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I8Steroids..
If steroids are bad for treating flare-ups, what about the steroids used in ocrevus? I've had 9 ocrevus infusions...what do I use for a relapse or flare-up? My neuro is not on the steroid bandwagon to stop a relapse because of the damage to bones.. this is a lose-lose situation.
If steroids are bad for treating flare-ups, what about the steroids used in ocrevus? I've had 9 ocrevus infusions...what do I use for a relapse or flare-up? My neuro is not on the steroid bandwagon to stop a relapse because of the damage to bones.. this is a lose-lose situation.
FightingMyEvilTwin
in
My MSAA Community
4 months ago
Advice on PMR for lawyer
Help needed please! I am in the middle of a very stressful divorce from an incredibly abusive husband. In the latest batch of legal documents, my husband is challenging my PMR diagnosis and everything that goes with it and my lawyer has asked for me to comment on this. As background, I was diagnosed
Help needed please! I am in the middle of a very stressful divorce from an incredibly abusive husband. In the latest batch of legal documents, my husband is challenging my PMR diagnosis and everything that goes with it and my lawyer has asked for me to comment on this. As background, I was diagnosed
Andypan
in
PMRGCAuk
4 months ago
steroid management in nursing home
mum is now in a good nursing home - but we are having real issues with her prednisolone and in particular sick day rules. GP is ok ish - but wants to be asked every time they need to change the dose…..I’ve had to push for double dosing twice for diarrhoea and am now constantly angst as to what might
mum is now in a good nursing home - but we are having real issues with her prednisolone and in particular sick day rules. GP is ok ish - but wants to be asked every time they need to change the dose…..I’ve had to push for double dosing twice for diarrhoea and am now constantly angst as to what might
RT18
in
PMRGCAuk
4 months ago
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Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
4 months ago
PMRGCAuk members' magazine is on the way (spring 24 edition)
Spring NewsWire is on its way out to members this week. Do look out for your postal or digital copy. If you haven't received your digital copy by Friday 12th or your postal copy by Friday 19th, do email us. (Do check your junk/spam email first in case it's gone in there.) There's lots of information
Spring NewsWire is on its way out to members this week. Do look out for your postal or digital copy. If you haven't received your digital copy by Friday 12th or your postal copy by Friday 19th, do email us. (Do check your junk/spam email first in case it's gone in there.) There's lots of information
Fran_Benson
Partner
in
PMRGCAuk
4 months ago
Short Pulse disease of steroid and A fib
Good morning from NY Hope all is well for everyone. Background : 67 yrs old A fib diagnosed 13 years ago . Only on rate control beta blocker. Metoprolol 50mg bid. Last captured/documented episode 11 years ago. Also have generalized anxiety disorder not on meds : meditation, breathing and use tools
Good morning from NY Hope all is well for everyone. Background : 67 yrs old A fib diagnosed 13 years ago . Only on rate control beta blocker. Metoprolol 50mg bid. Last captured/documented episode 11 years ago. Also have generalized anxiety disorder not on meds : meditation, breathing and use tools
Aegean56
in
Atrial Fibrillation Support
4 months ago
Functional medicine
Hi All, my second post in 24hrs - sorry - but lots of questions as just recently diagnosed with Sjorgen's and likely PMR. I've been on steroids about 5 weeks and finding them quite tricky - a rollercoaster ride with no easy exit! Just reading about Functional Medicine and testing for root cause of inflammation
Hi All, my second post in 24hrs - sorry - but lots of questions as just recently diagnosed with Sjorgen's and likely PMR. I've been on steroids about 5 weeks and finding them quite tricky - a rollercoaster ride with no easy exit! Just reading about Functional Medicine and testing for root cause of inflammation
Hidden
in
PMRGCAuk
4 months ago
Am I on enough thyroid medication for my weight
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
posthinking01
in
Thyroid UK
4 months ago
silent reflux?
I’ve recently been told by my respiratory consultant that I have silent reflux. Does anyone know much about this? I’m on lanzoporole along with flec and dilitzum. I have PAF and in the last year my life long asthma has deteriorated to now be severe. I was very ill over the winter with 3.5 months off
I’ve recently been told by my respiratory consultant that I have silent reflux. Does anyone know much about this? I’m on lanzoporole along with flec and dilitzum. I have PAF and in the last year my life long asthma has deteriorated to now be severe. I was very ill over the winter with 3.5 months off
LKUK
in
Atrial Fibrillation Support
4 months ago
hip stiffness
I was finally diagnosed with PMR in July last year although I’d had all the symptoms for over 6 months. I was prescribed 20 mg prednisolone as a starting point and have tapered to 12mg. Probably should have stayed on 13mg until after our holiday as after 5/6 days I am getting aches and stiffness in
I was finally diagnosed with PMR in July last year although I’d had all the symptoms for over 6 months. I was prescribed 20 mg prednisolone as a starting point and have tapered to 12mg. Probably should have stayed on 13mg until after our holiday as after 5/6 days I am getting aches and stiffness in
Nanatoo
in
PMRGCAuk
4 months ago
Persistant cough
hi everyone I haven’t posted for a while it was about my persistant cough. I now have had this cough for over a year now it has gradually got worse over the past few months. Coughing day and night. People come up to me in the street becauthey think I’m choking. My GP has treated me with antibiotics and
hi everyone I haven’t posted for a while it was about my persistant cough. I now have had this cough for over a year now it has gradually got worse over the past few months. Coughing day and night. People come up to me in the street becauthey think I’m choking. My GP has treated me with antibiotics and
Mudmaker
in
MPN Voice
4 months ago
calcium supplement
Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium supplement being prescribed for some friends (female). Is that something everyone on steroids should be taking?
Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium supplement being prescribed for some friends (female). Is that something everyone on steroids should be taking?
Winckle
in
PMRGCAuk
4 months ago
Need advice please
Hi to all you COPD sufferercarers. Could anyone advise me where to get information please? My lovely 83 years old wife was diagnosed as having COPD in January 2022 when in hospital with double pneumonia. At that time she recovered and discharged with 2 inhalers and no advice on how to cope with this
Hi to all you COPD sufferercarers. Could anyone advise me where to get information please? My lovely 83 years old wife was diagnosed as having COPD in January 2022 when in hospital with double pneumonia. At that time she recovered and discharged with 2 inhalers and no advice on how to cope with this
Polesworth1940
in
Lung Conditions Community Forum
4 months ago
steroids
can I take cod liver oil capsules with steroids
can I take cod liver oil capsules with steroids
Wesie59
in
PMRGCAuk
5 months ago
Tapering Regime while on Kevzara (or other biologic)
I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six). I am grateful I was allowed to try Kevzara after 9 years on prednisone and never being able to get below 5 mg without a flare amongst other reasons. I have tried to look up the tapering regime for attempting a taper with
I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six). I am grateful I was allowed to try Kevzara after 9 years on prednisone and never being able to get below 5 mg without a flare amongst other reasons. I have tried to look up the tapering regime for attempting a taper with
artfingers
in
PMRGCAuk
5 months ago
Head MRI
I'll be honest and say I'm not sure I have MS at the minute but I've popped onto this group for support just in case. I'm not in the states and the UK system is probably different but I'm currently under a Neurologist for another nerve condition called Idiopathic lumbosacral plexopathy believed to be
I'll be honest and say I'm not sure I have MS at the minute but I've popped onto this group for support just in case. I'm not in the states and the UK system is probably different but I'm currently under a Neurologist for another nerve condition called Idiopathic lumbosacral plexopathy believed to be
Viklou
in
My MSAA Community
5 months ago
Help needed
Hi everyone, I've been lurking this forum for some time and thought I'd share my story. I am a 35 year old male; around 5 years ago I noticed muscle loss in my quadriceps and neck. I was worried and saw a neurologist. Various tests have been done. MRIs - All came back normal. EMGs - All came back
Hi everyone, I've been lurking this forum for some time and thought I'd share my story. I am a 35 year old male; around 5 years ago I noticed muscle loss in my quadriceps and neck. I was worried and saw a neurologist. Various tests have been done. MRIs - All came back normal. EMGs - All came back
Frost111
in
Myositis UK
5 months ago
Low enough pred to get low cortisol symptoms?
I feel rotten. Am on 6 mgs prednisolone— 4 in am, 2 at night. Bad fatigue esp in early afternoon, resulting in need to nap, shoulders and legs feel weak, no stamina. Losing weight, poor appetite. Besides PMR, have diabetes 2 and a pinched nerve in lower back that means right buttock pain. (getting
I feel rotten. Am on 6 mgs prednisolone— 4 in am, 2 at night. Bad fatigue esp in early afternoon, resulting in need to nap, shoulders and legs feel weak, no stamina. Losing weight, poor appetite. Besides PMR, have diabetes 2 and a pinched nerve in lower back that means right buttock pain. (getting
Merryfield
in
PMRGCAuk
5 months ago
Wound healing and Steroid Use
I have been on Prednisone for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara. I have noticed that when I get a small cut or skin abrasion (which is more frequent since my skin is thinner with steroid use) It gets very red and takes a long
I have been on Prednisone for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara. I have noticed that when I get a small cut or skin abrasion (which is more frequent since my skin is thinner with steroid use) It gets very red and takes a long
lovemylife23
in
PMRGCAuk
5 months ago
Not many embryos - should I undergo reproductive immunology testing?
Hi all, After getting a whopping 32 eggs at egg collection last week, we are down to three day 5 embryos at blastocyst stage. There are a few still developing that my clinic wants to see if they develop into day 6 blasts - but am feeling quite shocked at how huge our drop-off has been. We are sending
Hi all, After getting a whopping 32 eggs at egg collection last week, we are down to three day 5 embryos at blastocyst stage. There are a few still developing that my clinic wants to see if they develop into day 6 blasts - but am feeling quite shocked at how huge our drop-off has been. We are sending
orangecatmum
in
Fertility Network UK
5 months ago
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