Peripheral Neuropathy pain

[Tandarts]

I was diagnosed 1991 with CMT type 1(a)

I am 67 now and had my knees replaced , my toes staightened etc etc.

I get periferal neuropathy pains on just one toe. It last for 3_4 days and by using the T.E.N.S machine it allows me to get some sleep. Is there anything out there that would be helpful ? I walk with a cane and very clumsy and slow.

[Morllyn]

Neurontin and Lyrica are medicines used for neuropathy. I take Lyrica for neuropathy caused by Multiple Sclerosis and it works well for me. If the T.E.N.S. unit works well I would try sticking with it, as long as it works, instead of taking a medication.

Do you have drop foot also Tandarts ?

[Tandarts in reply to Morllyn]

Yes and it was operated years ago, my feet are very unstable , my balance is bad etc etc

[Morllyn in reply to Tandarts]

Do you wear braces on your feet? My husband does and they keep his feet from dropping. He didn’t want to wear them, at first, but I told him that if he fell and broke a hip he would have to go to a rehabilitation center until he could get around by himself again because I can not lift him. He got the braces and has worn them for many years. They really do keep him from tripping so often.

[John1945]

Hello to Tandarts...... Yes, I also suffer from that dammed Peripheral Neuropathy pain in both feet whilst trying to sleep: Currently I take 100mg of Amitriptyline taken 1 hour before bed: It doesn't stop the pain completely, but does help reduce the ongoing burning feelings: My strange tip ? When the pain gets to much, I move my foot, (sometimes both) out from below the bedclothes, and let it/them hang down towards the floor for 15/20 minutes: I do not know why but I get relief, perhaps hanging improves the blood circulation to our feet ? It's worth a try ? John (Glasgow) ......

[Tandarts in reply to John1945]

Thanks John, will try it

[John1945 in reply to Tandarts]

Hello again to Tandarts...... Ps..... Forgot to add, ask your GP to refer you to your Local NHS Health Trust's Orthotics team, and ask them to fit you up with a 'lightweight' aluminum "ELBOW-CRUTCH": What a positive improvement it made to my walking mobility, although whilst it is still slowly deteriorating: I possibly may need 2No. crutches at a future date ? ? ? John (Glasgow)

[Schmoozer in reply to John1945]

I do the same with my Hnpp!!

[beachwine]

If you only have peripheral neuropathy pain a few days at a time consider yourself lucky. My pain, burning, pins & needles and stabbing pain started in 2015 and has not let up since. I see a pain management doctor. As it got worse he increased my pain meds. Last year I had a spinal cord stimulator implanted. If you are not familiar with these they send a vibration to your legs and feet. It does not take away the pain completely but it does give me about 30 percent relief. With a remote control you can adjust the stimulation. I still take pain meds just not as many. Living with chronic pain is a #!\=&×"+:. I couldn't think of a nice word to call it. It was just this last year a wonderful neurologist diagnosed me with CMT. So now things are adding up. High arches, hammer toes, drop foot and plenty of falls including a trip over speed bump in a parking lot which tore my Achilles tendon. Then there was my clumsy childhood. Well, you all know those stories. This morning I am picking up my AFOs and shoe orthotics. Wish me good luck & better walking.

[Tandarts]

I feel for you, slept with my TENS machine connected the whole night. Use 500mg of Lyrica each day , keep up the fight ,

[Abul_Hassan]

Just ignore the pain, I understand it sound rude. That is what I do for 20 years.

[Schmoozer in reply to Abul_Hassan]

Me too but now in my 60s getting more difficult

[Schmoozer]

Hi Tandarts. Did you find the toes opp helped and in what way pls. I’m 61 with h toes but not sure how opp wld help?