looking ‘ResMed, AirSense 10 Autoset’ with clip on humidifier 🤓 I managed about 4 hours with the mask on before waking up. In my sleepiness I didn’t figure that the mask was half off and the airflow was constant
CoffCoffWalkWalk
in
Lung Conditions Community Forum
6 years ago
Lidocaine Plasters - No longer available from Gp in UK
i have seen my pain specialist who has prescribed these at 5% - but GP says they cannot be prescribed anymore. Can anyone advise are these available over the counter at 5% in pharmacy. Seemed to be offered help for post surgery scar pain to have it whipped away, now desperate to know what to do?
i have seen my pain specialist who has prescribed these at 5% - but GP says they cannot be prescribed anymore. Can anyone advise are these available over the counter at 5% in pharmacy. Seemed to be offered help for post surgery scar pain to have it whipped away, now desperate to know what to do?
dinkic
in
Pain Concern
6 years ago
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