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Systemic sclerosis
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bladder /bowel problems
hi anyone out there with pbc ,
systemic
sclerosis
, sjogrens or raynauds have bladder/ bowel problems ?
hi anyone out there with pbc ,
systemic
sclerosis
, sjogrens or raynauds have bladder/ bowel problems ?
dorisdaydream
in
PBC Foundation
10 years ago
So now i'm confused
So I had nail fold capilliary and thermology,and yes I have
systemic
sclerosis
. It was good to finally get a diagnosis.
So I had nail fold capilliary and thermology,and yes I have
systemic
sclerosis
. It was good to finally get a diagnosis.
san61
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Something Else to put up with
I also want to know what else I can expect to happen and what is linked to this Limited
Systemic
Sclerosis
.
I also want to know what else I can expect to happen and what is linked to this Limited
Systemic
Sclerosis
.
PaleIndian2
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
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Butterfly rash with systemic sclerosis/Raynauds?
Hi all,I was diagnosed for sure with scleroderma (limited) and secondary Raynauds in June via nail fold capilliary/thermology testing. Im on hydroxychloroquin,which has helped a great deal with aches and pains,stiffness. Im on Nifidipine for the Raynauds,which this winter is worse than last. The last
Hi all,I was diagnosed for sure with scleroderma (limited) and secondary Raynauds in June via nail fold capilliary/thermology testing. Im on hydroxychloroquin,which has helped a great deal with aches and pains,stiffness. Im on Nifidipine for the Raynauds,which this winter is worse than last. The last
san61
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Osteoporosis
I have limited
systemic
sclerosis
and pulmonary hypertension. I have been having gastric problems for some time and my PPI has been doubled to 40mg twice a day.
I have limited
systemic
sclerosis
and pulmonary hypertension. I have been having gastric problems for some time and my PPI has been doubled to 40mg twice a day.
PaleIndian2
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
PBC & Systemic Sclerosis
Now I was just diagnosed with
Systemic
Sclerosis
as well. I kind of suspected as I had some of the symptoms (Raynaud’s for about 3 years and recently pain in hands, feet & chest along with tight shiny skin, etc).
Now I was just diagnosed with
Systemic
Sclerosis
as well. I kind of suspected as I had some of the symptoms (Raynaud’s for about 3 years and recently pain in hands, feet & chest along with tight shiny skin, etc).
Tj2929783
in
PBC Foundation
10 years ago
Pulmonary Hypertension
I have Limited
Systemic
Sclerosis
which has now progressed to Pulmonary Hypertension. There aren't that many in this country that suffers with it, only around 6 to 8,000 in the UK.
I have Limited
Systemic
Sclerosis
which has now progressed to Pulmonary Hypertension. There aren't that many in this country that suffers with it, only around 6 to 8,000 in the UK.
PaleIndian2
in
Lung Conditions Community Forum
10 years ago
I have CREST (limited Systemic Sclerosis) suffering gullet spasm recently is this normal?
Last night the paramedics came out as I was presenting with cardiac symptoms, they checked with an ECG & all was well. Does anyone else who has CREST suffer with this type of spasm - it was very frightening & I don't know how to help myself with this It only happens at night & I have experienced several
Last night the paramedics came out as I was presenting with cardiac symptoms, they checked with an ECG & all was well. Does anyone else who has CREST suffer with this type of spasm - it was very frightening & I don't know how to help myself with this It only happens at night & I have experienced several
AliW
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Travel Insurance
I have an ileostomy and limited
systemic
sclerosis
. Can anyone recommend a good insurer as I dare not risk going away without it. Thanks. Debbie
I have an ileostomy and limited
systemic
sclerosis
. Can anyone recommend a good insurer as I dare not risk going away without it. Thanks. Debbie
newbe
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Treatment for Raynauds?
Hello I suffer with limited
systemic
sclerosis
(CREST) and the Raynauds associated with it is becoming unbearable. I have been taking high dose vitamins C and E and GLA for a year now but no improvement. Does anyone else have a similar experience and can share what has helped them please?
Hello I suffer with limited
systemic
sclerosis
(CREST) and the Raynauds associated with it is becoming unbearable. I have been taking high dose vitamins C and E and GLA for a year now but no improvement. Does anyone else have a similar experience and can share what has helped them please?
Annie_M
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Medical research agency looking for participants to take part in studies
The first study is looking for participants who have
Systemic
Sclerosis
(project number: 6941PH) and the second will focus on participants who have psoriasis and/or psoriatic arthritis (project number: 6943SL) For both studies you will receive a financial reward and the BSF will also receive a donation
The first study is looking for participants who have
Systemic
Sclerosis
(project number: 6941PH) and the second will focus on participants who have psoriasis and/or psoriatic arthritis (project number: 6943SL) For both studies you will receive a financial reward and the BSF will also receive a donation
BritishSkinFoundationCharity
in
MY SKIN
10 years ago
Itching and Rashes
I was diagnosed with limited
systemic
sclerosis
three years ago. There has been no skin involvement but in Feb I developed rashes on backs of knees, inside thighs, front of wrists, forearms (now extending up to armpits) and sides.
I was diagnosed with limited
systemic
sclerosis
three years ago. There has been no skin involvement but in Feb I developed rashes on backs of knees, inside thighs, front of wrists, forearms (now extending up to armpits) and sides.
Anjigrunty
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
I am at my wits end.
Hi I am sick to death if people calling me mad not linking the things going on in me calling me crazy saying I am looking up thing's like conditions on the internet I was shocked I was like WTF this is
Systemic
Lupus &
Sclerosis
none of them are taking it seriously I haven't brand newly developed it
Hi I am sick to death if people calling me mad not linking the things going on in me calling me crazy saying I am looking up thing's like conditions on the internet I was shocked I was like WTF this is
Systemic
Lupus &
Sclerosis
none of them are taking it seriously I haven't brand newly developed it
AngelADark
in
St Thomas Lupus Trust
10 years ago
Please tell me this eventually sucks less? - Endometriosis.
I've had horrific periods since they first started. It was a blight all through secondary school. Midway through college I was put on the pill and then eventually the implant for the pain etc (I didn't want to use the pill as contraception as my memory is crap). They did tests and couldn't find any cysts
I've had horrific periods since they first started. It was a blight all through secondary school. Midway through college I was put on the pill and then eventually the implant for the pain etc (I didn't want to use the pill as contraception as my memory is crap). They did tests and couldn't find any cysts
Wishsprite
in
Endometriosis UK
10 years ago
Scleroderma affecting the colon? Does anyone suffer with colon spasm due to this?
I have Limited
Systemic
Sclerosis
(CREST)
I have Limited
Systemic
Sclerosis
(CREST)
AliW
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Scientists discover how to ‘switch off’ autoimmune diseases
It’s hoped this latest insight will lead to the widespread use of antigen-specific immunotherapy as a treatment for many autoimmune disorders, including multiple
sclerosis
(MS), type 1 diabetes, Graves’ disease and
systemic
lupus erythematosus (SLE).
It’s hoped this latest insight will lead to the widespread use of antigen-specific immunotherapy as a treatment for many autoimmune disorders, including multiple
sclerosis
(MS), type 1 diabetes, Graves’ disease and
systemic
lupus erythematosus (SLE).
shambles
in
Thyroid UK
10 years ago
Bosentan decision delayed by NICE as they deem it to be non urgent and not in demand.
Bosentan meant that he had no ulcers, no gangrene, no passing out and much more control of his
Systemic
Sclerosis
and his Raynaulds as well. This is a huge blow to us, I just wondered if anyone else has had any experience of NICE ?
Bosentan meant that he had no ulcers, no gangrene, no passing out and much more control of his
Systemic
Sclerosis
and his Raynaulds as well. This is a huge blow to us, I just wondered if anyone else has had any experience of NICE ?
adow
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Please can anyone help? I have CREST limited systemic sclerosis & suffering with gullet problems.
I have tightness in the gullet & pain ....it has been there most if the week & I am reluctant to make a Rheumy appt. I do have mild Barrets oseophagus & have reflux. I am scared it's strictures does anyone else experience this?
I have tightness in the gullet & pain ....it has been there most if the week & I am reluctant to make a Rheumy appt. I do have mild Barrets oseophagus & have reflux. I am scared it's strictures does anyone else experience this?
AliW
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Is there a list of specialist SLE doctors?
Ive never really been happy with her Rheumy,and since i was diagnosed with
systemic
sclerosis
2 yrs ago,ive realised there could be a whole lot she's missing out on to help her feel better.
Ive never really been happy with her Rheumy,and since i was diagnosed with
systemic
sclerosis
2 yrs ago,ive realised there could be a whole lot she's missing out on to help her feel better.
san61
in
LUPUS UK
11 years ago
Having a whinge, feel free to whinge back its good for the soul "insert smiley face here"
I suffer from various problems I have Severe COPD,
Systemic
Sclerosis
, Raynaud's, Scleroderma, to name some of them they are all invisible to the world.
I suffer from various problems I have Severe COPD,
Systemic
Sclerosis
, Raynaud's, Scleroderma, to name some of them they are all invisible to the world.
JustSandra
in
NRAS
11 years ago
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