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new to all this...bit scary!!!
ok...so i saw the consultant for the first time today...he didnt say exactly that its scleroderma but he did mention that...well
systemic
sclerosis
along with raynauds ....wants to send me for a heart scan and lung test...had bloods taken which turned both arms completely navy blue when the tourniquet
ok...so i saw the consultant for the first time today...he didnt say exactly that its scleroderma but he did mention that...well
systemic
sclerosis
along with raynauds ....wants to send me for a heart scan and lung test...had bloods taken which turned both arms completely navy blue when the tourniquet
Kerry72
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Sjogren's Syndrome
At 21 I was diagnosed with CREST Syndrome (Limited Cutaneous
Systemic
Sclerosis
) but now I'm wondering whether I have mild Sjogren's Syndrome. But the symptoms are contradictory.
At 21 I was diagnosed with CREST Syndrome (Limited Cutaneous
Systemic
Sclerosis
) but now I'm wondering whether I have mild Sjogren's Syndrome. But the symptoms are contradictory.
Sarahbv
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Rituximab,Toxilizumab,and the Scleroderma Conference in Texas!
Very briefly: I have diffuse
systemic
sclerosis
,severe lung fibrosis,Raynauds , and a severe overlap of Rheumatoid Arthritis (without the rheumatoid factor but that's another story).
Very briefly: I have diffuse
systemic
sclerosis
,severe lung fibrosis,Raynauds , and a severe overlap of Rheumatoid Arthritis (without the rheumatoid factor but that's another story).
Alexandra-M
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
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Wehoo the sun is out over here in the UK - the flip flops are on, the toes are blue ;)
I am sure that nobody would notice, but I am aware of the presence of one of the signs of latent stage diffuse
systemic
sclerosis
! I remind myself of Dr Seuss' quote 'those that mind dont matter, and those that matter dont mind'. So thats good enough for me !
I am sure that nobody would notice, but I am aware of the presence of one of the signs of latent stage diffuse
systemic
sclerosis
! I remind myself of Dr Seuss' quote 'those that mind dont matter, and those that matter dont mind'. So thats good enough for me !
living-the-dream-ssc-ray
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Yank, my tale... (A day in the life of a Yank in England)
And I was also told how lucky I was that it was Limited
Systemic
Sclerosis
, and I thought 'You must be kidding right!'
And I was also told how lucky I was that it was Limited
Systemic
Sclerosis
, and I thought 'You must be kidding right!'
uknlv
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Lost and confused
Some people call it Limited
Systemic
Sclerosis
and some say it is Limited
Systemic
Scleroderma.
Some people call it Limited
Systemic
Sclerosis
and some say it is Limited
Systemic
Scleroderma.
uknlv
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
How did your systemic sclerosis start? What were the early symptoms?
I have rheumatoid arthritis/inflammatory arthritis and Raynaud's. I have only just been diagnosed. My consultant thinks I have another autoimmune disease too. I would be very interested to hear about other people's experiences of Raynaud's which developed later into scleroderma as I think I have some
I have rheumatoid arthritis/inflammatory arthritis and Raynaud's. I have only just been diagnosed. My consultant thinks I have another autoimmune disease too. I would be very interested to hear about other people's experiences of Raynaud's which developed later into scleroderma as I think I have some
Naomi1
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
What is the life span of someone with diffuse cutaneous systemic sclerosis?
vaughan
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
BOTOX - How do you go about getting it?!
Hi, I have
systemic
sclerosis
and raynaud's and get severe ulcers on my fingers that just won't go!! I'm on viagra at the minute, but only for a short period. I've seen that some people have had BOTOX and wondered how they went about getting it done? Ashton x
Hi, I have
systemic
sclerosis
and raynaud's and get severe ulcers on my fingers that just won't go!! I'm on viagra at the minute, but only for a short period. I've seen that some people have had BOTOX and wondered how they went about getting it done? Ashton x
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
2nd systemic sclerosis world congress, Madrid 2012
Here is the link : http://www.fesca-scleroderma.eu/news/2nd-
systemic
-
sclerosis
-world-congress-madrid-2012 This is the most up to date information in relation to Scleroderma and Raynauds !
Here is the link : http://www.fesca-scleroderma.eu/news/2nd-
systemic
-
sclerosis
-world-congress-madrid-2012 This is the most up to date information in relation to Scleroderma and Raynauds !
living-the-dream-ssc-ray
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
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