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Newbie .. follow up
So following on from my previous long post, I had my telephone consult with the lupus unit tonight so wanted to update. Apparently between the blood test results and the physically presentation she feels that there is currently no active lupus - the swelling I present could be soft tissue or even skin
So following on from my previous long post, I had my telephone consult with the lupus unit tonight so wanted to update. Apparently between the blood test results and the physically presentation she feels that there is currently no active lupus - the swelling I present could be soft tissue or even skin
Mifford
in
Hughes Syndrome APS Forum
5 years ago
Pre-RA and three months on from initial consultation
Wanted to share an update on my Pre-RA and steps I have been taken. 3 months since seeing GP, and just over 2 since seeing consultant; I have made all suggested changes. Albeit, smoking only reduced by half. I have l lost 12kg now, and am going to the gym 6 days a week. The gym has been really important
Wanted to share an update on my Pre-RA and steps I have been taken. 3 months since seeing GP, and just over 2 since seeing consultant; I have made all suggested changes. Albeit, smoking only reduced by half. I have l lost 12kg now, and am going to the gym 6 days a week. The gym has been really important
colindgreen
in
NRAS
5 years ago
Bad structural damage to one hand and beginning on the other but normal test scores
Hello All, I am 46 and have had rheumatoid arthritis since I was 38. I have tried methotraxat but this was not effective and also caused a side effect of very severe headaches. My NHS hospital gave me leflunomide instead about five months ago but it is very ineffective. I have severe pain and swelling
Hello All, I am 46 and have had rheumatoid arthritis since I was 38. I have tried methotraxat but this was not effective and also caused a side effect of very severe headaches. My NHS hospital gave me leflunomide instead about five months ago but it is very ineffective. I have severe pain and swelling
ma73jon
in
NRAS
5 years ago
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Could a fracture in a joint actually help cartilage regeneration?
Here is a puzzle. I've had osteoarthritis for many years and it was always under control. I didn't take any medications for it. Now it has become worse and it may be partly because of the extended time I've been on oral pred. We now know that steroid injections damage cartilage. But before I came
Here is a puzzle. I've had osteoarthritis for many years and it was always under control. I didn't take any medications for it. Now it has become worse and it may be partly because of the extended time I've been on oral pred. We now know that steroid injections damage cartilage. But before I came
HeronNS
in
PMRGCAuk
5 years ago
Scabbing alopecia
Hi, I developed alopecia four years ago along with telegon effluvium after a traumatic event. I ended up shaving my head and had steroid injections and thankfully it grew back fine. Having just got to the point where I love my hair again (it sounds so vain but I hate they way I look and I’m overweight
Hi, I developed alopecia four years ago along with telegon effluvium after a traumatic event. I ended up shaving my head and had steroid injections and thankfully it grew back fine. Having just got to the point where I love my hair again (it sounds so vain but I hate they way I look and I’m overweight
Lipbalmaddict01
in
Alopecia UK
5 years ago
Newly diagnosed SeroNegative RA
I have just been diagnosed with SeroNegative RA - although awaiting some further xrays (inc neck and chest) and I think rheumatologist might also be checking for ankylosing spondylitis. I had a hip replacement 8 weeks ago following a a diagnosis of rapidly progressive osteoarthritis although it would
I have just been diagnosed with SeroNegative RA - although awaiting some further xrays (inc neck and chest) and I think rheumatologist might also be checking for ankylosing spondylitis. I had a hip replacement 8 weeks ago following a a diagnosis of rapidly progressive osteoarthritis although it would
Eden1
in
NRAS
5 years ago
Steroids.
Hi. Guys I haven’t been on here for a while, so much has happened since my last post. So let’s start from the beginning. 10 years ago I thought I had a normal life, I was a nurse I had two grown up boys nice house nice husband, drove my car life was pretty good then although we all moan about something
Hi. Guys I haven’t been on here for a while, so much has happened since my last post. So let’s start from the beginning. 10 years ago I thought I had a normal life, I was a nurse I had two grown up boys nice house nice husband, drove my car life was pretty good then although we all moan about something
Chazzi
in
PMRGCAuk
5 years ago
Mtx and steroid injection on same day?
Hi, I've got a steroid injection booked for tomorow (Tues) with my GP and I normally have my mtx injection on Tuesday as well. Is it ok to have it on the same day or should I leave it a day or two or missing it all together this week? It's so long since I had an injection that I can't remember the protocol
Hi, I've got a steroid injection booked for tomorow (Tues) with my GP and I normally have my mtx injection on Tuesday as well. Is it ok to have it on the same day or should I leave it a day or two or missing it all together this week? It's so long since I had an injection that I can't remember the protocol
Maggsie
in
NRAS
5 years ago
Rituximab quandary
I've been on Orencia for about 3 years and I've never really felt that it was super effective, but continued it along with sulfasalazine and hydroxy. I received a steroid injection into my hip a few weeks ago and within days my old rings fit again and a pair of my boots were much more comfortable.
I've been on Orencia for about 3 years and I've never really felt that it was super effective, but continued it along with sulfasalazine and hydroxy. I received a steroid injection into my hip a few weeks ago and within days my old rings fit again and a pair of my boots were much more comfortable.
shareasmile
in
NRAS
5 years ago
Sitting down is a real pain!
Hello I have suffered from lower back pain for most of my adult life. I suspect that this is in common with many, many people but just over 2 years ago I had another familiar episode but this time it did not diminish with the usual sodium diclofenac and Co-Codomol. The main painful and very frustrating
Hello I have suffered from lower back pain for most of my adult life. I suspect that this is in common with many, many people but just over 2 years ago I had another familiar episode but this time it did not diminish with the usual sodium diclofenac and Co-Codomol. The main painful and very frustrating
Georgyboy
in
Pain Concern
5 years ago
Newly diagnosed with RA
Hi all, I'm Dominic, I was recently diagnosed with seropositive RA, I am/was a keen Marathon/ultra marathon runner and competed in an off road ultra marathon as recently as July, I then developed a pain in one toe which I presumed was a stress fracture from said run, over the next few weeks, this spread
Hi all, I'm Dominic, I was recently diagnosed with seropositive RA, I am/was a keen Marathon/ultra marathon runner and competed in an off road ultra marathon as recently as July, I then developed a pain in one toe which I presumed was a stress fracture from said run, over the next few weeks, this spread
Dominicveal
in
NRAS
5 years ago
Osteoarthritis injections
Just had steroid injection in bottem of thumb near wrist, also had injection in middle of knuckle straight into the bone
Just had steroid injection in bottem of thumb near wrist, also had injection in middle of knuckle straight into the bone
Hidden
in
Pain Concern
5 years ago
Tocilizumab or Baricitinib?
HI -- I've had RA for 14 years, diagnosed at 40. Have had a great partnership with Enbrel for over 10 years. They changed me on to Humira, an equivalent (as an NHS cost-saving). Not sure if that interfered with my condition, but suffered with swelling and pain, in every joint. This has been ongoing since
HI -- I've had RA for 14 years, diagnosed at 40. Have had a great partnership with Enbrel for over 10 years. They changed me on to Humira, an equivalent (as an NHS cost-saving). Not sure if that interfered with my condition, but suffered with swelling and pain, in every joint. This has been ongoing since
Squarefish1
in
NRAS
5 years ago
Sulfasalazine
What’s people’s experience of Sulfasalazine? I’m on my second week so now taking 2 tablets per day, increasing to 4 tabs by week 4. I was fine on 1 tablet but since increasing to 2 tablets 5 days ago, I’m feeling really weak, shaky & nauseous. I’m still in a flare up and unfortunately Prednisolone and
What’s people’s experience of Sulfasalazine? I’m on my second week so now taking 2 tablets per day, increasing to 4 tabs by week 4. I was fine on 1 tablet but since increasing to 2 tablets 5 days ago, I’m feeling really weak, shaky & nauseous. I’m still in a flare up and unfortunately Prednisolone and
Hidden
in
NRAS
5 years ago
Has this article on Steroid injections been shared?
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
OutdoorsyGal
in
PMRGCAuk
5 years ago
Steroid injection
Hi I had a nerve block six weeks ago for PN it numbed me for around two hours, my consultant arranged for me to come back and see her in three weeks and then I had a steroid injection since then I have excruciating pain, I am taking pregablin twice daily 300mg morning and 300mg at bedtime along with
Hi I had a nerve block six weeks ago for PN it numbed me for around two hours, my consultant arranged for me to come back and see her in three weeks and then I had a steroid injection since then I have excruciating pain, I am taking pregablin twice daily 300mg morning and 300mg at bedtime along with
Janebee
in
Pelvic Pain Support Network
5 years ago
Ccp antibody
My first time on here iv just been diagnosed with RA I have had steroid injections and I’m starting methotrexate tomorrow. My question is my ccp antibody level was 289.2 today. I know it should be between 0-19 so this seems very high to me. Has anyone else had a high levels like these
My first time on here iv just been diagnosed with RA I have had steroid injections and I’m starting methotrexate tomorrow. My question is my ccp antibody level was 289.2 today. I know it should be between 0-19 so this seems very high to me. Has anyone else had a high levels like these
Gailrossi
in
NRAS
5 years ago
Currently undiagnosed
Hi all, First time posting on here. I currently have a very large (think the size of a babies head) very painful lump on my lower right leg. I was taken to A&E in august in crippling pain, they did bloods and an x-ray (see pic) and have found a growth in my leg. Back in to see the consultant, he said
Hi all, First time posting on here. I currently have a very large (think the size of a babies head) very painful lump on my lower right leg. I was taken to A&E in august in crippling pain, they did bloods and an x-ray (see pic) and have found a growth in my leg. Back in to see the consultant, he said
InfamousSinon
in
NRAS
5 years ago
Advice please
Need a bit of advice today please. Feel a bit rough today, BP ok but HR all over the place. One minute 56 then 76 ++ then drops my monitor shows an erratic heart rate at the moment. Feel a bit breathless. Not had this before when in AF or is it AF. I had a 6 monthly steroid injection on Wednesday could
Need a bit of advice today please. Feel a bit rough today, BP ok but HR all over the place. One minute 56 then 76 ++ then drops my monitor shows an erratic heart rate at the moment. Feel a bit breathless. Not had this before when in AF or is it AF. I had a 6 monthly steroid injection on Wednesday could
Tikaneko
in
AF Association
5 years ago
MRI update on left knee
Results of my MRI came in and show swelling and inflammation with a couple of small meniscus tears probably attributable to my squash playing and running years. Left knee has continued to be painful and I don’t feel my drug cocktail (pred, leflunomide and hydroxychloroquine ) is working. Saw my rheumatologist
Results of my MRI came in and show swelling and inflammation with a couple of small meniscus tears probably attributable to my squash playing and running years. Left knee has continued to be painful and I don’t feel my drug cocktail (pred, leflunomide and hydroxychloroquine ) is working. Saw my rheumatologist
Lochy
in
PMRGCAuk
5 years ago
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