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RSV virus
hello everyone had this virus since Xmas eve bed riden day 7 finally got amoxicillin and some steroids as have AF and copd.this is worse than covid which I have had and plays with your AF.even healthy ppl with no AF reporting symptoms of irregular H/R.Strong headaches,fever,high temps,aching all over.I
hello everyone had this virus since Xmas eve bed riden day 7 finally got amoxicillin and some steroids as have AF and copd.this is worse than covid which I have had and plays with your AF.even healthy ppl with no AF reporting symptoms of irregular H/R.Strong headaches,fever,high temps,aching all over.I
Danny44
in
Atrial Fibrillation Support
8 months ago
Back on Steroids
Hello to all Three years ago I was diagnosed with GCA and put on 75mg of Prednisilone tapering for 2 years till I finished. I managed to stay off Prednisone for 1 year. During that time I suffered many side effects, well that is what I thought was the case. I improved slowly but then went downhill
Hello to all Three years ago I was diagnosed with GCA and put on 75mg of Prednisilone tapering for 2 years till I finished. I managed to stay off Prednisone for 1 year. During that time I suffered many side effects, well that is what I thought was the case. I improved slowly but then went downhill
GCAVictim
in
PMRGCAuk
8 months ago
Vaccinations
I have Churg Strauss (EGPA) treated with methotrexate and steroids, and have been invited for Phnumonia and Shingles vaccinations. Are they safe/sensible to have?
I have Churg Strauss (EGPA) treated with methotrexate and steroids, and have been invited for Phnumonia and Shingles vaccinations. Are they safe/sensible to have?
sarahdollygirl
in
Vasculitis UK
8 months ago
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Flare?
Hi,I'm posting on behalf of my mum, who was diagnosed with PMR at the end of October this year, after I took her to A & E. She told them she was certain she had PMR, but they were not convinced thinking she had osteoarthritis, until her blood results came back confirming PMR. It was in her thighs &
Hi,I'm posting on behalf of my mum, who was diagnosed with PMR at the end of October this year, after I took her to A & E. She told them she was certain she had PMR, but they were not convinced thinking she had osteoarthritis, until her blood results came back confirming PMR. It was in her thighs &
NellieDoodles
in
PMRGCAuk
8 months ago
interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
2 months ago
help with the mental health side of vasculitis
hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting on skin biopsy results to determine which kind. Spent 5 days in hospital due not being able to walk from how swollen my legs and feet were plus covered all over with the typical vasculitis looking rash. Released from hospital
hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting on skin biopsy results to determine which kind. Spent 5 days in hospital due not being able to walk from how swollen my legs and feet were plus covered all over with the typical vasculitis looking rash. Released from hospital
DC04HM
in
Vasculitis UK
8 months ago
Progression
I was first diagnosed 13 years ago but had no symptons and stayed that way for 6 - 7 years before my breathlessness slowly increased. I was already on meds for hypertension and hypothyroidism but also had a shoulder inflammation, poly myalgia rheumatica, [PMR] which started me on steroids, I managed
I was first diagnosed 13 years ago but had no symptons and stayed that way for 6 - 7 years before my breathlessness slowly increased. I was already on meds for hypertension and hypothyroidism but also had a shoulder inflammation, poly myalgia rheumatica, [PMR] which started me on steroids, I managed
grahame151
in
COPD Friends
8 months ago
dealing with Norovirus
Friends visited us yesterday however they had had grandchildren and son and daughter in law staying with them. Son had been up the night before they visited us with sickness and diarrohea and his little son had also been sick. They were ok however and came to us for lunch, however we were very careful
Friends visited us yesterday however they had had grandchildren and son and daughter in law staying with them. Son had been up the night before they visited us with sickness and diarrohea and his little son had also been sick. They were ok however and came to us for lunch, however we were very careful
bonio
in
PMRGCAuk
8 months ago
Steroids and blood-sugar...
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
Hidden
in
PMRGCAuk
8 months ago
cortico steroid injections
Hi, I’m just wondering why
steroid
injections
aren’t used in PMR? Is it because a high enough dose can’t be achieved? I have way less side effects with a steroid injection than Prednisilone., which I can’t take. Thanks
Hi, I’m just wondering why
steroid
injections
aren’t used in PMR? Is it because a high enough dose can’t be achieved? I have way less side effects with a steroid injection than Prednisilone., which I can’t take. Thanks
Bramble2000
in
PMRGCAuk
2 years ago
Small Airways Disease
I had an infection the end of Jan (still not sure what it was - maybe RSV). Didn’t really start like a cold but airways closed up & excessive mucus. Mucus tested & nothing so no antibiotics. Things slowly got worse, although I was continuing to exercise to clear my chest of mucus (my primary issues is
I had an infection the end of Jan (still not sure what it was - maybe RSV). Didn’t really start like a cold but airways closed up & excessive mucus. Mucus tested & nothing so no antibiotics. Things slowly got worse, although I was continuing to exercise to clear my chest of mucus (my primary issues is
PW_R
in
Lung Conditions Community Forum
3 months ago
denosumab
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
RosettaClapp
in
CLL Support
4 months ago
GCA Concerns, Cold and Eyes
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
Lenore58
in
PMRGCAuk
8 months ago
Is it discoid lupus?
Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that wouldn't heal. After oral antibiotics that had no effect, the Dr found a stronger antibiotic cream that cleared up the infection. Hooray! But in the meantime I keep getting more bumps. I thought it was a coincidence,
Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that wouldn't heal. After oral antibiotics that had no effect, the Dr found a stronger antibiotic cream that cleared up the infection. Hooray! But in the meantime I keep getting more bumps. I thought it was a coincidence,
lupus_paradise
in
LUPUS UK
3 months ago
Coughing again ...
Hi all - I posted here in early December after a trip to India set my asthma off because of the dreadful pollution. I saw a fabulous doctor who threw everything at me - nebulizer, antibiotics, steroids, Omeprazole, cough medicine and an antihistamine - which calmed it all down. He did say he couldn't
Hi all - I posted here in early December after a trip to India set my asthma off because of the dreadful pollution. I saw a fabulous doctor who threw everything at me - nebulizer, antibiotics, steroids, Omeprazole, cough medicine and an antihistamine - which calmed it all down. He did say he couldn't
Padders
in
Asthma Community Forum
8 months ago
hip bursitis and RA
tried 2
steroid
injections
but it's still there.. I have had it for 3 years now and don't know if it is RA related. consultant just tells me to do physio exercises ? any advice would be appreciated.. thanks
tried 2
steroid
injections
but it's still there.. I have had it for 3 years now and don't know if it is RA related. consultant just tells me to do physio exercises ? any advice would be appreciated.. thanks
lindyloo2018
in
NRAS
2 years ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
8 months ago
Sputum
I noticed that when my chest infection is clearing I get tiny blackish speckles in my sputum ,anyone else ever notice this in there sputum ,my infections are usually the haemophilus bug
I noticed that when my chest infection is clearing I get tiny blackish speckles in my sputum ,anyone else ever notice this in there sputum ,my infections are usually the haemophilus bug
Alice70
in
Lung Conditions Community Forum
4 months ago
Skin problems at low dose
I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However 6 weeks ago I woke up to an itchy rash on my back and still have it. Diagnosed via photos and text with gp (4 week wait for f2f appt) as eczema
I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However 6 weeks ago I woke up to an itchy rash on my back and still have it. Diagnosed via photos and text with gp (4 week wait for f2f appt) as eczema
Waves2
in
PMRGCAuk
3 months ago
Asthma not well controlled
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
Lilmix03
in
Asthma Community Forum
8 months ago
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