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Systemic sclerosis
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Communities
9 public communities
My MSAA Community
9,331 members
The Multiple Sclerosis Association of America (MSAA) is a nonprofit organization improving lives today for the MS community through our vital services and support. We provide direct services and ongoing support to individuals with MS, their families, and their care partners throughout the United States. Some of our free services include: Helpline with trained specialists, safety and mobility equipment distribution, award-winning educational videos and publications, cooling accessories for heat-sensitive individuals, educational programs held across the US, and more. We hope that My MSAA Community on HealthUnlocked is a safe and inviting space for you to connect with other members of the MS community in order to both find and provide support for your shared experiences.
Ehlers-Danlos Support UK
2,987 members
Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue condition that is a multi-systemic syndrome.
LUpus Patients Understanding and Support
3,456 members
Lupus Patients Understanding & Support (LUPUS) is a non-profit organisation for patients-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) Syndrome. Our organisation was founded in 2000 with the intention of providing free information and free online psychological support. Our organisation is unique in that it has its own in-house counsellor and psychotherapist. Lupus Patients Understanding & Support (LUPUS) has two further websites. Our information website can be seen here: http://www.lupus-support.org.uk while our online psychological support at the LUpus Message Board is here: http://www.lupus-support.org and registration is free. Come and Join Us on Facebook: https://www.facebook.com/SUPPORT4LUPUS We are here to help and support you and your families. Please contact us or share your stories here on HealthUnlocked!
Neuro Support
2,022 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
MS Society
613 members
We're the MS Society, we're a community of people living with or affected by MS. Whether you have MS, or care about someone who does, our community is here for you through the highs, lows and everything in between. If you have any questions, don't hesitate to reach out to anyone of our admins listed below.
The UK Mastocytosis Support Group
583 members
The UK Mastocytosis Support Group community is for anyone with diagnosed or un-diagnosed Mast Cell Diseases or those supporting them. The UK Mastocytosis Support Group is a charity that supports people with Mast Cell Diseases including Mastocytosis and mast cell activation syndromes. We support people by informing them of various aspects of Mast Cell Diseases and testing.
Multiple System Atrophy Trust
1,731 members
The Multiple System Atrophy Trust is the only charity in the UK and Ireland that provides information and support to people affected by Multiple System Atrophy (MSA). We do this through a number of ways including our three MSA Nurse Specialists, a network of Support Groups, information resources and our MSA News magazine. We also provide funding towards research projects and small grants to our members. We are entirely funded by voluntary donations. Share your stories, ask questions and support one another!
South West Wales Neurological Alliance
301 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
LDN Research Trust
1,415 members
The primary aim of the Trust is to initiate Clinical Trials of Low Dose Naltrexone. Whilst working to raise funds for trials, we have helped over 16,000 people to obtain LDN from a General Practitioner or Neurologist, either through the National Health Service or by private prescription. We have also been able to help people, not just in the UK but in countries throughout Europe, as well as USA, Canada, West Indies, Australia, New Zealand, and others. By using this website and from our downloadable newsletters, you will be able to read the stories of some of these people. We have helped many people with MS, Crohn's, IBS, ME and Cancer to name a few. The use of LDN is spreading. Our ultimate goal is for everyone to be prescribed LDN globally for all conditions where LDN could be of benefit