Hi I am sick to death if people calling me mad not linking the things going on in me calling me crazy saying I am looking up thing's like conditions on the internet I was shocked I was like WTF this is Systemic Lupus & Sclerosis none of them are taking it seriously I haven't brand newly developed it I have had it for years I have had it since childhood. No one is taking me seriously. I was watching DR G Garavalia on TV last night it was a woman who didn't show any sign's of it on her skin or blood but when DR G looked at slides of her organs under the microscope she was full of it in her lungs and kidneys. I am terminal with SLEEP Lupus & Sclerosis it is in my brain spinal cord CNS eye's it is evident on my skin. I would hate for a pathologist to find out how deviating this is in me. My rhumatologist is arogant & my GP is hopeless at dealing with it she is a feckless bitch who dosn't care. I have waited 2 months for any treatment when my past med records shout out sutily this is SLE my med records speak out in volumes but people hated me& my family abused me for 32 years & 10 months and they created a fictional charracter of me to every one & they also did this in my med records you can see where they have gone behind my back to my GP over 70% of my med records are they fictional character my whole family created, to make sure now one will believe me or help me as they carried on abusing me under 16 years old they put me through hell of child abuse & after that it was domestic violence until I fled with Police help to evacuate safely from hell. My family tried to ruin me to the ground. I Fled far far far away from them I never want to see or hear from them again. I am free living & breathing in freedom to be me & who I really am. It seem the Hell from my past won't leave me alone. My number is XXXXXXXXXXX I send you all Joy Peace Love & Light Gail
I am at my wits end. : Hi I am sick to... - St Thomas Lupus T...
I am at my wits end.
Written by
AngelADark
To view profiles and participate in discussions please or .
1 Reply
•
TwdibwdVolunteer
Dear AngelADark. This is a toughie. I can understand how frustrated you must feel at the responses you are getting. Unfortunately there is only one avenue you can take to find the treatment you need and that is to find a Doctor that will listen and assess your situation. Systemic Lupus can be complicated to diagnose as it is a great mimicker of other medical conditions and as such can fuel your anxiety over possibly having the other conditions that you have read about. My advice, such as it is, is to go to a GP you can talk to and lay your worries on the line to him/her. This GP is the only one that can take things forward from there so look on them as your ally.
Not what you're looking for?
You may also like...
Seriously I am ready to give up. I need ANY opinions.
Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago.
I am a 19 year old female who...
What can I do about nerve pain stopping me sleeping, it is affecting my Lupus and Fibromyalgia as I must rest!
Can anyone help? I have suffered for over 20 years from an autoimmune problem initially told it was...
Why do we have to PUSH and PUSH to get a diagnosis from MDs? I just don't understand and am close to giving up
I have heard the sympathy and advice over and over " keep going", "hang in there" I don't think I...
Confusion of being told my lupus has 'disappeared' because I'm nearing 60 years of age
I apologise for this long post thank you for taking the time to read it.
I am at a loss because...
Better... but not better
Since starting prednisolone and hydroxy chloroquine I have already seen an improvement in my energy...