Forgive me if this is in the wrong forum, wasn't sure where to post.
In March this year I was diagnosed with a large tumor (6 in, 4.5lbs) on my left kidney. I had no symptoms but had some lower abdominal pain that lasted about a week which caused me to get a CT scan and the tumor was discovered. The cancer had not metastasized so I felt lucky to have found it and I have a spare kidney, so I was hopeful.
I had a full left nephrectomy and they had to remove the adrenal gland as well. Unfortunately in recovery my adrenal artery opened back up (they said they don't know what happened) and I'm lucky to be alive. Probably the worst experience during that time was waking up intubated and wondering what my remaining life would be like if I lived.
When my adrenal artery opened up, causing my blood pressure to crash, sending my other kidney into acute kidney injury. I started on dialysis for the next 3 weeks in the hospital with my eGFR going down to 6. When I finally got home after a month I started unrinating and slowly my GFR increased and I got off dialysis.
Now 9 months later my GFR seems to have stopped increasing and I have been at 30 for the last few months. I'm not sure it will improve beyond that, hopefully won't get worse. I have noticed a drastic decreased in my energy.
If anyone has experience living with a GFR of 30 and things that they found helpful as well as any experience with acute kidney injury and how long your recovery took for your GFR to level out.
Thanks for reading, I know it was a long on.