Search
Search
About
Log in
Join
Experiences with
Transactional Analysis
Posts
Communities
2,531 public posts
Filter results
Daily struggle
So my mom died Jan. 5th & we buried her a week later. I came home from that(out of state) to find my husband severely ill & had to 911 him to hospital. He made it thru the crisis but is not the same. He has many health problems & has been on dialysis for 2 years. I'm now going to be a FT caregiver to
So my mom died Jan. 5th & we buried her a week later. I came home from that(out of state) to find my husband severely ill & had to 911 him to hospital. He made it thru the crisis but is not the same. He has many health problems & has been on dialysis for 2 years. I'm now going to be a FT caregiver to
Hippiedeb5150
in
Anxiety and Depression Support
6 months ago
Danger Danger, Will Robinson...... More on my HHD Experince
There used to be a television show back in my day where the robot would flail his mechanical arms, blink all his lights and yell “Danger, Danger Will Robinson.” Well, we have had our own HHD episodes of “Danger, Danger.” I sort of smile, not laugh at them now. But oh boy…. It seems amazing to be that
There used to be a television show back in my day where the robot would flail his mechanical arms, blink all his lights and yell “Danger, Danger Will Robinson.” Well, we have had our own HHD episodes of “Danger, Danger.” I sort of smile, not laugh at them now. But oh boy…. It seems amazing to be that
Bassetmommer
NKF Ambassador
in
Kidney Disease
6 months ago
CKD 5
hi I’m stage 5 not on dialysis as yet even though my numbers are very low im feeling quite well hence the reason for not starting dialysis… I was just wondering if anyone has an issue in regards to their monthly cycle… I’ve read that if your low function you can miss your period , I’m over due from my
hi I’m stage 5 not on dialysis as yet even though my numbers are very low im feeling quite well hence the reason for not starting dialysis… I was just wondering if anyone has an issue in regards to their monthly cycle… I’ve read that if your low function you can miss your period , I’m over due from my
Shane80
in
Kidney Disease
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Drive For Dialysis
Drive for Dialysis rallies individuals around a shared goal: supporting patients in your community. Educate your workforce about kidney disease and the importance of early detection. To learn more, visit: https://www.kidney.org/content/drive-dialysis
Drive for Dialysis rallies individuals around a shared goal: supporting patients in your community. Educate your workforce about kidney disease and the importance of early detection. To learn more, visit: https://www.kidney.org/content/drive-dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
6 months ago
C.K.D stage 4/5
I have at present an EGFR of 10 at my hospital we don't start dialysis until its consecutively below ten. I have tried to discuss transplantation and have been told I'm not there yet. Apparently I need yo be having dialysis before it's even discussed. Can I ask is there a.reason for that. I am very curious
I have at present an EGFR of 10 at my hospital we don't start dialysis until its consecutively below ten. I have tried to discuss transplantation and have been told I'm not there yet. Apparently I need yo be having dialysis before it's even discussed. Can I ask is there a.reason for that. I am very curious
Chipstore
in
Kidney Disease
6 months ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
6 months ago
Kristi
Hi, I am 65 years old and just found out it's time for me to find a Kidney! I have Polycystic Kidney and liver Disease which I inherited from my mother. I also have a brain Aneurysm. I have to get that fixed first before I go on an active list. Has anyone else had this? I am trying to find a Medicare
Hi, I am 65 years old and just found out it's time for me to find a Kidney! I have Polycystic Kidney and liver Disease which I inherited from my mother. I also have a brain Aneurysm. I have to get that fixed first before I go on an active list. Has anyone else had this? I am trying to find a Medicare
kristi_alford
in
Kidney Disease
6 months ago
ESRD Treatment Choices Model report
Since January 2012, CMS has implemented a ESRD Treatment Choices Model in 30% of the US. The goal was to increase home dialysis, increase kidney transplants. Home dialysis and kidney transplants in the US are FAR FAR below other developed nations. Only 12% use home dialysis and only 2.85 have transplants
Since January 2012, CMS has implemented a ESRD Treatment Choices Model in 30% of the US. The goal was to increase home dialysis, increase kidney transplants. Home dialysis and kidney transplants in the US are FAR FAR below other developed nations. Only 12% use home dialysis and only 2.85 have transplants
barbara55109
in
Kidney Disease
6 months ago
caregiver for family member
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
sehaj
in
Kidney Disease
6 months ago
Korsuva
My husband on dialysis is still suffering from rash and severe itching for months. He has tried every creme, prednisone in high doses, oatmeal baths, etc...Nothing helps except ice packs for a short time.I read that the FDA approved the drug Korsuva for treatment of CKD-aP but I can't find with research
My husband on dialysis is still suffering from rash and severe itching for months. He has tried every creme, prednisone in high doses, oatmeal baths, etc...Nothing helps except ice packs for a short time.I read that the FDA approved the drug Korsuva for treatment of CKD-aP but I can't find with research
Trower
in
Kidney Disease
6 months ago
The over price of drugs due to patent manipulation.
This article hit home when I recalled a problem I had with a drug I took while on dialysis. I had been taking a generic form of the drug for months and then I went in and it was no longer available . And the only option was a non generic at a very high price. The pharmacy had no answers why. So I did
This article hit home when I recalled a problem I had with a drug I took while on dialysis. I had been taking a generic form of the drug for months and then I went in and it was no longer available . And the only option was a non generic at a very high price. The pharmacy had no answers why. So I did
Eyak1971
in
Kidney Transplant
6 months ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
6 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
6 months ago
gfr is 15
my gfr is 15.3 and creatinine is 3.6 and all other parameters in blood tests shows normal. Should I go for dialysis?
my gfr is 15.3 and creatinine is 3.6 and all other parameters in blood tests shows normal. Should I go for dialysis?
Praveen9
in
Kidney Disease
7 months ago
The Black Hole
Anxiety is off the charts-depression on top of that makes for very uncomfortable existence. Mom is actively dying with hospice & family at bedside-it will be anytime. I'm worried about weather/snow/ice & traveling to where she's at(we are in 2 diff states)b/c I need to make funeral plans & all that goes
Anxiety is off the charts-depression on top of that makes for very uncomfortable existence. Mom is actively dying with hospice & family at bedside-it will be anytime. I'm worried about weather/snow/ice & traveling to where she's at(we are in 2 diff states)b/c I need to make funeral plans & all that goes
Hippiedeb5150
in
Anxiety and Depression Support
7 months ago
Dialysis Side Effects
My husband recently started (Nov 23) dialysis treatment at a community clinic. He has hypertension, so is medicated for that too. He's struggling to hold bowel movements, terrible restless leg, struggles sleeping, always thirsty, lethargic and recently, he has started vomitting more often, even the evening
My husband recently started (Nov 23) dialysis treatment at a community clinic. He has hypertension, so is medicated for that too. He's struggling to hold bowel movements, terrible restless leg, struggles sleeping, always thirsty, lethargic and recently, he has started vomitting more often, even the evening
JodieCarer
in
Kidney Disease
7 months ago
What is naturopathic nutritional therapy?
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
7 months ago
Isinatra not feeling the best!
A good friend of ours Isinatra is down on her luck, currently on dialysis, with a kidney infection! She had a angiogram which affected her one good kidney, been in Hospital since the 21st, so was not able to enjoy Xmas, hopefully on the mend. She has dropped her iPad so internetless at present😖 so pretty
A good friend of ours Isinatra is down on her luck, currently on dialysis, with a kidney infection! She had a angiogram which affected her one good kidney, been in Hospital since the 21st, so was not able to enjoy Xmas, hopefully on the mend. She has dropped her iPad so internetless at present😖 so pretty
Adlon57
in
Anxiety and Depression Support
7 months ago
when to begin Dialysis?
my husband’s eGFR is at 13 and Cystatin C At 9.45. His Dr wants him to start dialysis yet he doesn’t want to, naturally. He says he doesn’t feel bad yet I think he has felt bad for so long that he doesn’t know. My question; can he wait a little longer? Drs fear a big ER event. Not sure if they are
my husband’s eGFR is at 13 and Cystatin C At 9.45. His Dr wants him to start dialysis yet he doesn’t want to, naturally. He says he doesn’t feel bad yet I think he has felt bad for so long that he doesn’t know. My question; can he wait a little longer? Drs fear a big ER event. Not sure if they are
Snowpeak
in
Kidney Disease
7 months ago
Clinic Nurse Deliberately Shortening Treatment Time - What can I do?
Hi, everyone! My mom has been on dialysis for about two years now, but she just started at a new clinic (DaVita) in Virginia. My mom suffers from very low blood pressure during and after treatment, so we’ve found that a slower, more gentle, and longer (4 hour) treatment works best for her. When she
Hi, everyone! My mom has been on dialysis for about two years now, but she just started at a new clinic (DaVita) in Virginia. My mom suffers from very low blood pressure during and after treatment, so we’ve found that a slower, more gentle, and longer (4 hour) treatment works best for her. When she
Learning_as_we_go
in
Kidney Dialysis
7 months ago
1
...
6
7
8
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
603 results
Kidney Disease
560 results
Dialysis Support
263 results
View top 10 communities
Sort by
Most Relevant
Newest