Search
Search
About
Log in
Join
Experiences with
Transactional Analysis
Posts
Communities
2,530 public posts
Filter results
Dialysis Side Effects
I'm new here. I've been on dialysis at a local clinic since mid-December 2021. I was diagnosed with Stage 5 and my GFR number is 2.6. I'll be exploring in home options at the end of this month with my Doc. My question is regarding the side effects I experience from dialysis - I leave barely able to
I'm new here. I've been on dialysis at a local clinic since mid-December 2021. I was diagnosed with Stage 5 and my GFR number is 2.6. I'll be exploring in home options at the end of this month with my Doc. My question is regarding the side effects I experience from dialysis - I leave barely able to
LoveHaley
in
Kidney Dialysis
2 years ago
Fluid overload
I am having trouble with low blood pressure and it makes it impossible for them to remove fluid from my body because my blood pressure is under 80 top number. Now I am having fluid overload and feel like I am going to die. My dry weight is 112 and I am at 123 now. I have dialysis tomorrow but if my blood
I am having trouble with low blood pressure and it makes it impossible for them to remove fluid from my body because my blood pressure is under 80 top number. Now I am having fluid overload and feel like I am going to die. My dry weight is 112 and I am at 123 now. I have dialysis tomorrow but if my blood
Jeaukool
in
Dialysis Support
2 years ago
Is my sister being overly drugged?
My sister has been in the ICU for 35 days from a hit and run. She was induced for 3 weeks and she’s been on anxiety medication, fentanyl then methadone. My mother is concerned methadone 15mg 4x per day is a lot. She has a breathing tube in her neck and half her teeth were knocked out but she has been
My sister has been in the ICU for 35 days from a hit and run. She was induced for 3 weeks and she’s been on anxiety medication, fentanyl then methadone. My mother is concerned methadone 15mg 4x per day is a lot. She has a breathing tube in her neck and half her teeth were knocked out but she has been
Talaxia
in
ICUsteps
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Eplet matching and donation
Does anybody here have any experience or information about kidney donation and eplet matching? I am a match for my intended recipient and eligible to donate, however I am a "high eplet mismatch". The coordinator said it is not an "absolute contraindication" to donation but if we do the paired exchange
Does anybody here have any experience or information about kidney donation and eplet matching? I am a match for my intended recipient and eligible to donate, however I am a "high eplet mismatch". The coordinator said it is not an "absolute contraindication" to donation but if we do the paired exchange
donor1215
in
Kidney Donation
2 years ago
Have to start dialysis soon
Had my check up today . My nephrologist said my gfr is down to 11 percent . Even though I feel ok he think it best to start dialysis sooner than later he said you don’t want to wait til you feel really sick and shortness of breath . He said we need one more labs before we do he will give me to the second
Had my check up today . My nephrologist said my gfr is down to 11 percent . Even though I feel ok he think it best to start dialysis sooner than later he said you don’t want to wait til you feel really sick and shortness of breath . He said we need one more labs before we do he will give me to the second
Beachgirl32
in
Kidney Disease
2 years ago
Fistula Time
I'm in the process of scheduling my fistula surgery. It brought up some emotions, none greater than sadness. I'm trying not to be too upset and be thankful that this procedure exists. I will be getting it in April in the elbow area, if that's the correct terminology for the place. I guess I felt sadness
I'm in the process of scheduling my fistula surgery. It brought up some emotions, none greater than sadness. I'm trying not to be too upset and be thankful that this procedure exists. I will be getting it in April in the elbow area, if that's the correct terminology for the place. I guess I felt sadness
HipHopQueen
in
Kidney Dialysis
2 years ago
"I Had Parkinson's" FB Group
There is a lot of bogus spam on the group. It is a public group. Don't click on the links in the group. They are BS. This is not an endorsement. I am just sharing as part of my "no stone left unturned" policy. I just heard about this FB group called "I Had Parkinson's" https://www.facebook.com/groups
There is a lot of bogus spam on the group. It is a public group. Don't click on the links in the group. They are BS. This is not an endorsement. I am just sharing as part of my "no stone left unturned" policy. I just heard about this FB group called "I Had Parkinson's" https://www.facebook.com/groups
Bolt_Upright
in
Cure Parkinson's
2 years ago
Kidney hasn’t woken up. Is there still hope?
Hi, A close friend finally got the call so many have waited for and had her transplant 8 days ago. Her kidney came from a deceased donor and for the first few days we were told that it may take a little while for the kidney to ‘wake up’. However the kidney isn’t showing any signs of doing so and my
Hi, A close friend finally got the call so many have waited for and had her transplant 8 days ago. Her kidney came from a deceased donor and for the first few days we were told that it may take a little while for the kidney to ‘wake up’. However the kidney isn’t showing any signs of doing so and my
Pink_lilytree
in
Kidney Transplant
2 years ago
Dialysis
I was in the hospital with accute kidney failure. They dialized me 3 days into to see if my kidney function would improve. I left with a GFR 20 . So I want to know if I start filling up with toxins, can they just give dialysis every 3months so I don’t feel so sick all the time. I am 68 no diabetics.
I was in the hospital with accute kidney failure. They dialized me 3 days into to see if my kidney function would improve. I left with a GFR 20 . So I want to know if I start filling up with toxins, can they just give dialysis every 3months so I don’t feel so sick all the time. I am 68 no diabetics.
Daneal1
in
Kidney Disease
2 years ago
Stressed Out
Hey yall. Just looking to vent. During my dialysis treatments I've been having severe panic attacks. After discussion with all the docs, we've decided to start using Ativan during treatments. Unfortunately I don't know why I panic. Shit, if I did I would make myself not, ya know? lol It just starts
Hey yall. Just looking to vent. During my dialysis treatments I've been having severe panic attacks. After discussion with all the docs, we've decided to start using Ativan during treatments. Unfortunately I don't know why I panic. Shit, if I did I would make myself not, ya know? lol It just starts
Kirkconnell
in
Dialysis Support
2 years ago
its getting hard.
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
fartikins
in
Kidney Disease
2 years ago
Periodontal Dialysis supplies
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the dialysis clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the dialysis clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
RonZone
in
Kidney Disease
2 years ago
Lupus and Heart Disease: Why You’re at Increased Risk
PUBLISHED 02/21/22 BY BARBARA BRODY People with lupus have an increased risk of heart disease — but understanding this link is a great first step in lowering it. Having inflammatory types of rheumatic disease means that your risk of having a heart attack, stroke, or other serious cardiovascular issue
PUBLISHED 02/21/22 BY BARBARA BRODY People with lupus have an increased risk of heart disease — but understanding this link is a great first step in lowering it. Having inflammatory types of rheumatic disease means that your risk of having a heart attack, stroke, or other serious cardiovascular issue
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
I have everything to put up with - need some reassurance
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
Hello - I live in the UK - I am early 70,s and have just been diagnosed with a GFR of 16. I have T2 controlled with insulin. I also have clinical depression and insomnia -controlled with Mirtazepine.and Venlafaxine. I take zopiclone at night along with diazepam for sleep. I am terrified beyond anything
fartikins
in
Kidney Disease
2 years ago
New Here, Stage 3b Kidney Disease with T1D, feeling down
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
Hi, I'm new here and I don't know what to do with how I'm feeling about my kidney disease. I am a Type 1 Diabetic diagnosed at 16, 35y/o female with high bp (currently being treated with amlodipine and now losartan) My last egfr this month is 32, my creatinine level is 2.13. I am african american, and
DMH200435
in
Kidney Disease
2 years ago
Peritoneal Dialysis Challenges
Hi There, I believe there are restrictions for both hemo- and peritoneal dialysis and both types of dialysis are challenging…Having ESRD and having to go on dialysis disrupts your life in so many ways and you grieve for the life you used to have. This is my second time around being on PD😕 Although
Hi There, I believe there are restrictions for both hemo- and peritoneal dialysis and both types of dialysis are challenging…Having ESRD and having to go on dialysis disrupts your life in so many ways and you grieve for the life you used to have. This is my second time around being on PD😕 Although
Slcallat
in
Kidney Transplant
2 years ago
Response to want to chat
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
Hi, I am relatively new as well. On PD for one year now. Joining this chat line is the first time I have heard other stories of people in my similar condition. I have wanted to chat with others on dialysis since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t
PD20
in
Dialysis Support
2 years ago
Fears and Anxiety
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
Hello everyone, I often post here about my anxiety and regarding my mom and her illness. She is in dialysis, she had a lung cancroid and later breast cancer. I feel like my anxieties do not allow me to function, in the sense that every time something bothers me I just get very depressed! Scanxiety, or
janeths466
in
SHARE Metastatic Breast Cancer
2 years ago
Cocktail Please: Bipolar/Spinal Cord Injury Now Dialysis
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
So I dived in and started posting last week after my visit to the dialysis educator. I didn't get into the fact that I have bipolar disorder and a spinal cord injury. I promise that's all. It's all a long story, but I'm concerned with making sure my medications stay stable. I was told depending on when
HipHopQueen
in
Kidney Dialysis
2 years ago
PD catheter installation
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
Hi everyone. I am 78 YO with CKD diagnosed in 2009 at GRF of 55. Now my GFR is 10. My Nephro has asked me to get the PD catheter installed soon. Right now I am feeling OK. No Edima, no nausea, no head ache, no diarrhea, walk one mile everyday, little anemic, not diabetic, Plant based diet. I take Amlodopine
htpi1543
in
Kidney Disease
2 years ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
603 results
Kidney Disease
559 results
Dialysis Support
263 results
View top 10 communities
Sort by
Most Relevant
Newest