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Total hysterectomy
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Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
3 months ago
Pre Op assessment
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
3 months ago
Adenomyosis and hysterectomy
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Hi, I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was
Kimmi36
in
Endometriosis UK
3 months ago
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ivf and endometriosis: gender selection allowed?
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Hi, I’m at the stage where I’m thinking about getting a hysterectomy because I just can’t take the pain anymore. The only thing stopping me is children. However, I don’t think I could ever bring a baby girl into the world thinking she could grow up with this condition it would break my heart everyday
Wilderpeople24
in
Endometriosis UK
3 months ago
Decapeptyl injection and marina coil
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
vjhm
in
Endometriosis UK
3 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
3 months ago
Right side pelvic pain
Hi I was diagnosed with serous tubal interepitial carcinoma ( stic) in August 2022 after a hysterectomy...I then have an omenectomy and pelvic washouts in sept 2022 ...have been relatively well since but recently have right side pelvic pain every day ...anyone any ideas or suffered with anything similar
Hi I was diagnosed with serous tubal interepitial carcinoma ( stic) in August 2022 after a hysterectomy...I then have an omenectomy and pelvic washouts in sept 2022 ...have been relatively well since but recently have right side pelvic pain every day ...anyone any ideas or suffered with anything similar
Sharonmc73
in
My Ovacome
3 months ago
Could I have Endometriosis?
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
Hi, I was diagnosed with PCOS at 21 after years of horrific periods. I had the mirena coil fitted for 6 years. No periods, but did get random crippling pains throughout the month and spotting. Had the coil removed July 2022. For the first 6 months my periods were perfect. On time, one/two days of bleeding
HibiscusDream
in
Endometriosis UK
3 months ago
Coming off Prostap & Tibolone?
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Purple_Badgers
in
Endometriosis UK
3 months ago
Hysterectomy. Thanks and goodbye
I have been posting for about a year re my pelvic pain, as initially I was told it could be Endo and then Adenomyosis. I've had a misdiagnosis, when infact I have 4 fibroids in my uterus. The largest being 6cm. This was confirmed on mri but missed by laparoscopy. I am having to out a big complaint in
I have been posting for about a year re my pelvic pain, as initially I was told it could be Endo and then Adenomyosis. I've had a misdiagnosis, when infact I have 4 fibroids in my uterus. The largest being 6cm. This was confirmed on mri but missed by laparoscopy. I am having to out a big complaint in
Mindfullness4791
in
Endometriosis UK
3 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
4 months ago
Vaginal Tablets Estradiol
Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with multiple surgeries in the end and whilst I'm ok and pain free now, it's always in the back of my mind that the endo could come back. I've been prescribed
Hi I've been on Tibolone since having full hysterectomy 3 years ago, following severe and rapid growing endometriosis. I went through such an ordeal with multiple surgeries in the end and whilst I'm ok and pain free now, it's always in the back of my mind that the endo could come back. I've been prescribed
catsrule40
in
Endometriosis UK
4 months ago
Living hell
Anybody else on here feel like you are completely alone in this? I had the Marina Coil fitted last week, the whole process made me cry, scream in pain and I’ve been the same for over a week now. Agony, upset and unable to do any of my normal tasks. I am so fed up of feeling like this. It might be
Anybody else on here feel like you are completely alone in this? I had the Marina Coil fitted last week, the whole process made me cry, scream in pain and I’ve been the same for over a week now. Agony, upset and unable to do any of my normal tasks. I am so fed up of feeling like this. It might be
Lunaloo123
in
Endometriosis UK
4 months ago
Positive FIT test
Hi, as some of you may have seen in my previous posts, I have been suffering with slow transit colon the last 4 years. I had a hysterectomy back In April 23 for numerous fibrioids that they thought could be a culprit, when they did the surgery they found my uterus and bowel stuck together with endo and
Hi, as some of you may have seen in my previous posts, I have been suffering with slow transit colon the last 4 years. I had a hysterectomy back In April 23 for numerous fibrioids that they thought could be a culprit, when they did the surgery they found my uterus and bowel stuck together with endo and
Orchid99
in
IBS Network
4 months ago
endo cysts and swollen fallopian tubes
I have been diagnosed with endo cysts and a swollen fallopian tube via CT and ultrasound. they said in surgery pending how bad they may have to remove one of each (they are unsure until they do the lap) but my concern is that if they are bad, could I wake up to a full hysterectomy? And if so why? thank
I have been diagnosed with endo cysts and a swollen fallopian tube via CT and ultrasound. they said in surgery pending how bad they may have to remove one of each (they are unsure until they do the lap) but my concern is that if they are bad, could I wake up to a full hysterectomy? And if so why? thank
Dratini
in
Endometriosis UK
4 months ago
New Consultant-Different Plan
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Lassithi
in
Thyroid UK
4 months ago
At my wits end 😢
I am honestly in floods of tears writing this as I can't believe the way I have been treated. I have been bleeding now every day for the last few years. I have been put into chemical menopause several times which hasn't worked, I have had to fight, beg and plead for someone to help me. I have very
I am honestly in floods of tears writing this as I can't believe the way I have been treated. I have been bleeding now every day for the last few years. I have been put into chemical menopause several times which hasn't worked, I have had to fight, beg and plead for someone to help me. I have very
Bleedinglove
in
Endometriosis UK
4 months ago
MRI Results Help Please!
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
DarkStar85
in
Endometriosis UK
4 months ago
Hi all I’ve not been here for nearly 3 months time has disappeared recently. Last time here was the night before my surgery.
).
total
hysterectomy
bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma .
).
total
hysterectomy
bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma .
Deli44
in
My Ovacome
1 year ago
A bit late for me but...
A bit late for me as I am a woman who has just passed her 60 years milestone, but I wanted to share my experience anyway. I dont think it will be news to people on this forum though, so not sure if should be sharing it here. I had painful periods from day one and regularly ended up in Nurses room
A bit late for me as I am a woman who has just passed her 60 years milestone, but I wanted to share my experience anyway. I dont think it will be news to people on this forum though, so not sure if should be sharing it here. I had painful periods from day one and regularly ended up in Nurses room
Larscamp
in
The Endometriosis Foundation
4 months ago
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