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peripheral neurology
I’ve had radiotherapy at the start of this year for prostate cancer. Although the outcome seems to be satisfactory regarding the cancer in the last 3 months I have been suffering from pain and numbness in my feet and left hand and I also have restless legs syndrome. I live near to Glasgow and wonder
I’ve had radiotherapy at the start of this year for prostate cancer. Although the outcome seems to be satisfactory regarding the cancer in the last 3 months I have been suffering from pain and numbness in my feet and left hand and I also have restless legs syndrome. I live near to Glasgow and wonder
countryboy111
in
Restless Legs Syndrome
1 year ago
Post op update.
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Rogo23
in
British Heart Foundation
1 year ago
My Experience with Chemo/Radiotherapy
I was diagnosed with a brain tumour back in December 2012. At that time it was misdiagnosed as a GBM4 but a recurrence in 2019 sent me to hospital again where it was finally rediagnosed as an AO3. Like the GBM4, an AO3 is still terminal but gives one plenty more time on this earth. I never had radiotherapy
I was diagnosed with a brain tumour back in December 2012. At that time it was misdiagnosed as a GBM4 but a recurrence in 2019 sent me to hospital again where it was finally rediagnosed as an AO3. Like the GBM4, an AO3 is still terminal but gives one plenty more time on this earth. I never had radiotherapy
Stewpotb
in
The Brain Tumour Charity
1 year ago
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brain spread
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
Joanie12
in
My Ovacome
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Meningioma Support
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
The Brain Tumour Charity
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Glioblastoma Support
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Acoustic Neuroma Support
1 year ago
How long should I continue with bicalutamide after radiotherapy?
I just completed 40 external beam IMRT treatments two weeks ago. I was Gleason 3 +4, negative bone and CT scans, and although my Decipher score was a disappointing 68, it forecast that with radiotherapy I have a 9% chance of metastasis in 10 years and a 12% chance of mortality in 15 years. Now age
I just completed 40 external beam IMRT treatments two weeks ago. I was Gleason 3 +4, negative bone and CT scans, and although my Decipher score was a disappointing 68, it forecast that with radiotherapy I have a 9% chance of metastasis in 10 years and a 12% chance of mortality in 15 years. Now age
Smarks42
in
Prostate Cancer Network
1 year ago
Delayed Rib Pain After SBRT
I had 5 rounds of SBRT to a rib met discovered through PSMA scan.I had no SE during or after the radiation therapy except for mild fatigue. But a few days ago I started experiencing pain in my rib cage area where I had the radiation. Not serious pain just achiness. The last round of SBRT treatment
I had 5 rounds of SBRT to a rib met discovered through PSMA scan.I had no SE during or after the radiation therapy except for mild fatigue. But a few days ago I started experiencing pain in my rib cage area where I had the radiation. Not serious pain just achiness. The last round of SBRT treatment
John347
in
Advanced Prostate Cancer
1 year ago
Newly Diagnosed
Got the diagnosis last week I had Gleason 7 (4+3) adenocarcinoma in right mid prostate (70% of tissue) and 7 (4+3) in right apex (60%of tissue). Rest of prostate is benign. MRI revealed the lesions are in the transition zone (TZ). Just waiting for the PET scan to determine whether it has metastasized
Got the diagnosis last week I had Gleason 7 (4+3) adenocarcinoma in right mid prostate (70% of tissue) and 7 (4+3) in right apex (60%of tissue). Rest of prostate is benign. MRI revealed the lesions are in the transition zone (TZ). Just waiting for the PET scan to determine whether it has metastasized
805guy
in
Prostate Cancer And Gay Men
1 year ago
Hello everyone...
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
PC-In-NC
in
Prostate Cancer Network
1 year ago
First week done
So after a lot of stress and going from stage 2b to stage 3 my first week of chemoradiotherapy has finished, weekend off before vinorelbine capsules Monday and back on the radiotherapy. Didn't expect to feel so rough after first week and looking for advice please. After the week of radiotherapy I have
So after a lot of stress and going from stage 2b to stage 3 my first week of chemoradiotherapy has finished, weekend off before vinorelbine capsules Monday and back on the radiotherapy. Didn't expect to feel so rough after first week and looking for advice please. After the week of radiotherapy I have
Stayp0sitive
in
The Roy Castle Lung Cancer Foundation
1 year ago
Four Years Results
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Pheart2
in
Advanced Prostate Cancer
1 year ago
Another day another test.
Well that high speed he is not well experience continues with a Ultrasound yesterday. Cancer patients really get good treatment, I am being reimbursed for travel and don't pay for parking.And this morning a phone call from a sympathetic lady called Mandy from the specialist oncology support team, she
Well that high speed he is not well experience continues with a Ultrasound yesterday. Cancer patients really get good treatment, I am being reimbursed for travel and don't pay for parking.And this morning a phone call from a sympathetic lady called Mandy from the specialist oncology support team, she
Rogo23
in
British Heart Foundation
1 year ago
Queries made with NHS
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
ginkgo
in
The Roy Castle Lung Cancer Foundation
1 year ago
radiation proctitis
I am almost 3 years out from radiation therapy and I’m still suffering from symptoms of radiation proctitis. I did have it confirmed by colonoscopy about a year and a half ago, at that time the gastroenterologist told me he thought it would resolve eventually but it persists. Have any of you had G.I
I am almost 3 years out from radiation therapy and I’m still suffering from symptoms of radiation proctitis. I did have it confirmed by colonoscopy about a year and a half ago, at that time the gastroenterologist told me he thought it would resolve eventually but it persists. Have any of you had G.I
Jmr11820
in
Advanced Prostate Cancer
1 year ago
Pelvis insufficiency fractures.
Is there anyone out there suffering from them. I have three one stable (left sacrum) and two active (left sacrum and pubis bone) plus a haematoma. All as a direct result from radio therapy. Which I had as i was diagnosed with Endometrial cancer, hysterectomy then several weeks later almost 5 weeks of
Is there anyone out there suffering from them. I have three one stable (left sacrum) and two active (left sacrum and pubis bone) plus a haematoma. All as a direct result from radio therapy. Which I had as i was diagnosed with Endometrial cancer, hysterectomy then several weeks later almost 5 weeks of
Quercus16
in
Pelvic Radiation Disease Association
1 year ago
Kids and cancer
I have two boys in their 50s. Since my diagnosis I have been very upfront with them about my treatment. One calls every couple of days to check in and see how mom and I are and how my radiation treatment is going. After everything was confirmed he told my grand kids about my having cancer. The have been
I have two boys in their 50s. Since my diagnosis I have been very upfront with them about my treatment. One calls every couple of days to check in and see how mom and I are and how my radiation treatment is going. After everything was confirmed he told my grand kids about my having cancer. The have been
Mgtd
in
Advanced Prostate Cancer
1 year ago
No scan offered!
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
loobilou
in
My Ovacome
1 year ago
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