St Thomas Lupus Trust | HealthUnlocked

St Thomas Lupus Trust

1,306 members125 posts

My partner the vaccine and lupus

Hi all my partner has just received her vaccine letter and is very anxious about...

Vaccine?

Hi im new, anyone get covid vaccine yet?

Not getting correct treatment.

I have had serious lung and kidney infections Lupus related, however, my Rhumato...

Lupus diagnosis - how did you get diagnosed and what were your symptoms please

I've had all the following and more but can't remember all my symptoms, and some...

Am I getting Pleurisy again!

Hi My main worries with Lupus are my lungs and kidneys, I’ve been very ill with...

Zentiva- Hydroxychloroquine Sulfate

Is anyone out there on the Generic Hydroxychloroquine Sulfate roundabout again? ...
 profile image
TwdibwdVolunteer

Please sign this petition - help people in Wales living with Lupus access specialist care

Hi all, Please remove if this isn't allowed. Below is a link to a petition that...

Bilateral chronic, reoccurring mastoiditis/ear infections/glue ear, PET and lupus (sle). Does anyone have experience of this?

Hi fellow warriors :) I have just been diagnosed with sle but I think I started ...

Lupus?Wegeners? Anti choroidal?

Read letter from eye hospital to my gp saying I am lupus and anti choroidal posi...

World Lupus Day - 10th May

Hello everyone Just wondering what folks are doing for World Lupus Day. I will t...

Survey! Help lupus research

Hello everyone! Survey! @jury_lab: If you have #lupus you can help our research...

Online booking for lupus nurse telephone appt at ST Thomas'

Anyone tried to make a telephone lupus nurse appt. online at St Thomas', availab...

Support and raising awareness

Hi, Does anyone have any Instagram or YouTube accounts documenting their story ...

Confused

I had an appointment with rheumatology late December last year because bloods sh...

Blood test results never discussed

My doctor refuses to go through my blood tests with me saying I will be told if ...

They don't care

I'm an avid Facebook user and other social media. I hit the like and love and cr...

Blood Tests

Hi, I'm still waiting on a diagnosis but things are definitely looking like a Lu...

Can someone give some advice or there experience with this feel so alone.

Hi all this is my first time writing on here. I'm a 20 year old female with heal...

Someone help I'm so lost

i all this is my first time writing on here. I'm a 20 year old female with healt...

anyone else have these problems please help

Hi all this is my first time writing on here. I'm a 20 year old female with heal...

Information about clinical trial

Hello, a while back I saw some news about a clinical trial designed to investiga...

Do I have lupus

Hi I get the butterfly effect on my face but I also have a scab on my face th...

Small cell lung cancer patient with lupus and possible while brain radiotherapy anyone can help?

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 ...

I'm worried that I have Lupus

Hi all I would really appreciate some advice please. I am not expecting a diagno...

West Midlands Cake Sale for World Lupus Day

Hi I hope it's Ok to post this ... Call out to everyone who may be able to make ...

hidradenitis suppurativa

Does anyone else here sufffer with HS along side Lupus? I've tried load of diffe...

Not looking good

Has anyone had their eyelashes fall out? This is the 2nd episode, the first one ...

Seriously I am ready to give up. I need ANY opinions.

Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago. I am a 19 ye...

Help understanding symptoms and blood results.

Hi, I m a 44 year old female that has been suffering with lupus 'type' symptoms ...

Serrapeptase or not.

Hello. My question is: Has anyone tried Serrapeptase and have you used it as a s...
 profile image
TwdibwdVolunteer
Write a post or ask a question

About us

The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100%...

Read more about St Thomas Lupus Trust
0207 188 3562

Support our research

Support our vital and groundbreaking lupus research