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Still here.
I have been to my appointment this afternoon and I am still a bit shellshocked. My ultrasound showed as clear but the biopsy showed really bad damage to my left kidney. He wasn't sure what was causing it but it wasn't diabetes - it is either kidney infections or high blood pressure. My water sample showed
I have been to my appointment this afternoon and I am still a bit shellshocked. My ultrasound showed as clear but the biopsy showed really bad damage to my left kidney. He wasn't sure what was causing it but it wasn't diabetes - it is either kidney infections or high blood pressure. My water sample showed
fartikins
in
Kidney Disease
2 years ago
Can't Relax
Hi I feel so stressed right now. I am going through a tough time right now. I can feel the tension in my body. I just can't switch off. Before dialysis I would have a really hot long bath with lavender oil but I can't even do that. Is there any relaxation treatments or techniques suitable for me as I
Hi I feel so stressed right now. I am going through a tough time right now. I can feel the tension in my body. I just can't switch off. Before dialysis I would have a really hot long bath with lavender oil but I can't even do that. Is there any relaxation treatments or techniques suitable for me as I
Dora86
in
Kidney Disease
2 years ago
My story. I had CKD 3 then Kidney failure went on dialysis over 5 years then a friend donated his kidney and I received a transplant 2020.
I was asked for my story. I am afraid my entire story is too long for a website loI I have a tethered spinal cord from birth but was not caught til I was 25. Had two surgeries that did nerve damage. I caused a neurogenic bladder which refluxed into my kidneys for years and was not caught. Long story
I was asked for my story. I am afraid my entire story is too long for a website loI I have a tethered spinal cord from birth but was not caught til I was 25. Had two surgeries that did nerve damage. I caused a neurogenic bladder which refluxed into my kidneys for years and was not caught. Long story
ESRDRLS
in
Kidney Transplant
2 years ago
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Transplant and keeping Medicare after esrd Medicare runs out.
I found posts that were very helpful about being on the esrd Medicare then receiving a transplant. After 36 months they say you lose Medicare if you are not 65. I will be 62. I heard that once notified of Medicare ending you can stay on Medicare under a transplant Medicare. Please does anyone know
I found posts that were very helpful about being on the esrd Medicare then receiving a transplant. After 36 months they say you lose Medicare if you are not 65. I will be 62. I heard that once notified of Medicare ending you can stay on Medicare under a transplant Medicare. Please does anyone know
ESRDRLS
in
Kidney Transplant
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Regrets
I received my transplant on 11/30/2021. I've had so many issues with it since. Between constantly feeling like crazy and not having any energy my care team doesn't give me individualized care. It's like they are working off a check list. I'm ready to have them take this kidney out and go back to dialysis
I received my transplant on 11/30/2021. I've had so many issues with it since. Between constantly feeling like crazy and not having any energy my care team doesn't give me individualized care. It's like they are working off a check list. I'm ready to have them take this kidney out and go back to dialysis
Bk-Tony
in
Kidney Transplant
2 years ago
Help with poor appetite
I have had kidney disease for a while now and I'm also on dialysis. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years. I need to put weight on before
I have had kidney disease for a while now and I'm also on dialysis. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years. I need to put weight on before
Dora86
in
Kidney Disease
2 years ago
Terrible headache after dialysis
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
Eddie2149
in
Dialysis Support
2 years ago
Home dialysis question
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Yojimboken
in
Kidney Dialysis
2 years ago
Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
2 years ago
Living with Meningitis effects
Hi, I need to vent. I am 30 years old and at the age of 12 I was taken poorly with Meningitis and septecimia. I spent most of my teenage years in hospital. I was in a coma for. Number of weeks and went into kidney failure. I required dialysis and was tube fed, first through my nose and then through
Hi, I need to vent. I am 30 years old and at the age of 12 I was taken poorly with Meningitis and septecimia. I spent most of my teenage years in hospital. I was in a coma for. Number of weeks and went into kidney failure. I required dialysis and was tube fed, first through my nose and then through
CR1109
in
Meningitis Now
2 years ago
Choices for dialysis
I'm new here. Recently diagnosed with stage 5 kidney failure so trying to decide on which type of dialysis will be best for me. I live on an island 15 miles off the Maine coast. No dialysis clinics or facilities on the island which is only accessible by an hour and 15 minutes ferry ride. Closest facilities
I'm new here. Recently diagnosed with stage 5 kidney failure so trying to decide on which type of dialysis will be best for me. I live on an island 15 miles off the Maine coast. No dialysis clinics or facilities on the island which is only accessible by an hour and 15 minutes ferry ride. Closest facilities
Zephyr22
in
Kidney Disease
2 years ago
Night sweats and Dialysis?
Hey everyone. I've been experiencing crazy sweating while I sleep. Some nights, it even wakes me up. Is anyone aware of a link between dialysis and night sweats? Has/Is anyone else experiencing this?
Hey everyone. I've been experiencing crazy sweating while I sleep. Some nights, it even wakes me up. Is anyone aware of a link between dialysis and night sweats? Has/Is anyone else experiencing this?
Kirkconnell
in
Kidney Dialysis
2 years ago
March - National Kidney Month
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
WYOAnne
in
Early CKD Support
2 years ago
Does anyone know of a vascular surgeon who would put in a dialysis graft that could be used within 2 weeks or less?
I am looking for a facility in the West that will do an early-access dialysis graft. Hubby was procrastinating starting dialysis but became ill, went to the ER, and dialysis was started. In the month he's been hospitalized he has pulled 2 permacath ports out in his sleep. He doesn't remember doing
I am looking for a facility in the West that will do an early-access dialysis graft. Hubby was procrastinating starting dialysis but became ill, went to the ER, and dialysis was started. In the month he's been hospitalized he has pulled 2 permacath ports out in his sleep. He doesn't remember doing
thisishiswife
in
Kidney Dialysis
2 years ago
At home dialysis
Looking for advice regarding home dialysis. I understand their is a at home requirements check list / instructional set up. We live on an island which makes a dialysis center 3-4 times a week impractical.
Looking for advice regarding home dialysis. I understand their is a at home requirements check list / instructional set up. We live on an island which makes a dialysis center 3-4 times a week impractical.
Hidden
in
Kidney Disease
2 years ago
Numbers dropped
Had appt yesterday. Bun is up to 38. Creatine up to 4.0. Co2 is low so bicarbonate building up in blood. If it doesn't come up starting dialysis next month. Kidney function went from 22 in January to 18 2 days ago.
Had appt yesterday. Bun is up to 38. Creatine up to 4.0. Co2 is low so bicarbonate building up in blood. If it doesn't come up starting dialysis next month. Kidney function went from 22 in January to 18 2 days ago.
thomascald
in
Kidney Disease
2 years ago
The Queen has Landed
I was at a conference out of my home state this earlier this week and it hit me differently than any other flight I’ve taken. I had several emotions. Will this be my last trip before I start dialysis? What would travel be like with dialysis? And in truth. I was wondering how will I handle the loss of
I was at a conference out of my home state this earlier this week and it hit me differently than any other flight I’ve taken. I had several emotions. Will this be my last trip before I start dialysis? What would travel be like with dialysis? And in truth. I was wondering how will I handle the loss of
HipHopQueen
in
Kidney Dialysis
2 years ago
controversial topic
Hello - what do readers think about conservative management of kidney disease instead of having any form of dialysis. I ask this question because now I have been diagnosed with low gfr 17 and high creatinine 440 it looks as though some sort of dialysis is inevitable. I also suffer with chronic insomnia
Hello - what do readers think about conservative management of kidney disease instead of having any form of dialysis. I ask this question because now I have been diagnosed with low gfr 17 and high creatinine 440 it looks as though some sort of dialysis is inevitable. I also suffer with chronic insomnia
fartikins
in
Kidney Disease
2 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
vision22
in
Kidney Transplant
2 years ago
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