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Pluvicto works but at what cost
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
Beach18
in
Advanced Prostate Cancer
1 year ago
elevate ALT post transplant
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Bantam2
in
British Liver Trust
1 year ago
Diagnosed yesterday with GSA
Started with severe temple headaches on Sunday, lost eyesight for a couple of minutes. Doctor sent me to accident and emergency , diagnosed with GSA and put on 60mg steroids scans confirmed plus blockage of caratoid artery. Is going to be treated with medication not surgery due to my heart condition.Any
Started with severe temple headaches on Sunday, lost eyesight for a couple of minutes. Doctor sent me to accident and emergency , diagnosed with GSA and put on 60mg steroids scans confirmed plus blockage of caratoid artery. Is going to be treated with medication not surgery due to my heart condition.Any
Doublef
in
PMRGCAuk
1 year ago
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Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Oesteoporosis
Hi, I have had a number of illnesses since I turned 70 6 years ago. After finishing decorating my lounge, dining room and master bedroom myself and feeling great and happy with myself. For some reason which I cannot remember I went to the Dr to have a blood test. It may have been to do with I have
Hi, I have had a number of illnesses since I turned 70 6 years ago. After finishing decorating my lounge, dining room and master bedroom myself and feeling great and happy with myself. For some reason which I cannot remember I went to the Dr to have a blood test. It may have been to do with I have
Maxwell27
in
Women's Health
1 year ago
Asthma Appointment
So I went to see the nurse at my practice today because my asthma has flared up and although my chest is clear she's told me to finish my course of steroids because my peak flow is low (270 usually 450) and I'm tight chested and a little breathless and she's changed my steroid inhaler from Flutiform
So I went to see the nurse at my practice today because my asthma has flared up and although my chest is clear she's told me to finish my course of steroids because my peak flow is low (270 usually 450) and I'm tight chested and a little breathless and she's changed my steroid inhaler from Flutiform
Lilmix03
in
Asthma Community Forum
1 year ago
Hi GCA and polymyalgia
Hi, it took a while for me to be diagnosed with GCA. I had never heard of it before and it was February 2022. Once diagnosed and confirmed with a biopsy my treatment was good. I'm now on 5mg of steroids reducing by 1mg per month. Once diagnosed with this it seemed to trigger so many other things, polymyalgia
Hi, it took a while for me to be diagnosed with GCA. I had never heard of it before and it was February 2022. Once diagnosed and confirmed with a biopsy my treatment was good. I'm now on 5mg of steroids reducing by 1mg per month. Once diagnosed with this it seemed to trigger so many other things, polymyalgia
Strider68
in
PMRGCAuk
1 year ago
GSA attacks
I lost my eyesight and due to quick thinking by my doctor and emergency eye clinic it is back but have to take 10 months steroids to reduce immunity attacks on cells.and a possible operation on my blocked cartaratoid artery on Monday. Life is a bit scary at the moment
I lost my eyesight and due to quick thinking by my doctor and emergency eye clinic it is back but have to take 10 months steroids to reduce immunity attacks on cells.and a possible operation on my blocked cartaratoid artery on Monday. Life is a bit scary at the moment
Doublef
in
British Heart Foundation
1 year ago
Lupus Flareup
Hello everyone, haven't posted in a long while, I have a perpetual left deep left pelvic hip pain don't know if it's fibromyalgia or sciatic nerve. Recently I have been having headaches at the back of my neck and the wrist pains have shifted to my upper arms. How do I tackle this not a fan of steroids
Hello everyone, haven't posted in a long while, I have a perpetual left deep left pelvic hip pain don't know if it's fibromyalgia or sciatic nerve. Recently I have been having headaches at the back of my neck and the wrist pains have shifted to my upper arms. How do I tackle this not a fan of steroids
overdrive67
in
LUPUS UK
1 year ago
statins
I’m currently not taking statins. My GP has just called to say we’d like to put you on them, risk of stroke at 15% apparently and anyone over 10 should be treated. I politely said I felt I had enough going on drugwise, without adding another. anyone else any experience of how this would fit with steroids
I’m currently not taking statins. My GP has just called to say we’d like to put you on them, risk of stroke at 15% apparently and anyone over 10 should be treated. I politely said I felt I had enough going on drugwise, without adding another. anyone else any experience of how this would fit with steroids
Alazarin
in
PMRGCAuk
1 year ago
Members' Day talk on steroid side-effects in PMR and GCA: the lived experience day to day
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Fran_Benson
Partner
in
PMRGCAuk
1 year ago
Thank you
Soooo grateful to everyone who has responded to my post. I feel encouraged now to insist on steroids if there is any question when I see the rheumatologist on Thursday. I will absolutely continue to follow these feeds and will report back my (hopefully) progress. This is the most positive I have felt
Soooo grateful to everyone who has responded to my post. I feel encouraged now to insist on steroids if there is any question when I see the rheumatologist on Thursday. I will absolutely continue to follow these feeds and will report back my (hopefully) progress. This is the most positive I have felt
Nanatoo
in
PMRGCAuk
1 year ago
weaning off Pred
Hi I’m being weaned off my steroids , by direction of the rheumatologist. I was on 45mg a day after being on iv steroids for suspected GCA . And now down 35mg a day for 7 days , then 30mg a day for 7 days and so forth . Til off them . But the last few days been getting pain in right arm , shoulder
Hi I’m being weaned off my steroids , by direction of the rheumatologist. I was on 45mg a day after being on iv steroids for suspected GCA . And now down 35mg a day for 7 days , then 30mg a day for 7 days and so forth . Til off them . But the last few days been getting pain in right arm , shoulder
TedTheMaineCoon
in
PMRGCAuk
1 year ago
hoping
I saw my GP 5 weeks ago as I had been having terrible pains and stiffness since Christmas. A friend at my bowls club said it sounded like pmr which she also suffers from and told me to get it checked out. GP was pretty convinced I have pmr but blood test proved inconclusive so referred me to a rheumatologist
I saw my GP 5 weeks ago as I had been having terrible pains and stiffness since Christmas. A friend at my bowls club said it sounded like pmr which she also suffers from and told me to get it checked out. GP was pretty convinced I have pmr but blood test proved inconclusive so referred me to a rheumatologist
Nanatoo
in
PMRGCAuk
1 year ago
Hearing Loss
I was diagnosed begining of May for GCA and put on 30mg of Steroids. Been told the inflammation has gone right down and to taper fortnightly down to 25mg and then 20mg etc I am having problems with hearing sounds like I am under water all the time and my voice is Hoarse sometimes I can only whisper
I was diagnosed begining of May for GCA and put on 30mg of Steroids. Been told the inflammation has gone right down and to taper fortnightly down to 25mg and then 20mg etc I am having problems with hearing sounds like I am under water all the time and my voice is Hoarse sometimes I can only whisper
TrumpetPlayer
in
PMRGCAuk
1 year ago
Lumbosacral Plexopathy Continues
I had my second appointment with the Neurologist this morning. I explained the issues I was still having and he's recommended that I go on some steroids to help settle the inflammation. I was a little bit unsure about taking them but on thinking about it, I can't live like I am so stuff it. I'll take
I had my second appointment with the Neurologist this morning. I explained the issues I was still having and he's recommended that I go on some steroids to help settle the inflammation. I was a little bit unsure about taking them but on thinking about it, I can't live like I am so stuff it. I'll take
Viklou
in
Pain Concern
1 year ago
bronchiectasis
I am newly diagnosed after a year of pink/brown sputum on occasions early in the morning,I was told it was a side effect of ramipril,Now it appears to be Bronchiectasis, This week I have been given 5days of steroids,Amoxicillin for 14 days and Carbocisteine 4 a day indefinitely, I am at a loss as
I am newly diagnosed after a year of pink/brown sputum on occasions early in the morning,I was told it was a side effect of ramipril,Now it appears to be Bronchiectasis, This week I have been given 5days of steroids,Amoxicillin for 14 days and Carbocisteine 4 a day indefinitely, I am at a loss as
Manicrose
in
Lung Conditions Community Forum
1 year ago
Does GCA Recur ?
Hello .I was diagnosed in December 2017 with GCA with a positive biopsy. After taking Prednisone only, and a few minor flares, I have slowly tapered down and as of June 29th 2023 am now off of the steroids. My question is, does GCA return, and if so, at what percentage? Thank you so very much for
Hello .I was diagnosed in December 2017 with GCA with a positive biopsy. After taking Prednisone only, and a few minor flares, I have slowly tapered down and as of June 29th 2023 am now off of the steroids. My question is, does GCA return, and if so, at what percentage? Thank you so very much for
Abbeys
in
PMRGCAuk
1 year ago
my egfr jumped
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
tresa56
in
Kidney Disease
10 months ago
osteoporosis and spinal fractures
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
Hello, I have been a member on health unlocked forums for many years due to other health conditions. I joined this bone health forum last year 2022, following three fractures out of the blue. (The first whilst cleaning my teeth and coughing) this was last February 14, happy Valentine’s Day lol 😂
jessielou
in
Bone Health and Osteoporosis UK
1 year ago
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