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Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken from March to get this far but the test is still late January. I have felt from May last year my muscles are wasting away? I built a log cabin garage in 2016 on my own but now find it difficult to lift things much lighter
Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken from March to get this far but the test is still late January. I have felt from May last year my muscles are wasting away? I built a log cabin garage in 2016 on my own but now find it difficult to lift things much lighter
djl45
in
Charcot-Marie-Tooth UK
6 years ago
So-called 'Palliative Care' is not all it's cracked up to be.
Morphine, Fentanyl, Ordine, Endone, and Panadol had absolutely no effect in reducing the pain of a
tooth
extraction
which had me in a hospital bed for a week. The morphine dosages were usually 10mg, but on a couple of occasions it was 20mg ~ with zero effect.
Morphine, Fentanyl, Ordine, Endone, and Panadol had absolutely no effect in reducing the pain of a
tooth
extraction
which had me in a hospital bed for a week. The morphine dosages were usually 10mg, but on a couple of occasions it was 20mg ~ with zero effect.
Herbertt
in
Pain Concern
7 years ago
ESA Medical Assessment
Hi, My name is Jenny and I have CMT1 and for the last 4 months I have been signed off with stress and anxiety which pushed me to hand in my notice at work.I have been claiming ESA due to advice from my GP and also Citizens Advice. Tomorrow I have a Medical Assessment appointment to go to and frankly
Hi, My name is Jenny and I have CMT1 and for the last 4 months I have been signed off with stress and anxiety which pushed me to hand in my notice at work.I have been claiming ESA due to advice from my GP and also Citizens Advice. Tomorrow I have a Medical Assessment appointment to go to and frankly
Jeffer123
in
Charcot-Marie-Tooth UK
6 years ago
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Congenital cervical stenosis
Had a bad fall 12 months ago. Sever pain in shoulder and down left arm. Was diagnosed with fractured scapula. As time went on, pain continued to come and go depending on my activity. Then the tingling and numbness started down that arm into my thumb and index finger. GP ordered mri. Inpression: high-
Had a bad fall 12 months ago. Sever pain in shoulder and down left arm. Was diagnosed with fractured scapula. As time went on, pain continued to come and go depending on my activity. Then the tingling and numbness started down that arm into my thumb and index finger. GP ordered mri. Inpression: high-
Belkne
in
Cervical Myelopathy
7 years ago
Tooth Extraction on Apixaban
Just wondering what advice others have had regarding Apixaban and
tooth
extraction
. Four days does seem OTT. And it's not long since he actually had a stroke! So really not keen to have him off it for so long unless it's really necessary. Many thanks Koll
Just wondering what advice others have had regarding Apixaban and
tooth
extraction
. Four days does seem OTT. And it's not long since he actually had a stroke! So really not keen to have him off it for so long unless it's really necessary. Many thanks Koll
Hidden
in
AF Association
7 years ago
verapamil
Jeannie if you read this post, I hope you are still in NSR after your
tooth
extraction
! xx Thanks, Trish
Jeannie if you read this post, I hope you are still in NSR after your
tooth
extraction
! xx Thanks, Trish
Trish5
in
Atrial Fibrillation Support
7 years ago
Hybrid ablation part 2
I am part of a clinical trial to judge the outcomes of a mini maze procedure followed by a catheter ablation compared to two catheter ablations. I had been in persistent AF since Feb 2016, give or take a few weeks after cardioversion. I had the mini maze on April 6th. Since then I have been predominantly
I am part of a clinical trial to judge the outcomes of a mini maze procedure followed by a catheter ablation compared to two catheter ablations. I had been in persistent AF since Feb 2016, give or take a few weeks after cardioversion. I had the mini maze on April 6th. Since then I have been predominantly
johnMiosh
in
Atrial Fibrillation Support
7 years ago
plantar atrophy
for quit some time i have had very bad pain in my bottom of my foot at the back of my foot i have felt my foot on the bottom at the back and it feels like there is no padding there saw my doctor told i have plantar atrophy it is very painfull .any one else have this please ,
for quit some time i have had very bad pain in my bottom of my foot at the back of my foot i have felt my foot on the bottom at the back and it feels like there is no padding there saw my doctor told i have plantar atrophy it is very painfull .any one else have this please ,
mason
in
Charcot-Marie-Tooth UK
7 years ago
Apixaban and tooth extraction
I had a filling at the dentist last week as I had broken a piece of my tooth. Dentist said If it didn't work I might need a crown or tooth out, it is my back tooth. He also said if I needed to get it out I would need to go to hospital for the extraction because of Apixaban. Over the weekend it has
I had a filling at the dentist last week as I had broken a piece of my tooth. Dentist said If it didn't work I might need a crown or tooth out, it is my back tooth. He also said if I needed to get it out I would need to go to hospital for the extraction because of Apixaban. Over the weekend it has
gemsmum
in
AF Association
7 years ago
Exhaustion after tooth extraction
I had a molar extracted under local anaesthetic after I got an infection which was draining via a gym fistula. Not pleasant but no pain and no antibiotics needed. Had the infection for about a month as wasn't classed as dental emergency. The extraction wasn't complicated and it looks like the gum is
I had a molar extracted under local anaesthetic after I got an infection which was draining via a gym fistula. Not pleasant but no pain and no antibiotics needed. Had the infection for about a month as wasn't classed as dental emergency. The extraction wasn't complicated and it looks like the gum is
salsapixie
in
Thyroid UK
7 years ago
JOINT PROBLEMS and CMT
I have had CMT for most of my adult life but was only diagnosed when I was in my late 40's. I am now 64. Doctors in South Africa don't seem to know much about this disease. All my joints seem to have been affected and I was wondering if there is anyone who has a similar problem. I had a total hip
I have had CMT for most of my adult life but was only diagnosed when I was in my late 40's. I am now 64. Doctors in South Africa don't seem to know much about this disease. All my joints seem to have been affected and I was wondering if there is anyone who has a similar problem. I had a total hip
Marlenesmith
in
Charcot-Marie-Tooth UK
7 years ago
Vitreomacular traction
Hi all, after a few health issues at the beginning of the year, one of the diagnosis was vitreomacular traction in my left eye & dry eye in my right. I was offered either to be put on the list for an op or to wait for 6 months in the hope the VMT corrected itself, I decided to wait & cross my fingers
Hi all, after a few health issues at the beginning of the year, one of the diagnosis was vitreomacular traction in my left eye & dry eye in my right. I was offered either to be put on the list for an op or to wait for 6 months in the hope the VMT corrected itself, I decided to wait & cross my fingers
Mandrose
in
Macular Society
7 years ago
New member - what should I expect from injections
Following a long bout of flu, sinus infection,
tooth
extraction
and post viral fatigue at Christmas I have continued to feel run down.
Following a long bout of flu, sinus infection,
tooth
extraction
and post viral fatigue at Christmas I have continued to feel run down.
Auntieglitterball
in
Pernicious Anaemia Society
7 years ago
Throat clearing !
Hi, can anyone advise me, my husband who has CMT diagnosed three months ago after EMG and blood tests, still waiting for DNA results ! and originally misdiagnosed with MND, he is constantly clearing his throat, this has gone on for some weeks now, it is interfering with his sleep, normally a good
Hi, can anyone advise me, my husband who has CMT diagnosed three months ago after EMG and blood tests, still waiting for DNA results ! and originally misdiagnosed with MND, he is constantly clearing his throat, this has gone on for some weeks now, it is interfering with his sleep, normally a good
Hidden
in
Charcot-Marie-Tooth UK
7 years ago
Breathing and cmt
Hi was just wondering if my cmt causes shortness of breath as ive just been given a blue easy breath inhaler. Ive been getting out of breath alot and my gp has given me a inhaler which ive only had a few days but is helping me . Gotta go back and gotta have a chest xray although will they find anything
Hi was just wondering if my cmt causes shortness of breath as ive just been given a blue easy breath inhaler. Ive been getting out of breath alot and my gp has given me a inhaler which ive only had a few days but is helping me . Gotta go back and gotta have a chest xray although will they find anything
Juliej51
in
Charcot-Marie-Tooth UK
7 years ago
Jawbone Death
Bisphosphonates BEWARE If entering into any treatment that includes a bisphosphonate such as Zometa - added as an IV during chemo treatment. Others are taken as tabs, ensure you have any required dental treatment first. It says so on the packet! My case? 10 cycles chemo. Great results with that plus
Bisphosphonates BEWARE If entering into any treatment that includes a bisphosphonate such as Zometa - added as an IV during chemo treatment. Others are taken as tabs, ensure you have any required dental treatment first. It says so on the packet! My case? 10 cycles chemo. Great results with that plus
Scruffybut1
in
Advanced Prostate Cancer
7 years ago
Still suffering after hypothyroid diagnosis, looking for encouragement.
Sorry, this is long! After 18 years I have finally begun treating what is believed to be hypothyroidism. Not due to blood work, of course; ( I've had at least 3 normal results over the years) but finally through treatment of symptoms. It seemed to all begin in my first pregnancy, but may well have been
Sorry, this is long! After 18 years I have finally begun treating what is believed to be hypothyroidism. Not due to blood work, of course; ( I've had at least 3 normal results over the years) but finally through treatment of symptoms. It seemed to all begin in my first pregnancy, but may well have been
greenmug
in
Thyroid UK
7 years ago
Diagnosing CMT in children?
Hiya, I'm new here just looking for some advice and help with a few things :) Bit of background, I have two children, ages 4 and 9, whose father has CMT (runs in the family he has it along with his brother, mother and I think one of his grandparents) My youngest son was recently refered to the hospital
Hiya, I'm new here just looking for some advice and help with a few things :) Bit of background, I have two children, ages 4 and 9, whose father has CMT (runs in the family he has it along with his brother, mother and I think one of his grandparents) My youngest son was recently refered to the hospital
MummyofThreex
in
Charcot-Marie-Tooth UK
7 years ago
Just knowing it was right
Today, I've bagged up the bodies of three animals, cleaned up the detritus left behind, observed a massive canine
tooth
extraction
, listened to the banal discussions of the rich, dressed my child, given medication to him and two of our pets, cleaned up that much sh*t I've lost count and my day has just
Today, I've bagged up the bodies of three animals, cleaned up the detritus left behind, observed a massive canine
tooth
extraction
, listened to the banal discussions of the rich, dressed my child, given medication to him and two of our pets, cleaned up that much sh*t I've lost count and my day has just
jobm1
1 Year Smoke Free
in
No Smoking Day
7 years ago
Less Invasive Techniques Gaining Traction in Ovarian Cancer Prevention
From CureToday: http://bit.ly/2t4551r For women genetically predisposed to ovarian cancer, prevention is extremely important. But what are the most effective and least invasive prevention techniques, and when is the best time in life to employ them? Because they cause so few recognizable symptoms, ovarian
From CureToday: http://bit.ly/2t4551r For women genetically predisposed to ovarian cancer, prevention is extremely important. But what are the most effective and least invasive prevention techniques, and when is the best time in life to employ them? Because they cause so few recognizable symptoms, ovarian
joann86
Administrator
in
SHARE Ovarian Cancer Support
7 years ago
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