Search
Search
About
Log in
Join
Experiences with
Sweet's syndrome
Posts
Communities
3,340 public posts
Filter results
pramipexole withdrawal
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
auldreekie18
in
Restless Legs Syndrome
3 years ago
Lip biopsy results
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Nellies47
in
The Australian Sjögren's Syndrome Association
3 years ago
Artificial Sweetener +=insomnia and RLS
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
Shumbah
in
Restless Legs Syndrome
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
what is Ovarian hyperstimulation syndrome (OHSS)
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
TTC1994
in
Fertility Network UK
3 years ago
Omg Prednisolone
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
Liby57
in
PMRGCAuk
3 years ago
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Erosion of a historically good marriage due to my FND
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
After a year’s onset of various symptoms, I was diagnosed with FND July 2021. Thanks be to God that I live near a world renown hospital and have a cutting-edge neurologist who is a movement specialist My husband is not responding well to this. He refuses to read any of the literature and doctor notes
HenriettaPoultryfoot
in
Functional Neurological Disorder - FND Hope
3 years ago
tramadol does it work
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
auldreekie18
in
Restless Legs Syndrome
3 years ago
Support group in the US?
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hyper mobility spectrum disorder and in July I see a geneticist for EDS testing. Thank you!
TurquoiseTime
in
Ehlers-Danlos Support UK
3 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
3 years ago
Sjogren's diagnosis
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
Kels1974
in
NRAS
3 years ago
Zinc deficiency
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Luac
in
Pernicious Anaemia Society
3 years ago
New guy with old RLS
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
OudisCool
in
Restless Legs Syndrome
3 years ago
RLS-ROPINOLE
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
help3
in
Restless Legs Syndrome
3 years ago
Efficacy of methadone for refractory RLS
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
GuillaumeL
in
Restless Legs Syndrome
3 years ago
Devastating end to my pregnancy
I am heartbroken This last 3 weeks have been awful. We discovered at our 12 week scan that our baby had a large amount of fluid on the back of the neck, a clear indicator of a problem. We were supposed to have the CVS test to confirm what the issue with but that was not able to go ahead due to difficulties
I am heartbroken This last 3 weeks have been awful. We discovered at our 12 week scan that our baby had a large amount of fluid on the back of the neck, a clear indicator of a problem. We were supposed to have the CVS test to confirm what the issue with but that was not able to go ahead due to difficulties
Skittles11
in
Fertility Network UK
3 years ago
Restless legss
Edoxaban 60mg Bisoprolol 2.5mg Lercanidipine10mg Dr put me on these tablets for irregular heartbeat would they agree with restless legs only I've had terrible nights since I started them
Edoxaban 60mg Bisoprolol 2.5mg Lercanidipine10mg Dr put me on these tablets for irregular heartbeat would they agree with restless legs only I've had terrible nights since I started them
ALDK79ey
in
Restless Legs Syndrome
3 years ago
Opinions on Hemp creams.
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Bunnzillah
in
LUPUS UK
3 years ago
Gabapentin and Ropinirole please .....
1. I came across an old post on here with someone saying that if you take Gabapentin with Ropinirole, then the Ropinirole does not cause augmentation. Am guessing this is not true, but I thought I would put it out there to see if anyone has anyone definitive research on this. 2. Also read that it
1. I came across an old post on here with someone saying that if you take Gabapentin with Ropinirole, then the Ropinirole does not cause augmentation. Am guessing this is not true, but I thought I would put it out there to see if anyone has anyone definitive research on this. 2. Also read that it
67Waterman
in
Restless Legs Syndrome
3 years ago
1
...
40
41
42
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1453 results
Fertility Network UK
360 results
PMRGCAuk
135 results
View top 10 communities
Sort by
Most Relevant
Newest