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Looking for advice - has anyone stopped taking hydroxyurea
Hi everyone, my husband is 28 and was diagnosed with ET CALR 2 years ago and since then he’s been on hydroxyurea and aspirin. The doctor said he will have to take hydroxyurea for the rest of his life and that if we decided to have anymore children to let the doctor know so we can plan and get him off
Hi everyone, my husband is 28 and was diagnosed with ET CALR 2 years ago and since then he’s been on hydroxyurea and aspirin. The doctor said he will have to take hydroxyurea for the rest of his life and that if we decided to have anymore children to let the doctor know so we can plan and get him off
tigerlove3
in
MPN Voice
3 years ago
Orchiectomy - Are you happy with the results?
I have seen some comments on this site about those of you who have had an Orchiectomy. No more Lupron. I have been on Lupron for 2 1/2 years. Just completed my 4th infusion of Docetaxel, 2 more to go. Question - for those of you who have had an Orchiectomy, are you happy you did it? Any complications
I have seen some comments on this site about those of you who have had an Orchiectomy. No more Lupron. I have been on Lupron for 2 1/2 years. Just completed my 4th infusion of Docetaxel, 2 more to go. Question - for those of you who have had an Orchiectomy, are you happy you did it? Any complications
Hidden
in
Advanced Prostate Cancer
3 years ago
Cold in Angola
The temperature here in Angola around 30 C, hot always, but last night after dinner I started shivering form cold, became very pale and sleepy. It lasted around 2 hours, I had to put on winter PJs to keep warm. Has anyone ever had anything like this?
The temperature here in Angola around 30 C, hot always, but last night after dinner I started shivering form cold, became very pale and sleepy. It lasted around 2 hours, I had to put on winter PJs to keep warm. Has anyone ever had anything like this?
Eliss70
in
LUPUS UK
3 years ago
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9 year olds concerned about soiling himself at school
My son has been constipated for 6 weeks now he was supposed to go back to school today but was so anxious about himself soiling and not feeling it he just broke down he doesn't feel when he doesn't it he's having problems knowing when he needs a wee and poo he's on senna and laxido sachets (8 a day at
My son has been constipated for 6 weeks now he was supposed to go back to school today but was so anxious about himself soiling and not feeling it he just broke down he doesn't feel when he doesn't it he's having problems knowing when he needs a wee and poo he's on senna and laxido sachets (8 a day at
Sprogzmama
in
ERIC
3 years ago
Transforming Lung Cells Critical for Pulmonary Fibrosis.
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
2greys
in
Lung Conditions Community Forum
3 years ago
New here
I am new here not sure how this is going to go. I have suffered from depression and anxiety and was recently diagnosed with ptsd for over half my life. I know the problems that make my issues worse but I am the type of person who avoids conflict so I can’t bring myself to say anything to my family it
I am new here not sure how this is going to go. I have suffered from depression and anxiety and was recently diagnosed with ptsd for over half my life. I know the problems that make my issues worse but I am the type of person who avoids conflict so I can’t bring myself to say anything to my family it
Greengarden31
in
Anxiety and Depression Support
3 years ago
Alcohol and anxiety
so it’s been like at least 2 yrs since I drunk a lot of alcohol enough to get tipsy and I quit for a reason because back then it made me feel very anxious I’m having a bad aftermath like bad anxiety ptsd type vibes and I’m not liking it has anyone else been Through this??🤔
so it’s been like at least 2 yrs since I drunk a lot of alcohol enough to get tipsy and I quit for a reason because back then it made me feel very anxious I’m having a bad aftermath like bad anxiety ptsd type vibes and I’m not liking it has anyone else been Through this??🤔
Jamescrider
in
Anxiety Support
3 years ago
Cannot take antioxidants during radiotherapy
My first run on Lupron a year ago had been debilitating making it very difficult for me to do my work as a software developer. I ended up going off Lupron following that first shot. In January of this year, I went back on Lupron but I found ways to fight the fatigue and brain fog with a combination
My first run on Lupron a year ago had been debilitating making it very difficult for me to do my work as a software developer. I ended up going off Lupron following that first shot. In January of this year, I went back on Lupron but I found ways to fight the fatigue and brain fog with a combination
Mascouche
in
Advanced Prostate Cancer
3 years ago
Eliquis and Pred.
Has anyone had any experience with taking Eliquis (blood thinner) alongside Prednisone? I am on 5mg Pred. since March and feel good on this dose. Then mid April I was diagnosed with a DVT after a knee injury kept me immobile for a week or so. Now have returned back to some of my earlier issues with
Has anyone had any experience with taking Eliquis (blood thinner) alongside Prednisone? I am on 5mg Pred. since March and feel good on this dose. Then mid April I was diagnosed with a DVT after a knee injury kept me immobile for a week or so. Now have returned back to some of my earlier issues with
DodiR
in
PMRGCAuk
3 years ago
Military Service related PTSD....Does it ever get manageable?
Over 50 years ago. I experienced a series of events that culminated in undiagnosed and misdiagnosed PTSD. At the time little was known about PTSD. It was thought to be only experienced by " Combat troops " Now it's well known that this is not necessarily the case. Also. Being a Blue Water sailor, the
Over 50 years ago. I experienced a series of events that culminated in undiagnosed and misdiagnosed PTSD. At the time little was known about PTSD. It was thought to be only experienced by " Combat troops " Now it's well known that this is not necessarily the case. Also. Being a Blue Water sailor, the
Hidden
in
Heal My PTSD
3 years ago
ET diagnosis JAK2 positive
Hi I’m new here and last week received a diagnosis that I was jak2 positive and have ET. Came as something of a shock and I don’t think the consultant handled telling me v well at all - just appeared to want to give me leaflets and get me out the door with a prescription for hydroxycarbamide. I have
Hi I’m new here and last week received a diagnosis that I was jak2 positive and have ET. Came as something of a shock and I don’t think the consultant handled telling me v well at all - just appeared to want to give me leaflets and get me out the door with a prescription for hydroxycarbamide. I have
Cb1001
in
MPN Voice
3 years ago
Idiopathic lung fibrosis
Hi I am new to this site, I have been caring for my mother who has ipf for last five years. I am 68, does anyone know if I can claim a carers allowance for this condition? Any advice would be appreciated on this. She is not currently on oxygen but very limited to what she can do, plus recent fall and
Hi I am new to this site, I have been caring for my mother who has ipf for last five years. I am 68, does anyone know if I can claim a carers allowance for this condition? Any advice would be appreciated on this. She is not currently on oxygen but very limited to what she can do, plus recent fall and
Sweetpea731
in
Lung Conditions Community Forum
3 years ago
New Anticoagulants reversibility?
Hi, I was wondering if anyone has any info about the reversibility of the newer types of anticoagulants if needed? for example in an accident situation where bleeding is quite bad due to an injury. cheers in advance.
Hi, I was wondering if anyone has any info about the reversibility of the newer types of anticoagulants if needed? for example in an accident situation where bleeding is quite bad due to an injury. cheers in advance.
Simoni
in
AF Association
3 years ago
5 year old having soiling accidents/withholding
hi, new here so pleased to find this forum. My 5 year old son has been having soiling accidents. He goes to a forest kindergarten so the toilets are not right where he is, and I'm not sure if that has been the problem or something else? He will withhold his poo as his default and thats not always successful
hi, new here so pleased to find this forum. My 5 year old son has been having soiling accidents. He goes to a forest kindergarten so the toilets are not right where he is, and I'm not sure if that has been the problem or something else? He will withhold his poo as his default and thats not always successful
mamasmith18
in
ERIC
3 years ago
Agitation on vent
What’s some of your all’s personal experience or a loved ones personal experience, with trying to breathe over the vent. They said my dad was coming out of his sedation a little today and then he starts to breath real hard and he gets all agitated and anxious, so then it in turn messes with his oxygen
What’s some of your all’s personal experience or a loved ones personal experience, with trying to breathe over the vent. They said my dad was coming out of his sedation a little today and then he starts to breath real hard and he gets all agitated and anxious, so then it in turn messes with his oxygen
jld85
in
ICUsteps
3 years ago
GI bleeds
My wife has been on 3 anagrelide a day and 1 hydroxycarbamide every other day for quite a while now, they both work very well at keeping her platelets in the normal range. She has been home for a week now after a week in hospital after another massive gi bleed while in hospital her platelets rose to
My wife has been on 3 anagrelide a day and 1 hydroxycarbamide every other day for quite a while now, they both work very well at keeping her platelets in the normal range. She has been home for a week now after a week in hospital after another massive gi bleed while in hospital her platelets rose to
jointpain
in
MPN Voice
3 years ago
Changing from Lovenox injections to Coumadin
Is there a standard INR for those on Coumadin/Warfarin? My nephew (CAPS survivor) is transitioning from Lovenox (been injecting twice daily for almost 2 years) to Coumadin starting this week. Dr. checked his baseline INR a couple days ago and it is 1. How do they determine where they want your INR
Is there a standard INR for those on Coumadin/Warfarin? My nephew (CAPS survivor) is transitioning from Lovenox (been injecting twice daily for almost 2 years) to Coumadin starting this week. Dr. checked his baseline INR a couple days ago and it is 1. How do they determine where they want your INR
kiminabmw
in
Hughes Syndrome APS Forum
3 years ago
Catheter worry
Hi, could you please give me some advice. My dad has been recovering from severe covid, long time ventilated etc. He’s still quite confused and not fully physiologically aware. They removed his catheter yesterday, but he’s been retaining his urine, so they’re putting another catheter back in. I’m so
Hi, could you please give me some advice. My dad has been recovering from severe covid, long time ventilated etc. He’s still quite confused and not fully physiologically aware. They removed his catheter yesterday, but he’s been retaining his urine, so they’re putting another catheter back in. I’m so
Miltch
in
ICUsteps
3 years ago
Class 4 Medicines Defect Information, Syonell: sodium valproate
From time to time, members have mentioned taking sodium valproate. For that reason, it might be worth my posting this new MHRA alert. [i]
Class 4 Medicines Defect Information, Syonell 250mg Gastro-Resistant Tablets,(PL 35507/0191), Syonell 500mg Gastro-Resistant Tablets, (PL 35507/0192), EL (21
From time to time, members have mentioned taking sodium valproate. For that reason, it might be worth my posting this new MHRA alert. [i]
Class 4 Medicines Defect Information, Syonell 250mg Gastro-Resistant Tablets,(PL 35507/0191), Syonell 500mg Gastro-Resistant Tablets, (PL 35507/0192), EL (21
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Past few days having angina? I think...
For several days I have had pain that hits me in the chest, back and it expands up my neck and into my ears. When it started, it was evening after dinner. I thought it was too much Peking Duck. I reclined in bed and took some Tylenol and a baby aspirin. The pain reduced and finally stopped after about
For several days I have had pain that hits me in the chest, back and it expands up my neck and into my ears. When it started, it was evening after dinner. I thought it was too much Peking Duck. I reclined in bed and took some Tylenol and a baby aspirin. The pain reduced and finally stopped after about
Wewo01
in
MPN Voice
3 years ago
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