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Progression
I was first diagnosed 13 years ago but had no symptons and stayed that way for 6 - 7 years before my breathlessness slowly increased. I was already on meds for hypertension and hypothyroidism but also had a shoulder inflammation, poly myalgia rheumatica, [PMR] which started me on steroids, I managed
I was first diagnosed 13 years ago but had no symptons and stayed that way for 6 - 7 years before my breathlessness slowly increased. I was already on meds for hypertension and hypothyroidism but also had a shoulder inflammation, poly myalgia rheumatica, [PMR] which started me on steroids, I managed
grahame151
in
COPD Friends
8 months ago
slightly anxious and just looking for moral support
Hoping you all had a good Christmas. Mine has been a bit rough as the whole family has been unwell including me with this cold/throat bug that is going around. It didn’t go to my chest this year, thankfully and I was recovering okay when I noticed my throat and ears started hurting again and my mouth
Hoping you all had a good Christmas. Mine has been a bit rough as the whole family has been unwell including me with this cold/throat bug that is going around. It didn’t go to my chest this year, thankfully and I was recovering okay when I noticed my throat and ears started hurting again and my mouth
Abcd123455
in
PMRGCAuk
8 months ago
dealing with Norovirus
Friends visited us yesterday however they had had grandchildren and son and daughter in law staying with them. Son had been up the night before they visited us with sickness and diarrohea and his little son had also been sick. They were ok however and came to us for lunch, however we were very careful
Friends visited us yesterday however they had had grandchildren and son and daughter in law staying with them. Son had been up the night before they visited us with sickness and diarrohea and his little son had also been sick. They were ok however and came to us for lunch, however we were very careful
bonio
in
PMRGCAuk
8 months ago
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Steroids and blood-sugar...
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
Hidden
in
PMRGCAuk
8 months ago
GCA Concerns, Cold and Eyes
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
Lenore58
in
PMRGCAuk
8 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
8 months ago
Coughing again ...
Hi all - I posted here in early December after a trip to India set my asthma off because of the dreadful pollution. I saw a fabulous doctor who threw everything at me - nebulizer, antibiotics, steroids, Omeprazole, cough medicine and an antihistamine - which calmed it all down. He did say he couldn't
Hi all - I posted here in early December after a trip to India set my asthma off because of the dreadful pollution. I saw a fabulous doctor who threw everything at me - nebulizer, antibiotics, steroids, Omeprazole, cough medicine and an antihistamine - which calmed it all down. He did say he couldn't
Padders
in
Asthma Community Forum
8 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
8 months ago
Asthma not well controlled
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
Lilmix03
in
Asthma Community Forum
8 months ago
Steroid dependency? Tapering problems.
Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pred for last couple of years but unable to reduce as symptoms return at less. I eventually paid for a referral to rheumatologist who has just siad i no longer have pmr but steroid dependency where dropping can have similar
Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pred for last couple of years but unable to reduce as symptoms return at less. I eventually paid for a referral to rheumatologist who has just siad i no longer have pmr but steroid dependency where dropping can have similar
Enemyofthestate
in
PMRGCAuk
8 months ago
Post covid asthma diagnoses
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
ButterflyPurple
in
Asthma Community Forum
8 months ago
Lung crackles
I keep getting lung crackles and wheezing at the end of respiratory infections and needing steroids . The GP isn't interested and I always end up in A and E , given a nebuliser and a course is steroids to take home. My regular inhaler Fostair contains steroids but appears to be useless when I am.having
I keep getting lung crackles and wheezing at the end of respiratory infections and needing steroids . The GP isn't interested and I always end up in A and E , given a nebuliser and a course is steroids to take home. My regular inhaler Fostair contains steroids but appears to be useless when I am.having
Vegetablelover
in
Asthma Community Forum
8 months ago
What next ?
Sorry for the long post . Just got negative test from 8th transfer . Did steroids , clexane inj, pio injection and intralipids extra this time . 8th transfer from 4 ivf cycles . Anything else missing . I did have positives before , pregnancy nvr lasted more than 20 weeks . Had miscarriages, chemical
Sorry for the long post . Just got negative test from 8th transfer . Did steroids , clexane inj, pio injection and intralipids extra this time . 8th transfer from 4 ivf cycles . Anything else missing . I did have positives before , pregnancy nvr lasted more than 20 weeks . Had miscarriages, chemical
Babyhope8
in
Fertility Network UK
8 months ago
Merry Christmas
Merry Christmas! Have a wonderful day, filled with joy & carbs!! And a few steroids to keep you going!! S xx
Merry Christmas! Have a wonderful day, filled with joy & carbs!! And a few steroids to keep you going!! S xx
Pixix
in
PMRGCAuk
8 months ago
TINGLY FEET
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Wallydb
in
PMRGCAuk
5 months ago
good news and bad all in 1 week
The good news my Rhumy told me my GCA is in remission, My Endo told me my adrenal glands were shot so got to stay on steroids for rest of my life, Then my Neurologist diagnosed me with cluster headaches no cure just more bloody pills and injections and a great big oxygen bottle in the house just to cheer
The good news my Rhumy told me my GCA is in remission, My Endo told me my adrenal glands were shot so got to stay on steroids for rest of my life, Then my Neurologist diagnosed me with cluster headaches no cure just more bloody pills and injections and a great big oxygen bottle in the house just to cheer
pog165g
in
PMRGCAuk
8 months ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
8 months ago
brand new diagnosis
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
ematthews81
in
C3 Glomerulopathy
8 months ago
Leukoplakia, is it autoimmune?
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
Wheelygood99
in
PMRGCAuk
8 months ago
Ibs/ acid reflux what to take with steroids
hi I suffer from episodes of IBS , in my worst times it wakes me up in the night , dry acid feeling in mouth n stomach cramps I’m taking lanzoprolene 15mg daily and currently in 3mg of steroids , taken steroids now for 3 1/2 years is there anything you any other fellow sufferers of IBS would recommend
hi I suffer from episodes of IBS , in my worst times it wakes me up in the night , dry acid feeling in mouth n stomach cramps I’m taking lanzoprolene 15mg daily and currently in 3mg of steroids , taken steroids now for 3 1/2 years is there anything you any other fellow sufferers of IBS would recommend
maxistar
in
PMRGCAuk
8 months ago
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