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Mastectomies
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
Kernowafibber
in
My Ovacome
5 months ago
preventative mastectomy
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
March2017
in
My Ovacome
5 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
22 days ago
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Connecting with others with metastatic recast cancer.
2019 diagnosed with metastatic breast cancer after 20 years from original diagnosis with 6 months chemo and double mastectomy. Responding well to treatment with no progression and remains stable. Bone Scan of Oct 2023 shows no progression and CT scans done every 3 months show no progression and remain
2019 diagnosed with metastatic breast cancer after 20 years from original diagnosis with 6 months chemo and double mastectomy. Responding well to treatment with no progression and remains stable. Bone Scan of Oct 2023 shows no progression and CT scans done every 3 months show no progression and remain
Harley_31
in
Women's Health
6 months ago
Good morning
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
bananasplits
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
7 months ago
Still here & BRCA elective Mastectomy
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Emsymits
in
My Ovacome
7 months ago
Private health insurance
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
Flora14
in
Fertility Network UK
2 months ago
Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
7 months ago
Too much pain
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
auntysue
in
Fibromyalgia Action UK
7 months ago
urethral constriction
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Phillip46
in
Kidney Disease
3 months ago
PSA level vs vasectomy question
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
Nwdx
in
Advanced Prostate Cancer
1 month ago
New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
8 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
5 months ago
Struggling to have a physical body
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
Themightiestrin
in
Anxiety and Depression Support
8 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
6 days ago
Constipation & Deep infiltrating endo any tips?
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
hi all Had a recent diagnosis of deep infiltrating endo seen to be throughout pelvis, adhered to fallopian tubes, ovaries, rectum and sigmoid colon, got significant issues now with chronic constipation, much worse when on a period, saw my own GP last week who suggested probiotics , about to pick those
Menopausal7
in
Endometriosis UK
11 days ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
23 days ago
Total hysterectomy with oopherectomy recovery advice needed please!
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hailun
in
Endometriosis UK
25 days ago
Painful Sex
Hi Ladies If you had painful sex problems would you mind reading this and sharing if you experienced anything similar and if so what action was taken? My fear is that maybe the sex pain is an indication of a more worrying problem eg bowel adhesions or even recurrence. Thanks. On Friday my boyfriend
Hi Ladies If you had painful sex problems would you mind reading this and sharing if you experienced anything similar and if so what action was taken? My fear is that maybe the sex pain is an indication of a more worrying problem eg bowel adhesions or even recurrence. Thanks. On Friday my boyfriend
Emcee71
in
My Ovacome
1 month ago
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