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Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
2 years ago
Amyloidosis
Anyone experienced Amyloidosis on Dialysis? I heard ghat haemodiafiltration can help. Is the cost of haemodiafiltration same as haemodialysis?
Anyone experienced Amyloidosis on Dialysis? I heard ghat haemodiafiltration can help. Is the cost of haemodiafiltration same as haemodialysis?
ashok5085
in
Kidney Disease
2 years ago
I have a working Ridership App called "Dialy Ride"
Please take a look at my work and provide me an honest feedback. This app if for people needs to be driven to the dialysis center for little or no money. It was the app that I had talked about on the forum some weeks ago. I would appreciate any feedback that you have after browsing it over. Thank you
Please take a look at my work and provide me an honest feedback. This app if for people needs to be driven to the dialysis center for little or no money. It was the app that I had talked about on the forum some weeks ago. I would appreciate any feedback that you have after browsing it over. Thank you
mambata
in
Kidney Dialysis
2 years ago
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sharing information on exercising on dialysis
here is a site I found excercise on diaylis it like 44 pages just thought it would be a nice share for anyone on diaylis https://lifeoptions.org/assets/pdfs/exercise_a_guide_for_people_on_dialysis.pdf
here is a site I found excercise on diaylis it like 44 pages just thought it would be a nice share for anyone on diaylis https://lifeoptions.org/assets/pdfs/exercise_a_guide_for_people_on_dialysis.pdf
Beachgirl32
in
Kidney Dialysis
2 years ago
update on my pd dialysis journey
I went today for first bandage change . My catheter look really good. I filled out a ton of paperwork the first page of paperwork kind of scarcy all the stuff they said you need to be aware of that could happen . Trying to get my training scheduled was a pain . When she call last week we were going
I went today for first bandage change . My catheter look really good. I filled out a ton of paperwork the first page of paperwork kind of scarcy all the stuff they said you need to be aware of that could happen . Trying to get my training scheduled was a pain . When she call last week we were going
Beachgirl32
in
Kidney Dialysis
2 years ago
Dialysis centers
Does anyone know anything about the dialysis centers near Bristol WI or Gurnee IL? WI is where my husband is renting a place and IL is where his new job is located. Any advice on how to pick a random center? Thanks for the help.
Does anyone know anything about the dialysis centers near Bristol WI or Gurnee IL? WI is where my husband is renting a place and IL is where his new job is located. Any advice on how to pick a random center? Thanks for the help.
Blackmidnight
in
Kidney Dialysis
2 years ago
Best high protein PD dialysis diet smoothie recipes
Ok, I may have gotten some responses before, but I apologize, I've forgotten them and didn't write them down. What is your favorite high protein smoothie recipes and what kind of machine do you have to make them in?
Ok, I may have gotten some responses before, but I apologize, I've forgotten them and didn't write them down. What is your favorite high protein smoothie recipes and what kind of machine do you have to make them in?
RonZone
in
Kidney Dialysis
2 years ago
How long to hold off dialysis?
Hello! My dad's kidney function is around 12% and has been for a couple months. He recently had fistula surgery so he'll be ready for dialysis after it fully heals. He'll be 86 next month and I'm concerned about the emotional and physical toll HD will have on him. I've been reading some articles that
Hello! My dad's kidney function is around 12% and has been for a couple months. He recently had fistula surgery so he'll be ready for dialysis after it fully heals. He'll be 86 next month and I'm concerned about the emotional and physical toll HD will have on him. I've been reading some articles that
JDsDaughter
in
Kidney Dialysis
2 years ago
On dialysis and wanting to stop
Does anyone know of people on dialysis to choose to stop treatment?
Does anyone know of people on dialysis to choose to stop treatment?
Jfkh30
in
Dialysis Support
2 years ago
Pain pkd
I has my pd catheter put in last Friday. I have not had much pain around the area. But m back pain is really bad. I always get back pain with my polycystic kidney and I used to take a hot soak to ease the pain, of corse can’t do that anymore. I miss my hot bath😱 I have only had to take one pain pill
I has my pd catheter put in last Friday. I have not had much pain around the area. But m back pain is really bad. I always get back pain with my polycystic kidney and I used to take a hot soak to ease the pain, of corse can’t do that anymore. I miss my hot bath😱 I have only had to take one pain pill
Beachgirl32
in
Kidney Dialysis
2 years ago
Weakening bones/joints on dialysis
Hi I am on dialysis for 4 yrs after my first transplant failed. My bones and joints are weakening day by day. I do take calcium+vit d3 and cinacalcet for high PTH. What else is required to avoid weak bones and joints? Any advice?
Hi I am on dialysis for 4 yrs after my first transplant failed. My bones and joints are weakening day by day. I do take calcium+vit d3 and cinacalcet for high PTH. What else is required to avoid weak bones and joints? Any advice?
ashok5085
in
Kidney Disease
2 years ago
Update
He cannot have dialysis because he is on palliative care
He cannot have dialysis because he is on palliative care
Carolsos
in
NRAS
2 years ago
liver issues and dialysis
I may have issues with my liver (waiting to speak to a consultant). It looks like excess toxins are seeping into my body making me feel rough. I wondered if anyone with liver issues and heart failure has ever had dialysis and did it make a difference?
I may have issues with my liver (waiting to speak to a consultant). It looks like excess toxins are seeping into my body making me feel rough. I wondered if anyone with liver issues and heart failure has ever had dialysis and did it make a difference?
Curryandchips
in
British Heart Foundation
2 years ago
Rough Draft of App Dedicated to Folks on Hemodialysis or PD
I started a quick draft of an app that might be wider in scope but I just want to get feedback early on so that I can minimize the application 's content. The main premise is to get rides from volunteers that could be an individual or a company. There are other tasks such as help doing light chores,
I started a quick draft of an app that might be wider in scope but I just want to get feedback early on so that I can minimize the application 's content. The main premise is to get rides from volunteers that could be an individual or a company. There are other tasks such as help doing light chores,
mambata
in
Kidney Dialysis
2 years ago
supplements
Developed ARF after taking sulfa drug, spend about 4 months on dialysis. I’m stage 4 kidney disease with GFR of 25. I was told I can qualify for transplant but would love to find some other way.. Live Rural Nebraska and going to dialysis is problematic. Does anyone know of another supplement like
Developed ARF after taking sulfa drug, spend about 4 months on dialysis. I’m stage 4 kidney disease with GFR of 25. I was told I can qualify for transplant but would love to find some other way.. Live Rural Nebraska and going to dialysis is problematic. Does anyone know of another supplement like
stellabellarn
in
Kidney Disease
2 years ago
I can't shake it
My girlfriend passed away 11 months ago and even with meds I can't shake this depression I have. I'm on 50 mgs prozac 700mg lamotrigene, 25mg hydroxine. I also take olanoxipine. I have ambien for sleep. I don't know HOW to get past this. She died on a full moon, so every full moon I'm reminded
My girlfriend passed away 11 months ago and even with meds I can't shake this depression I have. I'm on 50 mgs prozac 700mg lamotrigene, 25mg hydroxine. I also take olanoxipine. I have ambien for sleep. I don't know HOW to get past this. She died on a full moon, so every full moon I'm reminded
nonova1
in
Anxiety and Depression Support
2 years ago
I can't shake it
My girlfriend passed away 11 months ago and even with meds I can't shake this depression I have. I'm on 50 mgs prozac 700mg lamotrigene, 25mg hydroxine. I also take olanoxipine. I have ambien for sleep. I don't know HOW to get past this. She died on a full moon, so every full moon I'm reminded
My girlfriend passed away 11 months ago and even with meds I can't shake this depression I have. I'm on 50 mgs prozac 700mg lamotrigene, 25mg hydroxine. I also take olanoxipine. I have ambien for sleep. I don't know HOW to get past this. She died on a full moon, so every full moon I'm reminded
nonova1
in
Anxiety and Depression Support
2 years ago
CKD on PD DIALYSIS
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
RHOC
in
Kidney Disease
2 years ago
Waking up
hi, I’m new here but I feel like I’m going out of my mind. My Mum (79) ended up in ITU last Thursday following a chest infection, diabetic ketoacidosis and pneumonia. Her sedation has now been reduced but she’s not waking up. She has days when she will spontaneously open her eyes, and when I speak to
hi, I’m new here but I feel like I’m going out of my mind. My Mum (79) ended up in ITU last Thursday following a chest infection, diabetic ketoacidosis and pneumonia. Her sedation has now been reduced but she’s not waking up. She has days when she will spontaneously open her eyes, and when I speak to
LittleFish79
in
ICUsteps
2 years ago
When folks are at the dialysis center do you use a tablet or phone?
Hello Again, As I mentioned before, I am a User Interface Design Student who are building a site to help people who are undergoing dialysis. Like my sister, she uses her phone to watch Youtube videos to pass time. I'm interested in what device people use so that I could tailor it specific for those
Hello Again, As I mentioned before, I am a User Interface Design Student who are building a site to help people who are undergoing dialysis. Like my sister, she uses her phone to watch Youtube videos to pass time. I'm interested in what device people use so that I could tailor it specific for those
mambata
in
Kidney Dialysis
2 years ago
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