I don't see many people as I live alone in a strange town living the life of a hermit. I have a few friends I see from time to time, I have to be almost at deaths door to not hear the "Oh your looking so well" I may well look well but inside I am falling apart. I am lucky to have one really great friend who lives far from me but we speak on the phone 3/4 times a week and she comes over to see her family and me. I also go over to stay with her and her husband and that's a lovely break/holiday for me. So we see each other a few times a year.
I get so down sometimes because I cant do the things that were once simple to do. Dishes for example they hurt my hands I have nerve damage in my right arm which freezes my hand and fingers so touching things causes pain. Both my shoulders are crumbling I've had three operations on my left shoulder and they tend to give me relief for a few months then the crumbling starts again.. so that makes hovering, bed changing ,washing hanging and bin emptying a challenge. It takes me ages to do these things however when I do manage them its a huge achievement for me. I plod on and let my body/energy levels decide how much or little I can do. I need someone to come in and do the things I struggle with but I have no idea about how to get this help.. I think I need a care manager to help me get this help.
I suffer from various problems I have Severe COPD, Systemic Sclerosis, Raynaud's, Scleroderma, to name some of them they are all invisible to the world. I dread the winter coming I was admitted to hospital by ambulance in Feb of 2013 with Double Pneumonia kept in for two weeks as I fell out of bed hence the nerve damage in my right hand.
Ironically ten months later I was at another hospital to get the dressings off my arm and the nurse suggested I go to see the duty doctor in A&E Oh I knew I wasn't well but I agreed to see the doctor guess what I was admitted again this time it was respiratory failure this was Christmas Eve...........I had company at least. Oh my I have off loaded loads of my woes ...I love this group it makes me feel I am not alone