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hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
KTe23
in
Endometriosis UK
1 year ago
Updates- 😱😤🤯🧐
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Awwy
in
Endometriosis UK
2 years ago
Money! money! money!
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Hidden
in
Mental Health Support
1 year ago
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First BFN today 😢 - trying to decide on back to back or a break.
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Minniemouse88
in
Fertility Network UK
1 year ago
Pain and discomfort
Hi, does any one else suffer with joint pain and stiffness.Some times I feel that I cam barely walk.. it'd likes the joints and ligaments don't want to move. I cant work out what is thyroidal and what is age related. I am currently taking HRT.. and this helped for a little while but it was very short
Hi, does any one else suffer with joint pain and stiffness.Some times I feel that I cam barely walk.. it'd likes the joints and ligaments don't want to move. I cant work out what is thyroidal and what is age related. I am currently taking HRT.. and this helped for a little while but it was very short
Physiogran65
in
Thyroid UK
1 year ago
Knee replacement
I have ET and am concerned about getting knee replacement surgery and the chance of blood clots. I read that the average blood loss is 800 ml. Has anyone gotten this surgery and how did it go?
I have ET and am concerned about getting knee replacement surgery and the chance of blood clots. I read that the average blood loss is 800 ml. Has anyone gotten this surgery and how did it go?
Whitehair51
in
MPN Voice
2 years ago
HRT and MPN
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
YogaRonnie
in
MPN Voice
1 year ago
Newbie help understanding thyroid results
Hello I've recently been to GP and requested bloods as have many of the hypo symptoms (weight gain and coldness especially). GP saying thyroid normal and no treatment. Won't refer to endo either I had gallbladder removed in June last year. Results: (Pages of results not sure if anything else needed
Hello I've recently been to GP and requested bloods as have many of the hypo symptoms (weight gain and coldness especially). GP saying thyroid normal and no treatment. Won't refer to endo either I had gallbladder removed in June last year. Results: (Pages of results not sure if anything else needed
Ch9533
in
Thyroid UK
1 year ago
Estrogen dominance and endometriosis, advice please
Hey everyone I follow your posts and appreciate your advice so back story is officially diagnosed with endometriosis thats spread to bladder and rectum since 2018 but recently bloodwork keeps showing estrogen dominant. No idea what that means or how it affects endometriosis. I'm also hypothyroid and
Hey everyone I follow your posts and appreciate your advice so back story is officially diagnosed with endometriosis thats spread to bladder and rectum since 2018 but recently bloodwork keeps showing estrogen dominant. No idea what that means or how it affects endometriosis. I'm also hypothyroid and
Escapologygirl
in
Endometriosis UK
1 year ago
Did you take a break after a failed transfer? Feeling lost after 1st transfer
Hi, I'm at the end of my first tww and had bright red blood last night. I've know instinctively that it didn't work for a couple of days but have to wait until Monday for the official test.😢 I have another four embryos frozen and my clinic asked if I wanted to start another cycle straight away. I feel
Hi, I'm at the end of my first tww and had bright red blood last night. I've know instinctively that it didn't work for a couple of days but have to wait until Monday for the official test.😢 I have another four embryos frozen and my clinic asked if I wanted to start another cycle straight away. I feel
Minniemouse88
in
Fertility Network UK
1 year ago
Need help with my numbers
Hello everyone, i’m new. Been reading most posts related to thyroidomectomy and hormone replacement therapy, now i need help with numbers. I had total thyrodectomy due to cancer in January and on Levothyroxine 125 since then. Tsh 0.03 (0.27-4.2), t3 free 2.9 (2.0-4.4), t4free 1.80 (0.93-2.10), Tg less
Hello everyone, i’m new. Been reading most posts related to thyroidomectomy and hormone replacement therapy, now i need help with numbers. I had total thyrodectomy due to cancer in January and on Levothyroxine 125 since then. Tsh 0.03 (0.27-4.2), t3 free 2.9 (2.0-4.4), t4free 1.80 (0.93-2.10), Tg less
Kofhte
in
Thyroid UK
1 year ago
Mastocytosis?
Hi I was diagnosed with MCAS back in 2015. I became incredibly ill after a antibiotic resistant Urine infection. I ended up in Intensive care and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones. I had
Hi I was diagnosed with MCAS back in 2015. I became incredibly ill after a antibiotic resistant Urine infection. I ended up in Intensive care and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones. I had
Redfleur
in
The UK Mastocytosis Support Group
1 year ago
Introduction
hi everyone, I’m 50, in perimenopause and struggling big time with declining cognition, adhd hormonal issues. I currently take adderall XR which I find helpful but it wears off quickly. Would like to use hormone replacement But Dr says no…I’m still menstruating every month.
hi everyone, I’m 50, in perimenopause and struggling big time with declining cognition, adhd hormonal issues. I currently take adderall XR which I find helpful but it wears off quickly. Would like to use hormone replacement But Dr says no…I’m still menstruating every month.
ScaryMary123
in
Menopause and Perimenopause Support
1 year ago
Caffeine / pregabalin / conflicting advice
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
67Waterman
in
Restless Legs Syndrome
1 year ago
Bleeding and Fibroids
I'm a 58 year old woman and have been having very heavy bleeding and cramping for the past month. I have been on HRT for about three years and had to change my prescription due to previous bleeding. (I ended up in hospital in 2021) I was told I had a 6cm fibroid and it was being over stimulated by the
I'm a 58 year old woman and have been having very heavy bleeding and cramping for the past month. I have been on HRT for about three years and had to change my prescription due to previous bleeding. (I ended up in hospital in 2021) I was told I had a 6cm fibroid and it was being over stimulated by the
purplegirl12
in
Pelvic Pain Support Network
1 year ago
Help with getting medication
Hi so this was my blood results a month ago. GP told me I’m sub clinical and even though I have symptoms because they’d just prescribed me HRT because of aching, anxiety, tiredness, hot flushes in bed they said I had to try that first to see if it worked. Anyway the hot flushes have eased but nothing
Hi so this was my blood results a month ago. GP told me I’m sub clinical and even though I have symptoms because they’d just prescribed me HRT because of aching, anxiety, tiredness, hot flushes in bed they said I had to try that first to see if it worked. Anyway the hot flushes have eased but nothing
Superduperloopylea
in
Thyroid UK
1 year ago
Knee surgery and PD meds??
Today I am seeing a surgeon about my bad knee. I am concerned that I will have to stop my Madapor before surgery, as it says on the packet. Is this true? I cannot imagine going without it - just the thought of that makes me anxious.
Today I am seeing a surgeon about my bad knee. I am concerned that I will have to stop my Madapor before surgery, as it says on the packet. Is this true? I cannot imagine going without it - just the thought of that makes me anxious.
Astra7
in
Cure Parkinson's
2 years ago
Apparently Total T3 doesn't matter?
After a long battle of getting the GP's to check T3, finding it was low and them increasing levo (from 75mg to100mg) - my results are TSH 1.3 (range 0.23-5.6) Free T4 - 18 (range 9-23) Free T3 - 4 (range 3.1-6.8) Total T3 - 1.2 (range 1.3-3.1) Vit D 53 (range 50-139) I've lost my previous results
After a long battle of getting the GP's to check T3, finding it was low and them increasing levo (from 75mg to100mg) - my results are TSH 1.3 (range 0.23-5.6) Free T4 - 18 (range 9-23) Free T3 - 4 (range 3.1-6.8) Total T3 - 1.2 (range 1.3-3.1) Vit D 53 (range 50-139) I've lost my previous results
dayoff
in
Thyroid UK
1 year ago
HRT, any thoughts please
I spoke to a doctor about trying HRT for my menopause symptoms. He said because my blood pressure was high, it's now normal using medicine and walking and because l am over weight. I am at a group and have lost 3 stone. He said he wouldn't recommend it for me because of increases in breast cancer, also
I spoke to a doctor about trying HRT for my menopause symptoms. He said because my blood pressure was high, it's now normal using medicine and walking and because l am over weight. I am at a group and have lost 3 stone. He said he wouldn't recommend it for me because of increases in breast cancer, also
RubyKB
in
Menopause and Perimenopause Support
1 year ago
4th Open Heart Surgery - Valve Replacement
Hi! My dad is having to have his 4th OHS in the coming weeks and I'm feeling a bit scared and anxious about it all. His last one was only in July 2021 - they are replacing the same valve that was replaced last time plus another one. Does anyone have any experience of having 4 open heart surgeries? Many
Hi! My dad is having to have his 4th OHS in the coming weeks and I'm feeling a bit scared and anxious about it all. His last one was only in July 2021 - they are replacing the same valve that was replaced last time plus another one. Does anyone have any experience of having 4 open heart surgeries? Many
S1462
in
British Heart Foundation
2 years ago
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