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Leflunomide
Hi folks, I was diagnosed with RA in September 2017. Methotrexate and Sulfasalazine did not work for me with unpleasant side effects. I have been doing alright on Hydroxychloroquine though had to adjust the dose to 200mg/400mg alternate days. Just over the last couple of weeks, my knee has swollen
Hi folks, I was diagnosed with RA in September 2017. Methotrexate and Sulfasalazine did not work for me with unpleasant side effects. I have been doing alright on Hydroxychloroquine though had to adjust the dose to 200mg/400mg alternate days. Just over the last couple of weeks, my knee has swollen
ladyelizajane
in
NRAS
5 years ago
Keto diet
I am in a pickle . Desperately need to lose 2 st . Guess I have veered towards Keto diet as I like the idea of it . Here’s the thing tried for a week and obviously not working . I think I am eating too much dairy ie cheese and Greek yoghurt . I am a veggie not vegan . So have relied on pulses and other
I am in a pickle . Desperately need to lose 2 st . Guess I have veered towards Keto diet as I like the idea of it . Here’s the thing tried for a week and obviously not working . I think I am eating too much dairy ie cheese and Greek yoghurt . I am a veggie not vegan . So have relied on pulses and other
Betsboop
in
Weight Loss Support
5 years ago
How to get my rheumatolgist to listen to me.
I started going to see a rheumatologist eight years ago and she was lovely and really tried to help me by trying various medications etc. She said that she wanted to work out which kind of arthritis I had and that it was definitely a form of inflammatory arthritis. Sadly she left the hospital to work
I started going to see a rheumatologist eight years ago and she was lovely and really tried to help me by trying various medications etc. She said that she wanted to work out which kind of arthritis I had and that it was definitely a form of inflammatory arthritis. Sadly she left the hospital to work
Hidden
in
NRAS
5 years ago
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Thoughts
Hi I’m new to this forum and looking for maybe some advice . I was diagnosed with RA about 12 months ago , so had my knees drained twice and had the steroid injections which worked but only lasted three weeks , so then they put me on salazopyrin for about 8 months and now been on metetraxate for 7 weeks
Hi I’m new to this forum and looking for maybe some advice . I was diagnosed with RA about 12 months ago , so had my knees drained twice and had the steroid injections which worked but only lasted three weeks , so then they put me on salazopyrin for about 8 months and now been on metetraxate for 7 weeks
Buckybri
in
NRAS
5 years ago
Info please
Doing my usual. It’s 6am and I’ve been awake for about an hour not being able to turn my brain off. So I was diagnosed a month ago with seropositive RA I’m not on any meds yet just a steroid injection at diagnosis. The steroid made a massive difference to the pain and stiffness. So far all is ok but
Doing my usual. It’s 6am and I’ve been awake for about an hour not being able to turn my brain off. So I was diagnosed a month ago with seropositive RA I’m not on any meds yet just a steroid injection at diagnosis. The steroid made a massive difference to the pain and stiffness. So far all is ok but
Longlocks
in
NRAS
5 years ago
Ice packs
Has anyone ever tried using ice packs on their hands/wrists. Did you find it helped. I currently can’t take meds as my nutrofils are too low and it’s being investigated. Been told I can have another steroid injection but trying to hold back. It’s just my hands and wrists giving me issues at the mo. TIA
Has anyone ever tried using ice packs on their hands/wrists. Did you find it helped. I currently can’t take meds as my nutrofils are too low and it’s being investigated. Been told I can have another steroid injection but trying to hold back. It’s just my hands and wrists giving me issues at the mo. TIA
Longlocks
in
NRAS
5 years ago
Guidance needed!
Hi there, I was diagnosed in December last year with subacute cutainious Lupus Erythematosus, and Urticarial vasculitis. I was prescribed Hydroxychloroquin which seemed to make my symptoms worse and so stopped taking them. I was given a steroid injection to help with joint pain and sever fatigue which
Hi there, I was diagnosed in December last year with subacute cutainious Lupus Erythematosus, and Urticarial vasculitis. I was prescribed Hydroxychloroquin which seemed to make my symptoms worse and so stopped taking them. I was given a steroid injection to help with joint pain and sever fatigue which
Apple86
in
LUPUS UK
5 years ago
Silly question about steroid use.
I am down to 7mg per day for GCA in all my major arteries. Feeling OK and crp is pretty constant at 2 or 3. What isn't so good are my knees. I was wondering (hoping) what can be done to help my mobility, specifically steroid injection? Assuming I can't have the injection does anyone have any suggestions
I am down to 7mg per day for GCA in all my major arteries. Feeling OK and crp is pretty constant at 2 or 3. What isn't so good are my knees. I was wondering (hoping) what can be done to help my mobility, specifically steroid injection? Assuming I can't have the injection does anyone have any suggestions
granny-b
in
PMRGCAuk
5 years ago
Lupus and sciatica
I think I am in a flair as despite my steroid injection 3 weeks ago the pain I have felt the last few days and weakness has been unbearable at times. My legs feel like they don't belong to me, odd I know but only way can describe. Last night i experienced pain in lower back on one side just above my
I think I am in a flair as despite my steroid injection 3 weeks ago the pain I have felt the last few days and weakness has been unbearable at times. My legs feel like they don't belong to me, odd I know but only way can describe. Last night i experienced pain in lower back on one side just above my
Sallmell
in
LUPUS UK
5 years ago
Steroid Injections
Morning can I ask how long steroid injections take to kick in to relive pelvic pains. I had the following procedure done last Thursday but still feel pain on my left leg. Bilateral pulsed radiofrequency to the bilateral genitofemoral nerve with Local Anaesthetic and steroid, Trigger point injections
Morning can I ask how long steroid injections take to kick in to relive pelvic pains. I had the following procedure done last Thursday but still feel pain on my left leg. Bilateral pulsed radiofrequency to the bilateral genitofemoral nerve with Local Anaesthetic and steroid, Trigger point injections
Yas45
in
Pelvic Pain Support Network
5 years ago
Hopeful for diagnosis tomorrow!🤞
Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloroquine and two depomedrone steroid injections. I have positive ANA and have had symptoms escalating for over 4 years. Been under neurologist and then rheumatologist to finally get to this point. The consultant was unwilling
Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloroquine and two depomedrone steroid injections. I have positive ANA and have had symptoms escalating for over 4 years. Been under neurologist and then rheumatologist to finally get to this point. The consultant was unwilling
Sallmell
in
LUPUS UK
5 years ago
UCTD and Azathioprine
Hi everyone :-) So my Rheumatologist decided to confirm a diagnosis of Undifferentiated Connective Tissue Disorder last week...I don’t know a lot about it really, other than what he told me and what I’ve googled! He suggested I start a medication called Azathioprine... but everything I’ve read about
Hi everyone :-) So my Rheumatologist decided to confirm a diagnosis of Undifferentiated Connective Tissue Disorder last week...I don’t know a lot about it really, other than what he told me and what I’ve googled! He suggested I start a medication called Azathioprine... but everything I’ve read about
SRiley
in
LUPUS UK
5 years ago
Is it ok to have a flu jab close to a steroid one?
This coming Tuesday, I am having a steroid injection in my knee at the hospital. They seem to be making a bit of a fuss about it this time as I have to be admitted like I am in for an operation when before I just had the injection, went home and that was it. Anyway, my question is that on Saturday, I
This coming Tuesday, I am having a steroid injection in my knee at the hospital. They seem to be making a bit of a fuss about it this time as I have to be admitted like I am in for an operation when before I just had the injection, went home and that was it. Anyway, my question is that on Saturday, I
Hidden
in
NRAS
5 years ago
Should I be checked more thoroughly?
Hi, I used to have a lovely rheumatologist who always checked me out thoroughly at each appointment. This included feeling the glands in my neck, having me lay on the bed while she checked out my knees, studying my fingers and nails etc. Sadly she was killed in a motor accident and now I have another
Hi, I used to have a lovely rheumatologist who always checked me out thoroughly at each appointment. This included feeling the glands in my neck, having me lay on the bed while she checked out my knees, studying my fingers and nails etc. Sadly she was killed in a motor accident and now I have another
Hidden
in
NRAS
5 years ago
Overheating
Recently diagnosed with RA and not on meds yet but had a steroid injection. I’m 52 and pretty sure in menopause. I’m struggling at night with hot sweats at night which combined with shoulder/hand pain is really disturbing my sleep. Has anyone any suggestions?? Can you take HRT with all the other stuff
Recently diagnosed with RA and not on meds yet but had a steroid injection. I’m 52 and pretty sure in menopause. I’m struggling at night with hot sweats at night which combined with shoulder/hand pain is really disturbing my sleep. Has anyone any suggestions?? Can you take HRT with all the other stuff
Longlocks
in
NRAS
5 years ago
Methotrexate
Hi everyone . Not been too well with flares recently . Been put on the above medication 3 weeks ago . I’ve just started getting a sore tongue at the side and tiny red dots on my tongue , about 5 in total . Has anyone else experienced this ??? Should I give rheumatology a ring ??? Really not happy
Hi everyone . Not been too well with flares recently . Been put on the above medication 3 weeks ago . I’ve just started getting a sore tongue at the side and tiny red dots on my tongue , about 5 in total . Has anyone else experienced this ??? Should I give rheumatology a ring ??? Really not happy
Willow1414
in
LUPUS UK
5 years ago
Was it Worth it? (HUMOUR INTENDED)
So .... I had to prepare.... no food six hours before......no clear fluids two hours before (on one of the hottest days on record!).......appointment time 1.30 pm. With small suitcase on wheels in hand trundled through the building site and successfully (eventually) found the correct part of the building
So .... I had to prepare.... no food six hours before......no clear fluids two hours before (on one of the hottest days on record!).......appointment time 1.30 pm. With small suitcase on wheels in hand trundled through the building site and successfully (eventually) found the correct part of the building
Marilyn1959
in
PMRGCAuk
5 years ago
Second Toe Pain Update
Hi everyone Just thought I'd update you on my second toe pain. I've .had my new insoles and they make walking more uncomfortable so I've gone back to old ones but love my new trainers!. Going back to podiatry end of September. I saw my Pain Clinic Consultant who was very helpful but honest as she
Hi everyone Just thought I'd update you on my second toe pain. I've .had my new insoles and they make walking more uncomfortable so I've gone back to old ones but love my new trainers!. Going back to podiatry end of September. I saw my Pain Clinic Consultant who was very helpful but honest as she
misty14
in
LUPUS UK
5 years ago
Starting Meds for RA
Hello all, just been diagnosed with RA, i had a steroid injection on Monday In my bum and im starting methotrexate in 4 weeks time, could anyone help me with what to expect? Thank you
Hello all, just been diagnosed with RA, i had a steroid injection on Monday In my bum and im starting methotrexate in 4 weeks time, could anyone help me with what to expect? Thank you
Adalisone
in
NRAS
5 years ago
Painkillers before rheumy appointment
Hope you're all as well as you can be and thank you for keeping this group going. The help, on lots of levels, and information from fellow sufferers is second to none. I was wondering how you feel about taking painkillers before seeing the rheumatologist. I'm on 15mg methotrexate (started on 10mg) and
Hope you're all as well as you can be and thank you for keeping this group going. The help, on lots of levels, and information from fellow sufferers is second to none. I was wondering how you feel about taking painkillers before seeing the rheumatologist. I'm on 15mg methotrexate (started on 10mg) and
Sumdy
in
NRAS
5 years ago
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