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Steroids and weak bones
Do any of you have osteoporosis due to steriods?Started dupilimab in January - it works well enough to get me off prednisolone ( it has unpleasant side effects - it plays hell with my sinuses - sneezing coughing and headaches). I have asked for a dexa scan as it is around five years since my last and
Do any of you have osteoporosis due to steriods?Started dupilimab in January - it works well enough to get me off prednisolone ( it has unpleasant side effects - it plays hell with my sinuses - sneezing coughing and headaches). I have asked for a dexa scan as it is around five years since my last and
Madbiker1
in
Asthma Community Forum
1 year ago
Brain shrinking
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
Kw55
in
Encephalitis Society
1 year ago
Weaning steroids
Hello, thank you for having me. I don’t have PMRGC but I am experimenting with steroids for adrenal fatigue/insufficiency and just wanted to ask a question - I have been taking 25mg of steroids for 6 days: waking 10mg, noon 7.5mg, PM 5mg, bedtime 2.5mg I am nervous about developing adrenal shut
Hello, thank you for having me. I don’t have PMRGC but I am experimenting with steroids for adrenal fatigue/insufficiency and just wanted to ask a question - I have been taking 25mg of steroids for 6 days: waking 10mg, noon 7.5mg, PM 5mg, bedtime 2.5mg I am nervous about developing adrenal shut
Hidden
in
PMRGCAuk
1 year ago
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predetermined!
I thought my appointment would be with a rheumatologist consultant but it was the final 4pm slot last Thursday (ie day before bank holiday) and the staff on duty looked far from enthusiastic to see me. I started to doubt it would go well when I saw quite a few urine samples including mine chucked
I thought my appointment would be with a rheumatologist consultant but it was the final 4pm slot last Thursday (ie day before bank holiday) and the staff on duty looked far from enthusiastic to see me. I started to doubt it would go well when I saw quite a few urine samples including mine chucked
AnniesRyder5
in
PMRGCAuk
1 year ago
mistake with steroids
After recent ups and downs I was taking 15mg per day but I have not been feeling at all well for the past few days. My head has felt peculiar and I have been feeling disorientated. This morning when I was about to take my medication I noticed that I did not have any more 5mg tablets left and I'm pretty
After recent ups and downs I was taking 15mg per day but I have not been feeling at all well for the past few days. My head has felt peculiar and I have been feeling disorientated. This morning when I was about to take my medication I noticed that I did not have any more 5mg tablets left and I'm pretty
caftan
in
PMRGCAuk
1 year ago
spring Covid vaccine
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
Lclmlbls
in
PMRGCAuk
1 year ago
Evenity Treatment for Osteoporosis
Hi, thank you to the moderators, DorsetLady and PMRpro for their advice about reposting. I have been given the opportunity to use Evenity (romosozumab) Injection, which has been offered to me as I have severe Osteoporosis due to being on Steroids for PMR. I will be receiving my first set of medication
Hi, thank you to the moderators, DorsetLady and PMRpro for their advice about reposting. I have been given the opportunity to use Evenity (romosozumab) Injection, which has been offered to me as I have severe Osteoporosis due to being on Steroids for PMR. I will be receiving my first set of medication
Songbird6
in
PMRGCAuk
1 year ago
Steroids/treatments for Antiphospholipid syndrome (APS)?
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
Nenad
in
Fertility Network UK
1 year ago
Covid Antiviral eligibility
Positive covid test at 7pm Thursday and received antivirals at 5pm Friday! Well done NHS! Especially on a Bank Holiday! Wasn't sure if I was eligible this time as I'm only on 5mg Pred, having stopped my Methotrexate in November, but the lady who phoned me from the Covid Medicines Department said I
Positive covid test at 7pm Thursday and received antivirals at 5pm Friday! Well done NHS! Especially on a Bank Holiday! Wasn't sure if I was eligible this time as I'm only on 5mg Pred, having stopped my Methotrexate in November, but the lady who phoned me from the Covid Medicines Department said I
JanetRosslyn
in
PMRGCAuk
1 year ago
Senior lady bleeding after restarting HRT
Hi. This must seem a strange story. I have a history of severe endometriosis but I am now 75 and restarted HRT patches about six months ago for bone protection as I am on steroids. I had a 7 year break because my GP wanted me off HRT because of the research. I had no problems with HRT and wish I had
Hi. This must seem a strange story. I have a history of severe endometriosis but I am now 75 and restarted HRT patches about six months ago for bone protection as I am on steroids. I had a 7 year break because my GP wanted me off HRT because of the research. I had no problems with HRT and wish I had
Nightingales
in
Endometriosis UK
1 year ago
adrenals and cortisol
Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in first year, had cortisol blood test then synthac test May 21 which showed low cortisol have been on pred dose of between 5mg and 3mg for the last twelve months, just had cortisol blood test 9am Thursday by Thursday afternoon
Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in first year, had cortisol blood test then synthac test May 21 which showed low cortisol have been on pred dose of between 5mg and 3mg for the last twelve months, just had cortisol blood test 9am Thursday by Thursday afternoon
pog165g
in
PMRGCAuk
1 year ago
Hair thinning on steroids
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
YogaJM
in
PMRGCAuk
1 year ago
weak voice
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
Brookbond
in
The Roy Castle Lung Cancer Foundation
1 year ago
Pelvic pain may be entrapped nerves
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Sunrach
in
Pelvic Pain Support Network
11 months ago
Adrenal insufficiency or thyroid disease?
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hidden
in
Thyroid UK
1 year ago
Tapering strategy
I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to return in order to lower steroid dose (and come off it sooner) or will that just prolong PMR ? Just started treatment and not sure what to expect
I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to return in order to lower steroid dose (and come off it sooner) or will that just prolong PMR ? Just started treatment and not sure what to expect
Body_bonkers
in
PMRGCAuk
1 year ago
Possible CRPS?
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
Morganalefaye
in
Pain Concern
1 year ago
Covid rash from vaccine
As many of you may know I have since November suffered a terrible rash ,which has led to months of appointments at doctors and hospital plus anti and steroids both on skin and orally. Just had my appointment at the hospital where the dermatologist explained that I have vasculitis from covid. And in
As many of you may know I have since November suffered a terrible rash ,which has led to months of appointments at doctors and hospital plus anti and steroids both on skin and orally. Just had my appointment at the hospital where the dermatologist explained that I have vasculitis from covid. And in
cartwheels
in
CLL Support
1 year ago
Hi all. I have PMR and the steroids have made me diabetic and high BP.
MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE STAGE TWO KIDNEY DAMAGE. I AM NOW TAKING DOXIZOSIN 2MG . ANYONE ELSE HAD KIDNEY DAMAGE WITH CANDESARTIN ?
MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE STAGE TWO KIDNEY DAMAGE. I AM NOW TAKING DOXIZOSIN 2MG . ANYONE ELSE HAD KIDNEY DAMAGE WITH CANDESARTIN ?
eyeBRing
in
PMRGCAuk
1 year ago
Algae calcium supplements?
Looking for advice.Have the algae calcium increased your calcium level? What dose/brand do you take?If you also have thyroid problems has the iodine content affected your thyroid levels? I was diagnosed osteoporosis 3yrs ago trying to avoid medications as reacted to biphosphates. Prescribed Theical
Looking for advice.Have the algae calcium increased your calcium level? What dose/brand do you take?If you also have thyroid problems has the iodine content affected your thyroid levels? I was diagnosed osteoporosis 3yrs ago trying to avoid medications as reacted to biphosphates. Prescribed Theical
wightmouse
in
Bone Health and Osteoporosis UK
1 year ago
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