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Hi, apologies for long post. I’m a 34yo female. I’ve had symptoms that line up with hypothyroid symptoms for years. Had a few tests when my eczema flared up really badly around 12 years ago, which coincides with the time that a lot of the symptoms began. Have had fatigue basically since catching Epstein-Barr
Hi, apologies for long post. I’m a 34yo female. I’ve had symptoms that line up with hypothyroid symptoms for years. Had a few tests when my eczema flared up really badly around 12 years ago, which coincides with the time that a lot of the symptoms began. Have had fatigue basically since catching Epstein-Barr
KTEO
in
Thyroid UK
6 months ago
Private Dexa Scan
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
kalgoorlie
in
PMRGCAuk
6 months ago
stopped Pred but pain & stiffness came in knees. GP says it isn’t PMR
I stopped Pred about 3 months ago. My knees & hands have started being very painful- I could hardly walk & couldn’t play my musical instruments. Sent for X rays of hands. Some osteoarthritis. Took 5mg Pred for a day. Pain went away. Have carried on with Pred, assuming PMR still grumbling away. Intend
I stopped Pred about 3 months ago. My knees & hands have started being very painful- I could hardly walk & couldn’t play my musical instruments. Sent for X rays of hands. Some osteoarthritis. Took 5mg Pred for a day. Pain went away. Have carried on with Pred, assuming PMR still grumbling away. Intend
HalleysComet
in
PMRGCAuk
6 months ago
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Advice and some reassurance please
I finally got my G.P to increase my steroids to 15mg with reluctance and a referral to Rheumatologist. He is unclear about this being PMR. Hey Ho. Anyway, this did improve the pain and although not completely pain-free was acceptable. I knew he would never agree to a higher dose so just grateful for
I finally got my G.P to increase my steroids to 15mg with reluctance and a referral to Rheumatologist. He is unclear about this being PMR. Hey Ho. Anyway, this did improve the pain and although not completely pain-free was acceptable. I knew he would never agree to a higher dose so just grateful for
Cooper02
in
PMRGCAuk
6 months ago
Covid
Has anyone had Covid recently and found it’s hit them much harder than previous bouts? I’m wondering if it’s because it’s been a year since I was last vaccinated? Currently 2 weeks in, on steroids and think I probably have a chest infection too!
Has anyone had Covid recently and found it’s hit them much harder than previous bouts? I’m wondering if it’s because it’s been a year since I was last vaccinated? Currently 2 weeks in, on steroids and think I probably have a chest infection too!
Gymbearo
in
Asthma Community Forum
7 hours ago
stiffness
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
TedTheMaineCoon
in
PMRGCAuk
10 months ago
Aches and pains PMR?
I have reduced methylpred to 4 mgs. Thought I was doing ok. Both shoulders hurt but with different exercises. My right buttock /hip has been very painful. None of these aches and pains impinge on range of motion but without ibuprofen. walking is a challenge. Pain in butt increasingly worse. Also
I have reduced methylpred to 4 mgs. Thought I was doing ok. Both shoulders hurt but with different exercises. My right buttock /hip has been very painful. None of these aches and pains impinge on range of motion but without ibuprofen. walking is a challenge. Pain in butt increasingly worse. Also
Merryfield
in
PMRGCAuk
6 months ago
Criteria to treat CLL
Good morning, My Haematologist has again recommended I start treatment for CLL. Yet, I know that I've read on here that there are set criteria for doing so. His reasoning is that the treatment has a immune suppressive effect. I'm on 4mg prednisolone and the aim is to taper to nothing. I'm on the steroids
Good morning, My Haematologist has again recommended I start treatment for CLL. Yet, I know that I've read on here that there are set criteria for doing so. His reasoning is that the treatment has a immune suppressive effect. I'm on 4mg prednisolone and the aim is to taper to nothing. I'm on the steroids
Ange324
in
CLL Support
6 months ago
To be or not to be Immuno-suppressed? That is the Question!
Since the covid vaccination program began, I've very deliberately had every single booster offered....7 in total. I've always felt that protecting myself from catching covid is both sensible and responsible. However, I've not been able to have this years spring booster yet as I cannot have the Moderna
Since the covid vaccination program began, I've very deliberately had every single booster offered....7 in total. I've always felt that protecting myself from catching covid is both sensible and responsible. However, I've not been able to have this years spring booster yet as I cannot have the Moderna
Kendrew
in
PMRGCAuk
16 days ago
Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
6 months ago
Steroids with flare up
Has anyone taken steroids with a flare up ,do they help ,I am on sulfasalazine.
Has anyone taken steroids with a flare up ,do they help ,I am on sulfasalazine.
Indersisive71
in
NRAS
6 months ago
famotidine
does anyone on here take famotidine when taking steroids instead of omeprazole,and do they have any side effects.Also has anyone tried to get g.p. to prescribe enteric coated 1mg preds when having to take 4 a day.thankyou.x
does anyone on here take famotidine when taking steroids instead of omeprazole,and do they have any side effects.Also has anyone tried to get g.p. to prescribe enteric coated 1mg preds when having to take 4 a day.thankyou.x
Doodlereggie
in
NRAS
6 months ago
Swollen red cheek andslight jaw pain on one side.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
BleatingsheepMAA
in
PMRGCAuk
4 months ago
A positive happening
I had a long hard time after being diagnosed with pmr. my pmr went after 5 yrs but continuing pain in legs meant seeing g.p.s who decided I still had pmr and gave me steroids as the only answer,. So same side effects each time…. Eventually the senior partner intervened and I now see only him. But
I had a long hard time after being diagnosed with pmr. my pmr went after 5 yrs but continuing pain in legs meant seeing g.p.s who decided I still had pmr and gave me steroids as the only answer,. So same side effects each time…. Eventually the senior partner intervened and I now see only him. But
Linlang
in
PMRGCAuk
6 months ago
Crazy week for me and the hubby...
This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was, worried that I wouldn't be able to get to an appointment at 9am at a small hospital in the town next door. I called up 111, and they suggested
This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was, worried that I wouldn't be able to get to an appointment at 9am at a small hospital in the town next door. I called up 111, and they suggested
Cwright170994
in
My MSAA Community
27 days ago
Chest infection
Well yet again on steroids and antibiotics for another chest infection 😕 🙈
Well yet again on steroids and antibiotics for another chest infection 😕 🙈
Yodayodz
in
British Heart Foundation
6 months ago
VEXAS and Sweet's Syndrome
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
6 months ago
medication and infection
Just a bit of advice from you knowledgeable people. I have GCA and currently taking 7.5mg Pred, 7.5 Methotrexate and Tocilizumab. I have a sinus infection/sore throat/earache/headache etc which is uncomfortable but not bad enough to seek intervention from GP. Was wondering what to do with regards above
Just a bit of advice from you knowledgeable people. I have GCA and currently taking 7.5mg Pred, 7.5 Methotrexate and Tocilizumab. I have a sinus infection/sore throat/earache/headache etc which is uncomfortable but not bad enough to seek intervention from GP. Was wondering what to do with regards above
Noni71
in
PMRGCAuk
6 months ago
Hello to you all
Hi everyone, thank you letting me join this forum. I have been diagnosed with PMR in January this year and put onto 30mg steroids to help-which it ha. Doctor wants me off this dose and lower it taking into account not flaring again.since then I have been reduced from end of Jan to 25mg for a month
Hi everyone, thank you letting me join this forum. I have been diagnosed with PMR in January this year and put onto 30mg steroids to help-which it ha. Doctor wants me off this dose and lower it taking into account not flaring again.since then I have been reduced from end of Jan to 25mg for a month
Crwbin1
in
PMRGCAuk
6 months ago
massive flare
Hi, Been on a slow taper successfully, down to 6.5. First day of holiday to Tenerife, had a massive flare, I added ten steroids, ie 16.5, this for three days, has settled things down. What next please? Many thanks
Hi, Been on a slow taper successfully, down to 6.5. First day of holiday to Tenerife, had a massive flare, I added ten steroids, ie 16.5, this for three days, has settled things down. What next please? Many thanks
Carathedog
in
PMRGCAuk
6 months ago
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