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Kidney transplant update
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with
Kidney05love
in
Kidney Transplant
6 years ago
Dialysis fear.
Go ahead and get your fistula. If you wait too long you will need a chest port and they arr dangerous. Start investigating dialysis clinics in your area so you can pick the one you like and not the one that can fit hou in. Transplants are not always a perfect solution. There is much they dont tell you
Go ahead and get your fistula. If you wait too long you will need a chest port and they arr dangerous. Start investigating dialysis clinics in your area so you can pick the one you like and not the one that can fit hou in. Transplants are not always a perfect solution. There is much they dont tell you
MichaelT
in
Kidney Transplant
6 years ago
Worried been 17 years with my kidney transplant and my gfr 44
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
Hi everyone first off my name is Jennifer I'm 30 years old I receive my transplant at 13 years old from my dad been stable for a long time thank God but in this pass year I'm reach to stage 3 recently which for me a deal maybe some of u is not a big deal but I'm frightened that soon my kidney will give
jennifer24
in
Kidney Transplant
6 years ago
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July 2017 I found out I had End Stage Renal Failure. I literally thought that was the end of my life. I spent about 3 weeks in the hospital. My world was flipped upside down. I started dialysis and got put on tons of medication. After I was released I found myself getting depressed just sitting at home
July 2017 I found out I had End Stage Renal Failure. I literally thought that was the end of my life. I spent about 3 weeks in the hospital. My world was flipped upside down. I started dialysis and got put on tons of medication. After I was released I found myself getting depressed just sitting at home
j_unicorn
in
Kidney Disease
6 years ago
Trouble adjusting.
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
Pinktulips24
in
Kidney Disease
6 years ago
SIFO and vitamin D
It seems I might have SIFO(small intestine fungal overgrowth) which affect thyroid function as does SIBO. Had thyroid tests on dialysis method done as normal tests vary too much. But surprise surprise lab tested them normally...how difficult it can be to read the lab referral!!! Anyway my doctor told
It seems I might have SIFO(small intestine fungal overgrowth) which affect thyroid function as does SIBO. Had thyroid tests on dialysis method done as normal tests vary too much. But surprise surprise lab tested them normally...how difficult it can be to read the lab referral!!! Anyway my doctor told
Justiina
in
Thyroid UK
6 years ago
Dialysis
I was told yesterday that I need to prepare for dialysis. My doctor of 5 years passed away last week and I'm now seeing another doctor in her group. I am feeling down because she was doing everything possible to prevent me from going on dialysis as she knew that I have a donor. The problem with that
I was told yesterday that I need to prepare for dialysis. My doctor of 5 years passed away last week and I'm now seeing another doctor in her group. I am feeling down because she was doing everything possible to prevent me from going on dialysis as she knew that I have a donor. The problem with that
LBacote
in
Kidney Transplant
6 years ago
Facing Dialysis and/or Kidney Transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
jesselizzard
in
Kidney Transplant
6 years ago
Struggling for her life
Hi Everyone, I am new here and writing for my sister. She is 24 years old Kidney patient and on dialysis now a days. She was 17 when she diagnosed with the Renal failure. She had her transplant 8 years back, My father donated his kidney. She had a good healthy life for almost 5 years after transplant
Hi Everyone, I am new here and writing for my sister. She is 24 years old Kidney patient and on dialysis now a days. She was 17 when she diagnosed with the Renal failure. She had her transplant 8 years back, My father donated his kidney. She had a good healthy life for almost 5 years after transplant
sadia_dsbe
in
Kidney Transplant
6 years ago
Just diagnosed
I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 yr old autistic son. My GFR turned up at 52 last month that's what sparked my PCP to do test. I'm devastated. I'm devastated for my autistic son, not even for myself. I mean what is he going to do without me? I have to get
I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 yr old autistic son. My GFR turned up at 52 last month that's what sparked my PCP to do test. I'm devastated. I'm devastated for my autistic son, not even for myself. I mean what is he going to do without me? I have to get
athenat
in
PKD Charity for Autosomal Dominant PKD
6 years ago
IgA Nephropathy and transplant outcomes
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Ashkutty
in
Dialysis Support
6 years ago
Dialysis Humour
Hi All, I'm new here. My mother has started on dialysis recently. The who journey has been overwhelming for us. I started doodling some of her experiences, to bring about the lighter side of all this. Sharing one below. I also have a question around fistulas: Mom has been told to squeeze these "smiley
Hi All, I'm new here. My mother has started on dialysis recently. The who journey has been overwhelming for us. I started doodling some of her experiences, to bring about the lighter side of all this. Sharing one below. I also have a question around fistulas: Mom has been told to squeeze these "smiley
Ashkutty
in
Dialysis Support
6 years ago
LOST
Hello all, I live in Delaware and my fiancé is in need of a transplant. I went through all the channels and I am a match!!!! the bad news is he requires a secondary insurance in order to do the surgery. We have made dozens of calls and keep hitting brick walls, ie he's too young to qualify, he would
Hello all, I live in Delaware and my fiancé is in need of a transplant. I went through all the channels and I am a match!!!! the bad news is he requires a secondary insurance in order to do the surgery. We have made dozens of calls and keep hitting brick walls, ie he's too young to qualify, he would
Tiffhill
in
Kidney Dialysis
6 years ago
Dialysis
I have been receiving dialysis due to kidney failure for about 10 weeks. It all happened very quickly. I would be interested to know if anyone else on this forum was on dialysis. Lilian xx
I have been receiving dialysis due to kidney failure for about 10 weeks. It all happened very quickly. I would be interested to know if anyone else on this forum was on dialysis. Lilian xx
Lilian226
in
Lung Conditions Community Forum
6 years ago
I'm feeling confused because I'm getting no treatment from any hospital and having trouble getting appointment with a nephrologist.
I was diagnosed with stage 4 ckd..renal insufficiency..my GFR is 22..my creatinine is 2.5..BUN 41..Been to 2 E.R's in 2 days because of fatigue, pain, nausea diarrhea..This was found during a annual checkup..I knew I felt sick for 2 months didn't know why..sent home by E.R because they said nothing can
I was diagnosed with stage 4 ckd..renal insufficiency..my GFR is 22..my creatinine is 2.5..BUN 41..Been to 2 E.R's in 2 days because of fatigue, pain, nausea diarrhea..This was found during a annual checkup..I knew I felt sick for 2 months didn't know why..sent home by E.R because they said nothing can
Smokey2014
in
Kidney Disease
6 years ago
CKD and ESRD apps!
Hello all! I just thought I'd share with you these nifty apps that I found for CKD and ESRD patients on the appstore (I have an android, but I know there's similar apps for iphone..just type "kidney diet app" or something similar and stuff should come up)! I have two apps: low phosphorus foods and my
Hello all! I just thought I'd share with you these nifty apps that I found for CKD and ESRD patients on the appstore (I have an android, but I know there's similar apps for iphone..just type "kidney diet app" or something similar and stuff should come up)! I have two apps: low phosphorus foods and my
Ladybug_05
in
Kidney Disease
6 years ago
ONLY 10% of NON-DIALYSIS KIDNEY PATIENTS EVER SEE A DIETITIAN.
This article arrived in my mailbox yesterday but I wasn't able to get to it until today. I thought the information was interesting and decided to share it. It came in as part of a newsletter from the American Association of Kidney Patients www.aakp.org August 1, 2018, Loyola University Health System
This article arrived in my mailbox yesterday but I wasn't able to get to it until today. I thought the information was interesting and decided to share it. It came in as part of a newsletter from the American Association of Kidney Patients www.aakp.org August 1, 2018, Loyola University Health System
Hidden
in
Kidney Disease
6 years ago
RLS-UK 2018 Annual General Meeting (AGM)
We are pleased to confirm that our 2018 Annual General Meeting will take place on Saturday, 1st September at the National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL, about a ten-minute walk from King’s Cross and St Pancras stations. Feedback from
We are pleased to confirm that our 2018 Annual General Meeting will take place on Saturday, 1st September at the National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL, about a ten-minute walk from King’s Cross and St Pancras stations. Feedback from
Daragh
Restless Leg Syndrome
in
Restless Legs Syndrome
6 years ago
Confused, please help
Hi I'm 29 and after going through a hysterectomy (ovaries left) back in Feb I thought I was going through menopause so requested a blood test. This came back fine apart from my kidney function, so got retested a few weeks later and called in to see the GP. Was told my creatinine was 103 (way too hight
Hi I'm 29 and after going through a hysterectomy (ovaries left) back in Feb I thought I was going through menopause so requested a blood test. This came back fine apart from my kidney function, so got retested a few weeks later and called in to see the GP. Was told my creatinine was 103 (way too hight
Confusionckd
in
Early CKD Support
6 years ago
New member, saying hi! Here for my daddy! =)
Hi guys! I'm a new member. I thought I'd take a moment and introduce myself and share my dad's story. It's a bit lengthy, so apologies in advance! =) Three years ago, by the fault of a drug-using, drug-dealing doctor my dad's PSA was rising, unmonitored and unaware. My 74 year old dad had developed a
Hi guys! I'm a new member. I thought I'd take a moment and introduce myself and share my dad's story. It's a bit lengthy, so apologies in advance! =) Three years ago, by the fault of a drug-using, drug-dealing doctor my dad's PSA was rising, unmonitored and unaware. My 74 year old dad had developed a
Lynsi13
in
Advanced Prostate Cancer
6 years ago
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