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ET symptoms ?
Hi all,first of all, I've been following the forum for quite some time , thank you Maz and everyone helping in here ! I have ET JAK2, 34 years old, roughly around 850 platelets count right now. My situation had been quite stable, been on aspirin since June 2019(diagnosis) but recently I've been feeling
Hi all,first of all, I've been following the forum for quite some time , thank you Maz and everyone helping in here ! I have ET JAK2, 34 years old, roughly around 850 platelets count right now. My situation had been quite stable, been on aspirin since June 2019(diagnosis) but recently I've been feeling
Maella
in
MPN Voice
3 years ago
Does taking lower dose aspirin advisable for years?
I’ve been taking aspirin for 5 months straight now and I feel like I’ll be doing it for years. I know some people says it the possible side effects outweighs the disease that it can prevent. I am a Jak2+ my platelet count is at 1400+ now last 2 months it was 1500+ I dunno if the cranberry juice and turmeric
I’ve been taking aspirin for 5 months straight now and I feel like I’ll be doing it for years. I know some people says it the possible side effects outweighs the disease that it can prevent. I am a Jak2+ my platelet count is at 1400+ now last 2 months it was 1500+ I dunno if the cranberry juice and turmeric
livelovelaugh1992
in
MPN Voice
3 years ago
Arthritis flareup on Ibrance and Anastrozole and Zometa
Hello Ladies! I've just gone through my one year anniversary of being diagnosed with MBC...and am feeling relatively well. I can walk for at least a mile, play golf, and am relatively active for an almost 68 year old woman. My most recent development is a painful flare up of arthritis in my hands,
Hello Ladies! I've just gone through my one year anniversary of being diagnosed with MBC...and am feeling relatively well. I can walk for at least a mile, play golf, and am relatively active for an almost 68 year old woman. My most recent development is a painful flare up of arthritis in my hands,
Dragonfly2
in
SHARE Metastatic Breast Cancer
3 years ago
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Confusion over vaccine efficacy for MPNS
A headline this morning seems to be focused on the dangers to people with immune deficiency and the lack of protection afforded to this group. Blood cancers seem to be singled out when discussing this group. I recognise that there is a huge difference between people with an MPN and those with leukaemia
A headline this morning seems to be focused on the dangers to people with immune deficiency and the lack of protection afforded to this group. Blood cancers seem to be singled out when discussing this group. I recognise that there is a huge difference between people with an MPN and those with leukaemia
amarylis
in
MPN Voice
3 years ago
Issue with beta blockers
Hello everybody, I had a HA April 29th and had 2 stents installed a day later. I am currently on ticagrelor 90 mg twice a day, atorvastatin 40 mg once a day, aspirin once a day and carvedilol 3.125 mg twice a day. I had originally started on metoprolol 12.5 mg twice a day. The problem I am having is
Hello everybody, I had a HA April 29th and had 2 stents installed a day later. I am currently on ticagrelor 90 mg twice a day, atorvastatin 40 mg once a day, aspirin once a day and carvedilol 3.125 mg twice a day. I had originally started on metoprolol 12.5 mg twice a day. The problem I am having is
runamok27
in
British Heart Foundation
3 years ago
Phlebotomy and reducing counts
Hello Thank you all for such valuable information! I am recently diagnosed at 70 years young after routine blood work. I am an avid runner and very active all around. I was diagnosed with PV Jax 2 positive. I was started on hydrea a baby aspirin and phlebotomy every 2 weeks. I thought my blood counts
Hello Thank you all for such valuable information! I am recently diagnosed at 70 years young after routine blood work. I am an avid runner and very active all around. I was diagnosed with PV Jax 2 positive. I was started on hydrea a baby aspirin and phlebotomy every 2 weeks. I thought my blood counts
Sunnylesser
in
MPN Voice
3 years ago
Is it Bisoprolol?
Just wondering if dropping a dose of bisoprolol from 2.5mg to 1.25mg can make you feel light headed and down and need the toilet all the time. The reason I say this is I have changed from Ramipril to losartin and from Avortastatin to Ruvortastin but take these at night. Two weeks before I was told to
Just wondering if dropping a dose of bisoprolol from 2.5mg to 1.25mg can make you feel light headed and down and need the toilet all the time. The reason I say this is I have changed from Ramipril to losartin and from Avortastatin to Ruvortastin but take these at night. Two weeks before I was told to
A1N2
in
British Heart Foundation
3 years ago
Improvement in ferritin levels but feel even worse.
I have struggled with low iron for some time. After being contacted on here about the possible effects of taking turmeric on iron levels I decided to stop the supplement and see if my iron levels improved. I have messed this up by eating more liver than previously because I wanted to add T3 to my liquid
I have struggled with low iron for some time. After being contacted on here about the possible effects of taking turmeric on iron levels I decided to stop the supplement and see if my iron levels improved. I have messed this up by eating more liver than previously because I wanted to add T3 to my liquid
Mugs19
in
Thyroid UK
3 years ago
Aspirin could cut cancer patients' death risk by 20%
A review by Cardiff University here in the UK has shown that, at any time after a diagnosis of cancer, about 20% more of the patients who took a daily low dose of aspirin were alive compared with patients not taking aspirin. Research also suggests that, not only does aspirin help to cut the risk of death
A review by Cardiff University here in the UK has shown that, at any time after a diagnosis of cancer, about 20% more of the patients who took a daily low dose of aspirin were alive compared with patients not taking aspirin. Research also suggests that, not only does aspirin help to cut the risk of death
Dastardly
in
Advanced Prostate Cancer
3 years ago
Vaccine efficiency
I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today about the ongoing uncertainty over the covid vaccines’ efficiency for this with MPNs and on medication. I’m ET and on Hydroxy and aspirin. Diagnosed about a year ago after a Dvt in nov 19. The results though appear to
I’m sure I’m not the only one alarmed at the blood cancer Uk announcement today about the ongoing uncertainty over the covid vaccines’ efficiency for this with MPNs and on medication. I’m ET and on Hydroxy and aspirin. Diagnosed about a year ago after a Dvt in nov 19. The results though appear to
Ettu
in
MPN Voice
3 years ago
5dFET transfer with blood thinners
After a miscarriage post 5dT, I am in the 8th day of the 2 WW wait my 2nd try. The docs added blood thinners, immunosuppressant with low dose aspirin as they said it will help prevent miscarriage. I have 25ml progesterone injection daily and estrogen of total 8mg I’m trying to stay relaxed and be prepared
After a miscarriage post 5dT, I am in the 8th day of the 2 WW wait my 2nd try. The docs added blood thinners, immunosuppressant with low dose aspirin as they said it will help prevent miscarriage. I have 25ml progesterone injection daily and estrogen of total 8mg I’m trying to stay relaxed and be prepared
PositivaCH
in
Fertility Network UK
3 years ago
ET - how many of you have this condition and then have it develop into MF or another condition
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
vickivicki
in
MPN Voice
3 years ago
Prescribed aspirin to thin my blood, skull fracture, led to light headedness, lack of balance, hospital prescribed aspirin! Side effects?
Light headedness slowly levelling out, even eyesight beginning to normalise, which were why in hospital? BUT flaking of skin on hands and dramatically my feet, which are now red and swollen, tired legs, hands tired, dramatic fatigue! [walking sore!] This has happened since being prescribed aspirin 75mg
Light headedness slowly levelling out, even eyesight beginning to normalise, which were why in hospital? BUT flaking of skin on hands and dramatically my feet, which are now red and swollen, tired legs, hands tired, dramatic fatigue! [walking sore!] This has happened since being prescribed aspirin 75mg
Adlon57
in
Healthy Evidence
3 years ago
Newbie with possible GCA
Hello everyone, this is my first post here. I've read through a lot of your concerns and experiences and I feel kind of guilty in having to ask this here... but here it goes. I'm a 22 year old italian female and I've been suffering with near-constant headaches since the 10th of June. They started very
Hello everyone, this is my first post here. I've read through a lot of your concerns and experiences and I feel kind of guilty in having to ask this here... but here it goes. I'm a 22 year old italian female and I've been suffering with near-constant headaches since the 10th of June. They started very
insomniac_
in
PMRGCAuk
3 years ago
Low Bp after running
Hi folks, Haven’t posted here for a while, just getting on with life and navigating the strange journey we’ve all been on over the last 12 months. Massive HA 2 years ago, single stent, significant scarring leading to EF 34% on last MRI in Jan 2020. Haven’t had a scan since, but taking Entresto, Eplerenone
Hi folks, Haven’t posted here for a while, just getting on with life and navigating the strange journey we’ve all been on over the last 12 months. Massive HA 2 years ago, single stent, significant scarring leading to EF 34% on last MRI in Jan 2020. Haven’t had a scan since, but taking Entresto, Eplerenone
Hidden
in
British Heart Foundation
3 years ago
PV, asthma and high B12
Crotchety here. First let me say how useful all your posts have been. I have PV, taking hydroxicarbamide and aspirin. I have asthma but am investigating whether breathlessness on extreme exertion, not relieved by asthma meds, is asthma, angina or simply sticky blood not moving fast enough. My breathlessness
Crotchety here. First let me say how useful all your posts have been. I have PV, taking hydroxicarbamide and aspirin. I have asthma but am investigating whether breathlessness on extreme exertion, not relieved by asthma meds, is asthma, angina or simply sticky blood not moving fast enough. My breathlessness
Crotchety
in
MPN Voice
3 years ago
Blood clots, pre eclamsia in first unsuccessful pregnancy. Now looking for a ray of hope in second.
Hi I am looking for some positive pregnancy stories. I had a stillbirth last year at 24 weeks gestation because of early severe pre eclampsia. Later developed extensive bilateral dvt all the way up to my heart. The doctors said it was an acquired thrombophilia. I am on blood thinners and still residual
Hi I am looking for some positive pregnancy stories. I had a stillbirth last year at 24 weeks gestation because of early severe pre eclampsia. Later developed extensive bilateral dvt all the way up to my heart. The doctors said it was an acquired thrombophilia. I am on blood thinners and still residual
Ansh1988
in
Hughes Syndrome APS Forum
3 years ago
AZ second jab - preparation
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
lkcreedon
in
PMRGCAuk
3 years ago
Elevated D Dimer post COVID infection and CLL - does elevated D Dimer mean poor chance of successful treatment?
Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood parameters like CRP, Ferritin were normal. It’s still elevated at 2000 range. Have been prescribed anti coagulants and aspirin. Could DDimer be elevated due to my CLL? Does having higher DDimer mean low chances of successful
Had covid 2 months ago. Tests showed only D-Dimer was elevated and other blood parameters like CRP, Ferritin were normal. It’s still elevated at 2000 range. Have been prescribed anti coagulants and aspirin. Could DDimer be elevated due to my CLL? Does having higher DDimer mean low chances of successful
nooji
in
CLL Support
3 years ago
Anyone taken Perindopril long term and suddenly developed chesty cough?
Have been taking Perindopril more than 10 years for blood pressure without problems. Have had a chesty cough for several weeks now and GP diagnosed post nasal drip and prescribed a nasal spray after having tried a week of antibiotics. The cough is still persisting, affecting mine and my wife’s sleep
Have been taking Perindopril more than 10 years for blood pressure without problems. Have had a chesty cough for several weeks now and GP diagnosed post nasal drip and prescribed a nasal spray after having tried a week of antibiotics. The cough is still persisting, affecting mine and my wife’s sleep
Cruise1
in
British Heart Foundation
3 years ago
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