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Further Update After Flare
So.....bit of an update.....having had a dip in symptoms a couple of weeks after dropping from 12.5mg to 10mg of steroids I finally took the advice to bump back up from 10mg to 15mg in a bid to clear up whatever inflammation build up there is in my body having clearly gone too low too quickly...... Bit
So.....bit of an update.....having had a dip in symptoms a couple of weeks after dropping from 12.5mg to 10mg of steroids I finally took the advice to bump back up from 10mg to 15mg in a bid to clear up whatever inflammation build up there is in my body having clearly gone too low too quickly...... Bit
Paulx222
in
PMRGCAuk
4 months ago
Does this look like lupus
My daughter gets really bad skin particularly on hands and arms. Mum has sle and the rash goes with oral steroids. Any thoughts please
My daughter gets really bad skin particularly on hands and arms. Mum has sle and the rash goes with oral steroids. Any thoughts please
jimbo1605
in
LUPUS UK
4 months ago
Steroids
I posted a few months ago about my wife's breathing problems. This is an update.Wife age 64 diagnosed with sle six years ago. She is currently on hydroxy, azathioprine and lots of steroids up to 40 mg. In the last six months she had a ruptured calf muscle, 3 spine fractures and severe breathing problems
I posted a few months ago about my wife's breathing problems. This is an update.Wife age 64 diagnosed with sle six years ago. She is currently on hydroxy, azathioprine and lots of steroids up to 40 mg. In the last six months she had a ruptured calf muscle, 3 spine fractures and severe breathing problems
jimbo1605
in
LUPUS UK
4 months ago
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Fingers crossed
One whole week off the steroids! Been very slow tapering and now stopped and feel fine. Steroids had masked an no doubt exacerbated arthritis knees etc. but hoping all okay. Told to start tapering methotrexate in 3 weeks by 5mg per month.
One whole week off the steroids! Been very slow tapering and now stopped and feel fine. Steroids had masked an no doubt exacerbated arthritis knees etc. but hoping all okay. Told to start tapering methotrexate in 3 weeks by 5mg per month.
Abbey17
in
PMRGCAuk
4 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
4 months ago
A thank you to this site
This morning I came across an old notebook that recorded the first few months of my PMR journey. I was diagnosed in late January 2015. I resisted steroids for almost 6 months and worked on diet and alternative treatments. Eventually I realised that steroids were the only route! Reading through my notes
This morning I came across an old notebook that recorded the first few months of my PMR journey. I was diagnosed in late January 2015. I resisted steroids for almost 6 months and worked on diet and alternative treatments. Eventually I realised that steroids were the only route! Reading through my notes
Irldino
in
PMRGCAuk
4 months ago
polymiagle 1943
i am not very good with this site. as I cant seem to find my way around i couldn't find replies to my last post. so just look at post written in by other members. hoping they may answer my worries. I wrote a post a few months ago when PMR came back as a flare up. This time my G.P. put me on 30m
i am not very good with this site. as I cant seem to find my way around i couldn't find replies to my last post. so just look at post written in by other members. hoping they may answer my worries. I wrote a post a few months ago when PMR came back as a flare up. This time my G.P. put me on 30m
Polymiagle1943
in
PMRGCAuk
4 months ago
Suboptimal Cortisol levels following Synacthen test
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
Heucera1
in
PMRGCAuk
4 months ago
Am I overdoing it?
Started my PMR journey in May 2023. Diagnosed with PMR, then in July was told my bloods didn't confirm this so advised rapid taper. Symptoms returned very quickly. End of July back on steroids 15mg. I’ve been tapering very successfully since then and am now down to 4.5mg (tapering 0.5mg every 2 weeks
Started my PMR journey in May 2023. Diagnosed with PMR, then in July was told my bloods didn't confirm this so advised rapid taper. Symptoms returned very quickly. End of July back on steroids 15mg. I’ve been tapering very successfully since then and am now down to 4.5mg (tapering 0.5mg every 2 weeks
RedRum1968
in
PMRGCAuk
4 months ago
is it back again?
I’ve been off prednisolone for almost a year now and I’m really, really stiff in the mornings and I literally hobble out of bed. During the night I wake several times with throbbing pain deep in my leg muscles and also sometimes in my arms. I feel as if it sometimes spirals round my groin and legs so
I’ve been off prednisolone for almost a year now and I’m really, really stiff in the mornings and I literally hobble out of bed. During the night I wake several times with throbbing pain deep in my leg muscles and also sometimes in my arms. I feel as if it sometimes spirals round my groin and legs so
Tayzee
in
PMRGCAuk
4 months ago
Prickly Cuties
Hello everyoneJust popping in to show you these three cuties being lovingly cared for by a Hedgehog Rescue Centre. They've had record numbers of hedgehogs due to them coming out of hibernation too early thanx to climate change. I hope your all coping with the long waits for assessments and treatments
Hello everyoneJust popping in to show you these three cuties being lovingly cared for by a Hedgehog Rescue Centre. They've had record numbers of hedgehogs due to them coming out of hibernation too early thanx to climate change. I hope your all coping with the long waits for assessments and treatments
misty14
in
LUPUS UK
4 months ago
Chemo and diabetes
Does anyone have raised blood sugar levels as a result of taking steroids for chemotherapy? My doctor has increased my medication but my levels are still high. I wondered whether there's anything else that might help eg a particular diet. Thanks.
Does anyone have raised blood sugar levels as a result of taking steroids for chemotherapy? My doctor has increased my medication but my levels are still high. I wondered whether there's anything else that might help eg a particular diet. Thanks.
Swimbuddy
in
My Ovacome
4 months ago
Recovering after hospital stay
I’m wondering if anyone can tell me what to expect next. I had Covid at the end of January. I felt very flu like for a couple of days then okay for a few days. After that I got a cold and a chesty cough. The cough was only occasional. At the end of last week I started to feel flu like again. I decided
I’m wondering if anyone can tell me what to expect next. I had Covid at the end of January. I felt very flu like for a couple of days then okay for a few days. After that I got a cold and a chesty cough. The cough was only occasional. At the end of last week I started to feel flu like again. I decided
AppleOrchard
in
Asthma Community Forum
4 months ago
Transplant Route
Hi everyone. I was diagnosed with primary MF 9 years ago and have been relatively well managed on Ruxolitinib for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now. My spleen has enlarged again and I have been put on a reduced dose of Ruxolitinib
Hi everyone. I was diagnosed with primary MF 9 years ago and have been relatively well managed on Ruxolitinib for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now. My spleen has enlarged again and I have been put on a reduced dose of Ruxolitinib
Cazbolac
in
MPN Voice
5 months ago
eosinophils, cough, alopecia
My health issue started first with alopecia back April 2021 when I noticed my mustache having a patch spot. Than slowly it spread all over mustache and beard towards Sept 2022. During that same time, I noticed hair start falling in clusters. Did not fall entirely but called diffuse alopecia. However
My health issue started first with alopecia back April 2021 when I noticed my mustache having a patch spot. Than slowly it spread all over mustache and beard towards Sept 2022. During that same time, I noticed hair start falling in clusters. Did not fall entirely but called diffuse alopecia. However
Ashlander
in
Living with Asthma
5 months ago
Dear Friends This is Mom asking
Hey you all ! I am a foremost a _MOM_ poster. This is the start of my post but not sure what to do or ask. Please help me and provide inputs on how to navigate with this unknown area-abyss of information. My story below. The start...My son did not get a seizure but somehow he got a cramp/crunth like
Hey you all ! I am a foremost a _MOM_ poster. This is the start of my post but not sure what to do or ask. Please help me and provide inputs on how to navigate with this unknown area-abyss of information. My story below. The start...My son did not get a seizure but somehow he got a cramp/crunth like
Haku949
in
My MSAA Community
5 months ago
Steroids for digital ulcer
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
Crookedfinger
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Bile duct dilation due to steroids
Please can anyone tell me if this can happen with use of steroids. I went to A and E with chest pain, since been diagnosed with hiatus hernia the very latest in the long line of issues. they did a CT scan and came back with nothing other than Intra and extrahepatic bile duct dilation with no cause
Please can anyone tell me if this can happen with use of steroids. I went to A and E with chest pain, since been diagnosed with hiatus hernia the very latest in the long line of issues. they did a CT scan and came back with nothing other than Intra and extrahepatic bile duct dilation with no cause
gillsky8
in
PMRGCAuk
5 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
Steroids- dosage
Hi all, I'm just prepping for my 8th transfer after lots of failures and losses. I have had an intralipid infusion today, transfer on Saturday. I have been prescribed steroids (prednisolone) but only 10mg and not for long. For those who were successful, what was your dosage and for how many weeks please
Hi all, I'm just prepping for my 8th transfer after lots of failures and losses. I have had an intralipid infusion today, transfer on Saturday. I have been prescribed steroids (prednisolone) but only 10mg and not for long. For those who were successful, what was your dosage and for how many weeks please
hoping_for_our_time
in
Fertility Network UK
5 months ago
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