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brand new diagnosis
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
ematthews81
in
C3 Glomerulopathy
7 months ago
Savor the Season: Holiday Tips and Winter Recipes for People on Dialysis
As the winter holidays approach, sticking to a dialysis diet can be challenging. NKF is here with tips and recipes to make it easier! https://www.kidney.org/newsletter/savor-season-holiday-tips-and-winter-recipes-people-dialysis
As the winter holidays approach, sticking to a dialysis diet can be challenging. NKF is here with tips and recipes to make it easier! https://www.kidney.org/newsletter/savor-season-holiday-tips-and-winter-recipes-people-dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
7 months ago
Caregiver Assistance
My 88 y/o mother has a GFR of 15. It dropped from 29 in November to 15 in December. Doctors said she was ready for palliative or hospice care. We do not qualify for hospice care because every time someone comes out to do an eval, she appears fine and says nothing is wrong. Most days though she has horrible
My 88 y/o mother has a GFR of 15. It dropped from 29 in November to 15 in December. Doctors said she was ready for palliative or hospice care. We do not qualify for hospice care because every time someone comes out to do an eval, she appears fine and says nothing is wrong. Most days though she has horrible
RubyLipbaum
in
Kidney Disease
7 months ago
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Big News About Potential New Drug for Kidney Disease!
This would be an enormous advantage for kidney patients that may eliminate dialysis. Hope this becomes a prescribed medication soon!
https://www.drugs.com/news/experimental-could-big-advance-against-kidney-116645.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++December+20++2023&
This would be an enormous advantage for kidney patients that may eliminate dialysis. Hope this becomes a prescribed medication soon!
https://www.drugs.com/news/experimental-could-big-advance-against-kidney-116645.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++December+20++2023&
HisLittleOne
in
Early CKD Support
7 months ago
Very Promising Med for CKD!
This would be an enormous advantage for kidney patients that may eliminate dialysis. Hope this becomes a prescribed medication soon!
https://www.drugs.com/news/experimental-could-big-advance-against-kidney-116645.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++December+20++2023&
This would be an enormous advantage for kidney patients that may eliminate dialysis. Hope this becomes a prescribed medication soon!
https://www.drugs.com/news/experimental-could-big-advance-against-kidney-116645.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++December+20++2023&
HisLittleOne
in
Kidney Disease
7 months ago
Positive results after five months
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
Pisces101
in
Early CKD Support
7 months ago
Low Blood pressure
Just out of interest, how low does your blood pressure go during dialysis?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button. Unfortunately, it wasn't properly plugged
Just out of interest, how low does your blood pressure go during dialysis?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button. Unfortunately, it wasn't properly plugged
Mich1949
in
Kidney Dialysis
7 months ago
Peritoneal dialysis catheter block
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Marbella17
in
Kidney Disease
1 month ago
The Seat of the Soul_Lili
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
lassirenas
in
Kidney Donation
7 months ago
Need some support from fellow travelers
I have not posted in a while. I am still going to the center for my treatments and training. The training has been thorough on their behalf. I am cannot express how hard this has been for me. I have tried to learn as much as I can and now can get the machine prepped for dialysis and we, my husband and
I have not posted in a while. I am still going to the center for my treatments and training. The training has been thorough on their behalf. I am cannot express how hard this has been for me. I have tried to learn as much as I can and now can get the machine prepped for dialysis and we, my husband and
Bassetmommer
in
Kidney Dialysis
7 months ago
Cancer/AKI to low GFR
Forgive me if this is in the wrong forum, wasn't sure where to post. In March this year I was diagnosed with a large tumor (6 in, 4.5lbs) on my left kidney. I had no symptoms but had some lower abdominal pain that lasted about a week which caused me to get a CT scan and the tumor was discovered. The
Forgive me if this is in the wrong forum, wasn't sure where to post. In March this year I was diagnosed with a large tumor (6 in, 4.5lbs) on my left kidney. I had no symptoms but had some lower abdominal pain that lasted about a week which caused me to get a CT scan and the tumor was discovered. The
Jwbak
in
Kidney Disease
7 months ago
I feel angry and devalued.
Today, in our dialysis unit, we have an unusual number of agency nurses. Most of them are are from India.During my session this morning, the nurse looking after me today ( also from India) decided to do a flow test check on me, by hooking me up to a machine that checks the flow rate. This happens maybe
Today, in our dialysis unit, we have an unusual number of agency nurses. Most of them are are from India.During my session this morning, the nurse looking after me today ( also from India) decided to do a flow test check on me, by hooking me up to a machine that checks the flow rate. This happens maybe
Mich1949
in
Kidney Dialysis
7 months ago
New to in center HD
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
HersheeKisses
in
Kidney Dialysis
7 months ago
pd dialysis how many hours do you do
I just wanted to say thank you to those who. Told me dialysis drain pain will get better. When I started in February on pd dialysis I was on my knee every time it drain . I was like no way my nurse and yall kept saying giving it time I admit I thought you all were crazy . But I may have a little time
I just wanted to say thank you to those who. Told me dialysis drain pain will get better. When I started in February on pd dialysis I was on my knee every time it drain . I was like no way my nurse and yall kept saying giving it time I admit I thought you all were crazy . But I may have a little time
Beachgirl32
in
Kidney Dialysis
7 months ago
It's been eight months since I found out I will need a transplant
I made a post about eight months ago titled, "Just found out I need a kidney transplant" soon after I got the news. I was mostly worried at the time about whether my mom would be able to be my donor and who would take care of me/us after the surgery. I can now report, my mom cannot be my donor, and I
I made a post about eight months ago titled, "Just found out I need a kidney transplant" soon after I got the news. I was mostly worried at the time about whether my mom would be able to be my donor and who would take care of me/us after the surgery. I can now report, my mom cannot be my donor, and I
Spaghetto
in
Kidney Transplant
6 months ago
Augmentation and how to move on.
Hi I have kidney failure and am on dialysis 3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now. The combination
Hi I have kidney failure and am on dialysis 3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now. The combination
TonyLewry
in
Restless Legs Syndrome
7 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
7 months ago
ureter strictures
hey all! 76 y/0 male with grade 4 kidney disease for about 2 years now. GFR runs about 27.5, creatinine about 2.4, and BUN about 39. I have to go every 4 months for urinary stent replacements, due to ureter strictures. Would a cadavers transplant be of benefit, or would I even qualify? What about
hey all! 76 y/0 male with grade 4 kidney disease for about 2 years now. GFR runs about 27.5, creatinine about 2.4, and BUN about 39. I have to go every 4 months for urinary stent replacements, due to ureter strictures. Would a cadavers transplant be of benefit, or would I even qualify? What about
Phillip46
in
Kidney Disease
8 months ago
Lee75glom
I have a eGFR of 10 and still avoiding dialysis. I am 75 and the transplant team will not consider a deceased kidney. So I am searching for a live donor. I have 2 people I know who are being evaluated. I am awaiting approval of my story on National Kidney Registry. I also am waiting for my story
I have a eGFR of 10 and still avoiding dialysis. I am 75 and the transplant team will not consider a deceased kidney. So I am searching for a live donor. I have 2 people I know who are being evaluated. I am awaiting approval of my story on National Kidney Registry. I also am waiting for my story
Lee75glom
in
Kidney Disease
8 months ago
Update
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Twoblu
in
ICUsteps
8 months ago
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