St Thomas Lupus Trust | HealthUnlocked

Hi all my partner has just received her vaccine letter and is very anxious about the whole thing she has discoid lupus with APS ( anti phospholipid syndrome)...

Hi im new, anyone get covid vaccine yet?

I have had serious lung and kidney infections Lupus related, however, my Rhumatologist has ignored them all, saying this doesn’t happen with Lupus. His boss...

I've had all the following and more but can't remember all my symptoms, and some overlap with my other issues - I've had skin rashes all over my chest and...

Hi My main worries with Lupus are my lungs and kidneys, I’ve been very ill with both yet my GP and doctor have been at pains to say they are def not Lupus...

Is anyone out there on the Generic Hydroxychloroquine Sulfate roundabout again? Plaquenil was my first prescribed drug and it worked like a charm, first on...

Hi all, Please remove if this isn't allowed. Below is a link to a petition that seeks to improve care for people living in Wales that have Lupus. I am on of...

Hi fellow warriors :) I have just been diagnosed with sle but I think I started with it in my teenage years-i am now 36. I have bilateral (both sides) chronic,...

Read letter from eye hospital to my gp saying I am lupus and anti choroidal positive and uninterpretable c anca.....I’m confused. What is anti choroidal and...

Hello everyone Just wondering what folks are doing for World Lupus Day. I will try to do something even if its just posting a few things on facebook and...

Hello everyone! Survey! @jury_lab: If you have #lupus you can help our research greatly! We are seeking patient opinion from a short survey regarding diet and...

Anyone tried to make a telephone lupus nurse appt. online at St Thomas', available dates run until October but there is nothing available.........what do we do...

Hi, Does anyone have any Instagram or YouTube accounts documenting their story I’m trying to do it as a way to help myself learn to manage and cope with this...

I had an appointment with rheumatology late December last year because bloods showed rheumatoid factor, waited 3 months for this appointment after over two...

My doctor refuses to go through my blood tests with me saying I will be told if there is a problem. I ring up and the receptionist mentions the problems so I...

I'm an avid Facebook user and other social media. I hit the like and love and cry etc buttons on their posts. Needless to say I also post about my disease...

Hi, I'm still waiting on a diagnosis but things are definitely looking like a Lupus decision, previously I've been told I'm seronegative, I'm now about to go...

Hi all this is my first time writing on here. I'm a 20 year old female with health problems for a few years now. I'm kind of feeling like giving up like no one...

i all this is my first time writing on here. I'm a 20 year old female with health problems for a few years now. I'm kind of feeling like giving up like no one...

Hi all this is my first time writing on here. I'm a 20 year old female with health problems for a few years now. I'm kind of feeling like giving up like no one...

Hello, a while back I saw some news about a clinical trial designed to investigate Lupus. I would like to know more information about this, thanks-

Hi I get the butterfly effect on my face but I also have a scab on my face thar itches and hurts and eats in to my face coursing scars every time I do a...

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as...

Hi all I would really appreciate some advice please. I am not expecting a diagnosis just an indication of whether I am being paranoid or not! I was diagnosed...

Hi I hope it's Ok to post this ... Call out to everyone who may be able to make it ... For anyone living in West Midlands UK. Do you fancy meeting up and...

Does anyone else here sufffer with HS along side Lupus? I've tried load of different antibiotics, none have been successful. I'm waiting to start adalimubab...

Has anyone had their eyelashes fall out? This is the 2nd episode, the first one was in September - 6 months ago.

Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago. I am a 19 year old female who has been diagnosed with Fibromyalgia. When I was 15 I noticed...

Hi, I m a 44 year old female that has been suffering with lupus 'type' symptoms including a facial rash that flares as symptoms flare, for a number of years...

Hello. My question is: Has anyone tried Serrapeptase and have you used it as a supplement to Zentiva/Plaquenil( Hydroxychloroquine) and Prednisolone?