Looking to connect

[AVOCADOtastes]

Hello,

I would like to connect with survivors with these combinations in their medical experience, please. Can you help?

1. Have had heart failure

2. Have had a dissection B

3. Havd had a torn aorta

4. Have had a lumpectomy or mastectomy on the LEFT breast

5. Have had radiation or PROTON therapy

QUESTION for anyone... have you worked with a Cardio-Oncologist or not with the above scenario?

Thank you!!!!

[PJBinMI]

I don't think I have exactly what you are asking about but I'll tell you about my experience as a stage IV bc patient, diagnosed the month of my 58th birthday with lobular bc. E+ P+ her2neu -, "extensive" bone mets in spine, pelvis, shoulder blade and one rib. I'd been on synthroid for hypo-thyroidism for almost 40 years, and was being treated by a cardiologist for high blood pressure and atrial fibrillation, for over a decade. I had a "partial mastectomy" (lumpectomy). I got almost five years from Femara (Letrozole) along with Zometa for the bone mets. I had serious hot flashes, and took Effexor for those. 2nd line treatment was Faslodex (Fulvestrant) and got over 9 years from that! I was switched from Zometa to Xgeva as soon as it was FDA approved. 3rd line treatment was Exemestane and it workedfor about 8 years. In 2023, lab worked showed the cancer was no longer E+P+ and was triple negative. I was on Xeloda for a few months and now am on Taxol, will get my 3rd weekly infusion of it later this week. For awile, my cardiologist saw mw every 3, then every 6 months, but I've done well enough I now just see him once a year! The places other than bones where mets have shown up are: left ureter (tube from kidney to bladder) treated with surgery and now get a stent replaced every 3 months; right exterior cerebellum, treated with stereo-tactic radiation; lymph node cluster near right arm pit, putting pressure on the nerves in arm and hand; and in my abdomen, causing a bowel blockage, treated with surgery that removed the valve between stomach and small intestine. That has been the biggest problem, with digestive issues, loss of weight, little appetite, and bowels that are loose and difficult to control. This has been the hardest thing to deal with, by far! I don't know if any of this is helpful for you. Oh, I've gone to a major cancer center for second opinions from a bc specialist onc. They've always agreed with my onc's treatment plans.